paulieinct

Your Replies

  • March 10, 2019 at 1:23 pm

    Interesting. But how does it work with people on IVIG or SubQ? If we are infusing antibodies derived from plasma, can we safely contribute plasma?

    February 13, 2019 at 1:30 am

    Would you call them brain zaps? Last only a second, like a whooosh sensation in the head. I’ve had these for years, along with my chronic Lyme Disease, and now CIDP.

    September 8, 2018 at 10:39 pm

    Could be Lyme Disease. This is what I have. Misdiagnosed, and now has turned into autoimmune CIDP. Best to get tested by IGENEX, the Lyme specialty lab in CA. Go to igenex.com.

    August 26, 2018 at 10:10 pm

    My CIDP triggered by decades of misdiagnosed Lyme Disease has caused profuse sweating mostly from my head. The purpose of sweating is to cool the body by evaporation but this can’t happen if there is a 100-degree waterfall coming off your forehead!

    I suspect that the nerves which activate the sweat glands are damaged and are unable to shut off the faucet.

    In the summer I sleep with a/c so my head is cool and then turn on my electric blanket b/c my legs are cold. I kid you not. I have been doing this for decades.