What’s Up…

    • Anonymous
      October 24, 2010 at 9:13 pm

      Things have been going well. I don’t need a rest at lunch anymore. Though I lay around a lot at home. Mostly before bed and after the dog gets me up.

      Since all regular medicine has to offer is rest and pain medication, I’ve decided to branch out. I visited with a naturopath nurse RN, MS. and it went really well. She was familiar with GBS and told me that it was caused by a immune-deficiency. That to treat it she recommended a new diet, vitamin and herbal supplements to help build the immune system back up. That even though I only have numbish feet and calves, I wasn’t well. She referred me to a Naturopathic MD in Suffern NY. He agreed with her protocol and added some of his own. He ordered a battery of tests, blood, urine etc. He is looking for heavy metals, hormone levels, more than I remember. He said that I should start Tai Chi again right away. I go back to him in November.

      I saw my Neuro last Tuesday. He likes my progress and wants to see me in 6 months. He expects me to be symptom free by then.

      Take Care,


    • Anonymous
      October 24, 2010 at 9:47 pm

      Great to hear. Glad you are doing well.

    • Anonymous
      November 2, 2010 at 9:48 am

      Always good to hear about improvements. Especially encouraging for people going through the worst of it.

    • Anonymous
      November 2, 2010 at 8:05 pm

      Build up your strength slowly, and be SURE to pace yourself! Nothing like finding your feet set in concrete far from a seat or any help!
      Tune in to your warning signs, but in safe situations, push yourself to stand, walk and do more each day. Every effort adds up to a heap of efforts! Then the real progress can and will begin!
      What is being recommended to you is all prudent, IF done by you prudently. We are now the ‘tortoises’, slow and steady will win OUR races!
      Hope and good things!

    • Anonymous
      November 4, 2010 at 4:08 pm

      It hasn’t even been 5 months yet! You are well on your way to a total recovery…..give your body some TIME to repair. This (GBS) is not some ordinary disease…..it is the BIG ONE. Being a vegan, maybe it wil take longer for your body to recover….not sure If you want me to run over the list of diet and supplements that your naturopath suggested, let me know. Depending on where they got their degree makes a big difference. The ones I have spoken to that got it through the mail were lacking much knowledge and experience. My dentist’s hygenist is studying for her degree by mail and knows very little and much is incorrect. That is why in the past 40 years, Idid not get a degree. Because what they were teaching was wrong. BUT I did go to one years ago who got her degree in England, and she was excellent. Her diagnosis to me was EXHALE….and yes, I am a shallow breather!! What regular doctor would say that!! All of her patients had to attend a 3 hour lecture before you could be admitted as a patient.

    • Anonymous
      November 4, 2010 at 10:24 pm

      Carolyn, actually being a vegan has helped me nearly recover in 5 months. Since my body isn’t expending lots of energy digesting food it has extra time to repair itself. My quick recovery bears that out.

      My naturalpath, Dr. Kopelson, was educated at New York Medical College, Valhalla, NY. He ordered about 30 blood tests, a urine test for heavy metals using DSMA and stool tests. The bloodwork in done and the only issue is lower than normal vitamin D, he had me up my dosage to 6000iu. In addition he has me taking a oral version of ivig called IgG2000 DF, Iodoral iodine/potassium Iodide, unrefined Pink Himalayan salt, restarting my Tai Chi again, avoiding all future vaccinations (depress the immune system)Selenium, L-glutamine, AHCC, Super K. He said I should not get vitamin c drips or peroxide infusions because of the cost and that my blood tests were so good. I’m also working with natural pathic RN MS, Luanne Pennsi. She is an associate of Dr. Gary Null phd in New York. He has me on a protocol of:
      NAC, Alpha Lipoic Acid, Acetyl L-Carnitine, a high potency multi vitamin, Querceti n, B complex, Super Anti-oxidant formula, Garlic/cayenne, Calcium Magnesium zinc, L-carnitine, COQ10, Probiotic formula, Turmeric, Omega 3 epa dha, natural Vitamin E, melatonin at night, Reveratrol, Oregamax (for broncytis).
      Instead of breakfast I’m to have a Protein Shake consisting of Protein Powder, Liquid aloe vera, berry concentrate, Red Chlorophyll powder, Vitamin C powder, Essential fatty acids udo’s choice and cod liver oil, Bee propolis, Lecithin, L-Gutamin and some of all the vitamins in the paragraph above all ground up Coconut milk and water.
      At 3:pm, I will have a Green Juice of Green juice powder, Liquid Aloe, Vitamin C powder, Chlorella, with water and coconut milk.
      In the evening I’ll have a Fiber Shake with Fiber powder, Celtic Sea Salt, Red Chlorophyll, Vitamin C powder, St. Johns wort, Coconut milk with water.
      The green juice and fiber shakes will also have the supplements mixed in. The only two that will be taken on an empty stomach are, ALA, Acetyle L-carnitine and the omega 3 epa dha.


    • Anonymous
      November 4, 2010 at 11:26 pm

      Does that leave any room for peanut butter cups????:D

    • Anonymous
      November 4, 2010 at 11:49 pm


    • Anonymous
      November 5, 2010 at 7:29 pm

      Holy supplements, Bat Man!!! That sounds expen$ive..even to me who takes alot. I hope you will keep us informed as to how they are working. How will you tell which supplements did the trick? I do wish you well. Since you are an experienced vegan, you are getting enough protein, etc for your body to repair. Now just keep the stress levels down…..ohmmmmmm

    • Anonymous
      November 9, 2010 at 11:54 pm


      If I get better in a hurry, I’m not going to worry about which single supplement did it. I’m just going to be happy.

      Besides they work sinergystically.