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I get really hot & cold. My doctor asked me to take my temp when it happens. It could be related!
Sorry… but I find it annoying when people stare at me in my wheelchair! My hubby hates when people that are able to walk with ease park in the handicap spaces! If I stay in the car he will not park in the handicap parking!
I like to say “my nerves are getting on my nerves” I have been thinking about print out a brief summary of what GBS is so I don’t have to explain myself all the time. I had to explain it twice today!
When I was first diagnosed I had 6 days of IVIG. But nothing after that. Can you do multiple
rolls?Very similar experiences with GBS. I was finally diagnosed in August 2017. I had a CAT scan & two MRI’s. My second MRI was 2 hours long! The first time I went to the hospital they sent me home. Three days later I had to go back in the hospital. I stayed for a week or so. Then I was sent to a nursing home. My neurologist said my vision problems are not due to my GBS. I’m going to a ophthalmologist next week. I broke my right ankle in three places & had to have surgery. MY 40th birthday was June 22ND & I broke my foot in two places. The ER sent a prescription for painkillers & the pharmacist called to yell at me. I never asked for them to fill a prescription for more painkillers. I take CBD’s & wait 30 minutes before taking a painkiller.
This is my first time on a blog. Hope I’m doing it right?My neurologist said my hot & cold symptoms is a good sign my nerves are healing!