CIDP What caused it? List all meds you are taking

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    • #117256
      Ron Brunelle
      Participant

      Though I can’t prove it, I have my suspicions that my CIDP is a result of Lyme antibiotics and/or pain meds. Help my personal research.
      List your meds, even unprescribed
      My meds listed below:

      Vicodin (unprescribed)
      On & off 5 years prior to CIDP diagnosis.

      (Prescribed)
      Doxycycline
      Tetracycline
      Dapsone
      LDN
      Percocet
      Oxycodone
      Rifampin
      Vitamins

    • #117261
      jon swanson
      Participant

      I think its a stretch to include pain meds.

    • #117266
      Ron Brunelle
      Participant

      I’m desperate for an answer.
      Yes, I agree its a really long stretch. No one knows for sure how CIDP occurs. I guess I like to torture myself. I think back to when I started feeling the symptoms and what events took place. Many of the medicines I took are quite damaging. The doctors never warned me of the side & adverse effects of some of these drugs. LDN Low Dose Naltrexone can cause anything from stomach cramps to convolutions, depression or deep vein thrombosis. After a few months of therapy I suffered from a pulmonary embolism. (Blood clot in my lung)
      Long term Opioids use could change your metabolism, lowers your immune system and could cause anything from weight loss to causing a stroke. Maybe I do too much online research.

    • #117267
      harryswope
      Participant

      Hi Ron is there any family history of autoimmune problems ? I have CIDP my twin brother has Crones, my dad had ALS and my sister has Gout. There is no question how I got CIDP you have some genetic history to explore.

    • #117275
      Ron Brunelle
      Participant

      I believe there are different engines that drive an individuals health.
      Genetic
      Diet
      Pollutants-toxins
      Medicine
      Anything that changes your metabolism and/or immune system.
      In my case, my suspicions of the CIDP started with contracting Lyme disease and then the over use of antibiotics.
      Other contributing factors are pain meds which further weakened my immune system.
      This is my isolated story. No one has the same leading conditions, we are all familiar with the outcome.

    • #117286
      Dana
      Participant

      Not sure what caused it but I have a suspicions it could have been an antibiotic (Minocycline) I prescribed ~ 3 years ago by my ophthalmologist. It messed up my gut flora badly though it seemed to clear up after I stopped taking it. I’ve also been on quite a few supplements over the years such as magnesium and vitimins.

      The only other thing that comes to mind is some traveling around the world, but it was so long ago I doubt it. Still no telling what I could have picked up in nasty places like India or how long it could stay dormant.

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