Yet another success story-10 years later…
AnonymousAugust 27, 2006 at 8:45 am
This is the first time I have even looked up GBS on the net – I just wanted to forget the whole episode! But, I notice that a lot of people are talking about recent experiences, and as I had GBS ten years ago, and consider myself a success story I thought someone might gain from a longer term outlook. I wish someone had told me it would all be OK at the time!
I was 21 and I had GBS about as badly as you can – respirated, no blinking or even really swallowing. I was in intensive care for about two weeks and then a main ward for about a month and then I had what they think was a relapse, which set me back to the respirator again. It was very painful and humiliating. I wouldn’t let anyone come and see me, and, after four more months I discharged myself. I couldn’t walk at all, but had enough strength in my arms to get by, and I went to live with my dad in the middle of nowhere. I had a very poor attitude throughout the entire ordeal – no positive thinking for me!
My point: It took a year to walk again. I did none of the physical therapy recommended, but I did resume all the things I was into before – surfing, skating, dancing and riding motorcycles (which it turns out, you can do with floppy ankles!). I also more recently got into snowboarding and kitesurfing. Two years later I took up running and, although it took 3 years, I ran my first 10k race in 2002. Since then, I have become more involved in surfing and kitesurfing, and have travelled all over the world competing. I still run often.
I still get really really tired sometimes, especially after doing things that require balance – such as surfing. Sometimes, when I am really tired I can’t swallow properly (which is a problem in the water) and I can’t stand up in the dark! I can’t drink either. And my feet are pretty numb still – covered in cuts all the time. And there’s this weird thing with my blood pressure sometimes..OK this is not sounding too inspiring so far..
But my point – the doctors thought I was toast. My mother took power of attorney, plans were made, my brother even bought a suit. And I was angry, depressed and unco-operative to boot. But even I got better! And the best part is, every physical action I have ever done since then feels absolutely brilliant. I get a kick out of walking to the mailbox – and that’s ten years later!
So, that’s all I have to say.
AnonymousAugust 27, 2006 at 5:01 pm
Welcome and glad you decided to look us up and post here. I love to read a success story. You sure have come a long way and are an inspiration to us relative newbies. Take care and hope you come back and share your experiences and ways of coping with this stuff.
AnonymousNovember 18, 2006 at 6:34 pm
Thanks for the hope you make fell better because I don’t get the therapy I fell I need but I have noticed that certain movments just came back without any type of therapy but its been four years and I’m not walking yet but I fell it coming, so Thanks for the story.
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