Tamme Cowan

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  • Tamme Cowan
    March 18, 2021 at 8:57 am

    I’m diagnosed with DADS Anti-MAG. After endless hours of research I found out about a Facebook group called Neuropathie Anti-MAG. It is composed of only people with this extremely rare condition from around the world. The best information and some awesome people. There are less than 100 people in the group. This is where you need to be. Collectively, you will learn what you need to know. If I can help further please let me know. Tamme

    Tamme Cowan
    November 6, 2019 at 3:59 pm

    I was diagnosed with DADS one year ago. Your post is so old now I’m wondering if you will get my reply
    If you do that would be great.

    Tamme Cowan
    February 5, 2019 at 9:47 pm

    I will be receiving my first Rituximab treatment in two weeks. I will have two treatments every six months. I was told it could take up to a year for some people to
    respond and sometimes it doesn’t work at all. The brain virus side effect is frightening and all the other potential infections one can get due to the immune system weakening. My immune system is already compromised. I’m hoping for the best and will report on how things go.

    Tamme Cowan
    October 9, 2018 at 9:10 am

    Thank you so very much for all this helpful information. It gives me direction. I’m going to go to Wayne State University where they have someone who specializes in this area. It was reading your story and your responses to others that encouraged me to join the forum. And here you are responding to my story. Bless you and thanks again for your help. I did have a lot of blood work but no spinal tap.