Hi Paul I am a ex truck driver that has CIDP , I could not see myself getting up and down from the cab, or maybe move cargo around with my muscle weakness. I find the fatigue would make 10 hours driving about impossible. I did retire early and was approved for SS disability, wish I was still working to help pay for the IVIG treatments.

Sandra I have giving my good points about plasma exchange but the more I think about it I should tell you what I hate about it. The procedure to do the ports can be scary, for my first exchange a groin port was put in with local numbing med and I did not like I was able to see doc do his work. The other 2 times I was knocked out and a chest port put in, I had no problems with meds or the port but I did developed a tape allergy that change how port was taped down. I am not sure what kind of port you may get because of your body not responding to IVIG maybe Jim could help with that. Also I could not do this as a out patient procedure because risk of infection but it could be the type of port used on me.

I have had plasma exchange the first year of my CIDP treatments, all 3 times I entered the hospital unable to walk. My progress with each stay was the first exchange I get my legs back the next day then with second exchange I got a big boost of energy and foot drop is gone, walking normally and am able to bend down and tie my shoes. The 3rd exchange is the frosting on the cake! my symptoms are all gone and I am wanting to leave hospital right away. I hope your experience is like mine the hard part is staying in a bed when I feel great but because I entered a fall risk the nurses kept me on a short leash.

I am having problems having enough energy to get work around house done, I think the hot summer temps are having some effect but its never been this sever. My gf says I can fall asleep faster then Bolt can run the 100 meter and I have not stopped any meds. not sure if cidp is getting more difficult or what, anyone else getting dragged down by hot temps ?