Blessedmomof3
Your Replies
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September 18, 2018 at 10:50 pm
I’m sorry you are going through this . As I was reading it felt like you have mostly all the symptoms I stayed withome. I had gbs 2 years ago and my neurologist had told me I would go back to how I was . I’m still waiting. I’m frustrated because this is not like me at all I feel like I just can’t get out of bed or want to do anything anymore . I clean my house and I too sweat like crazy. Honestly I think most Dr’s are not education or really know what we are going through .
June 22, 2018 at 1:28 pmYes I too try to do cleaning that I used to do before gbs and now I sweat alot for sweeping or mopping. I just feel sweat pouring down my face. I think it might be because we get tierd very easily. Even for the smallest tasks.
May 13, 2017 at 12:29 pmThats great to hear that everythings moving along good for you. This will benefit you. I did a 5 day treatment of ivig while in hospital and when i was out of the hospital. I still have residual from the gbs so my dr recomended me to get another treatment of the ivig, i had an allergic reaction so i can no longer take it anymore.
May 13, 2017 at 12:23 pmIf you dont mind me asking why didnt they start the ivig in the hospital. I still have numbness and tingling on hands and feet sometimes my head gets numb too. I also get tierd easy im only 37yrs old.I stayed with nerve damage and i guess i have to be ok with that i went through steps of trying to eat again i couldnt chew properly because every muscle was numb.how to walk i ended up in a walker for 4 months until i was strong enough to walk with a cane.
May 12, 2017 at 2:02 amYes do it ASAP the sooner the the less residual you will have. I was diagnosed with guillan barrae and Miller fisher variant last year.
