June 13, 2016 at 12:31 pm
GH-I can feel some vibrations now. Anything I step on hurts like hell or I don’t even realize I stepped on it, kind of varies. I just read over my neurologists clinic notes and he graded my reflexes and sensations. Either the feeling will come back or not. Either way I can live with the outcome.June 10, 2016 at 2:24 pm
Medications can cause the dizziness. When I was finally somewhat mobile after over 3 months of being completely paralyzed, I would get dizzy trying to sit up and stand up. The muscle spasms, fatigue, tingling and numbness are unfortunately a gift from the GBS. There are meds you can take for these but unfortunately one of the side effects of these are dizziness. My son and I made it a point to review all of the side effects of all of my meds and several of them had dizziness as a very commonone.
AngieJune 10, 2016 at 1:43 pm
I went online and use http://www.typing.com and http://www.sense-lang.org/typing/tutor/keyboarding.php.Both are really good for reteaching the basics. I still have issues with knowing where my fingers rea on tahe keyboard and spend a lot of time proof reading things before I send or press enter ( I intentionally left 2 typos on here for you) lol. As far as a device for the gentleman, I was thinking of something similar to the Clap on Clap off device, When I was in ICU an Linn Skilled assisted Living, I was unable to push the call light button. They hooked me up a with a call light that I could use my head instead of my fingers. It was a metal device and when I needed anything I just moved my head to the side and touched it with the side of my head/face. If you need anything else just left me know. Glad to be of assistance.
AngieJune 9, 2016 at 7:20 pm
I know the feeling Rose. My family was real supportive when I first got home. I’ve been home for 1 year AND 4 months now. Since I have improved so much they tend to forget I get muscle fatigue, Hang in thereJune 9, 2016 at 12:24 pm
Rose are you on any depression, anxiety or sleep medications? I ask because I am. I take Effexsor HCL for depression, Xanax for anxiety and Seroquel to help me sleep. The Seroquel also helps with my bipolar disorder. I see a psychiatrist every couple of months too. She explained what GBS has done to our bodies like this: Our bodies have been through such a traumatic experience that we can suffer from anxiety, depression and PTSD. It’s difficult to go from be a totally independent person to having to depend on others. I wish you the best AngieJune 9, 2016 at 11:34 am
GBS has several variants. If you look at teh publications on this site you can learn all about it. Also try scrolling through the main forum. I just started using this site yesterday and have found it very helpful. http://www.gbs-cidp.org/gbs/all-about-gbs/. Hope this helps you out. Angie in Northeast MissouriJune 8, 2016 at 4:48 pm
Mine started May 20th 2014. While at RUSK, I used the Autoambulator to help me with my drop foot and walking. They also had an board that was like the handheld Simon games. This worked on my hand/eye coordinataion and my high and low reaching abilities. And we played wii sports. At home I used 2 different typing tutor websites to work on my typing skills I had lost, this is still a work in progress. Hope this helps. Oh by the way my official diagnosis now is ASMAN.June 8, 2016 at 3:32 pm
My ASMAN diagnosis was when I had my EMG and an MRI back in Oct. I spent 85 days at the University of Columbia hospital. I was totally paralyzed from the top of my head to my tippy toes. I spent most of the time in a medically induced coma.I had to have an emergency trach, feeding tube and catheter. I really didn’t start any therapy until Aug/Sep of 2014. I did go to RUSK Rehabilitation Center in Columbia and the worked me hard 5 days a week, sometimes 6. I was finally able to come home Feb.2 2015. Since then I have done my own therapy at home. I now only see my nuerologist and physical rehab dr’s once year. I onl have to see the neurosurgeon if my spinal stenosis in my neck gets worse. So I’m not doing too badJune 8, 2016 at 12:02 pm
I am in a rarer group: ASMAN. It is my understanding that it is similar in some ways to AMANJune 8, 2016 at 11:32 am
Not sure exactly what devices you are looking at but here goes my huge list:
Cast splints made to help with drop foot 2 hrs on 2 hrs off. I use these during the day instead of at bedtime. My sleep is precious to me so this is a more feasible option for me.
I have the Allard toe-off braces to support my ankles. They had to take a large and trim the foot part to medium. I needed the extra support of the large but have a small foot. They take a lot of getting used to. they help with my balance, which has improved tremendously. I am bad and don’t wear them like I should. This has resulted in my left foot pointing out when I walk.
My walker was just too slow for me.
I use thera putty for my fingers and hands, love it
i did have to use a grabber/reacher for a little while, loved it. Made getting things high and low a lot easier and I was able to use it to help get myself dressed.
I used sock assistant ( no idea what it is called) for some time. This made things so much easier for me getting dressed. Works for ten hose too’
I also use thera bands and gate belts to do some of my daily stretches and exercises. Love them
N ow why I was hospitalized I had Splints made for both of my hands to straighten them out and to keep them from curling permanently. This did an amazing job.
If you have any questions just let me know