Welcome To All Who Enter Here New and All of Us Senior Members

hmmm, i can login on my laptop, but on my pc this site says me &/or my password are not valid. hi brandy, lee, ken, & all. i’ll read all the posts as soon as i get this snafu fixed. gene

hey, for no known reason my desktop is now accepting me on this site. woohoo! take care. be well.

gene gbs 8-99
in numbers there is strength

I too am glad to be back on, and am most grateful to those who have worked so hard to get us here.
Mary Ann

Brandy! Hey Girl we have to catch up with each other! 🙂
Please be kind to us geeks. At first we all wanted the old forums saved. As someone that does that for the individual user that is my primary concern.
I don’t do major networking but I know the pitfalls and the months it takes to create a protected program like the one we are using. I heartily agree with you that we need this site and, like you, jumping with joy it is back on-line!

Hello everyone, it is so good to be back. I checked and checked the site and near gave up.

So happy to see it back. But am sad that we have none of the old posts.

Cody, if you read this, I got your card. Unfortunately I am horrible at returning them.

Things have been rough since the site was down. Been pretty discouraged.
But seeing this board sure makes me happy.

Blu

Hi All

Finally – like above I almost gave up – good to be back but boy this is different — almost too old to change!!!

Sue

CIDP finally diagnosed 2000

Dear Zeesuezee:

It’s good to see you back. You were one of the first posters on the old site and a real solid member. It didn’t seem right if you weren’t here.

The new site has a lot of really cool things going for it. If you give it some time, you will be impressed. One thing, it is 1000 times more secure than the old site. I’d rather not have to rebuild again.

Lee

Hi!

Glad to be back and see that we can finally communicate again. Sometimes I just need to talk to someone about some of my aches and pains and then I feel much better. I know that we all have a period of adjustment to go through with the new site, however, since we are experts at accepting changes in our lives, this shouldn’t be too difficult.

Take care.;)

Dear Jan:

Very well said.

Lee

Hi Family,
We become a family because we feel what you feel and with that comes understanding. I am so glad that we’re back, that made me realize how very important the forum is to us.
I think the first two things we should do is to help our BRAND NEW NEWBIES, then help each other. After that, if anyone can restore posts we lost, we need to do that. Each one of us probably deeply regrets not printing out important ones. I know I do.
Once these are under control, we can try to organize posts until we find out what the administrators are going to do about CATAGORIES.
From my Heart
Liz

🙂 😀 Hi Everybody,
Its great to be back on line again. Now we have to start rebuilding what took us years to develop.
Lea

Hi, everyone-and especially to Ali who alerted me the site was back up. It’s good to be home! Take care everyone-and talk to you soon.

Welcome back Steph!

[FONT=Comic Sans MS][SIZE=3][COLOR=plum]Hey, all you Forum old-timers!!![/COLOR][/SIZE][/FONT]
[FONT=Comic Sans MS][SIZE=3][COLOR=plum]It is SO good to be back! I’m in the process of finding the little ‘fun things’ our new webpage has to offer. Kinda fun. [/COLOR][/SIZE][/FONT]
[FONT=Comic Sans MS][SIZE=3][COLOR=#dda0dd]See you on the Boards![/COLOR][/SIZE][/FONT]
[FONT=Comic Sans MS][SIZE=3][COLOR=#dda0dd]Debi[/COLOR][/SIZE][/FONT]

Dear Debi:

That’s the spirit! You know, there are some pretty cool features if you play around with the site. A few partitions would certainly be welcome.

Lee

Jan, I love the way you put that. You said it superbly.

[FONT=Georgia][SIZE=3][COLOR=darkorchid](((((((((((m)))))))))))))!!!!!!!!!!!!!!!!!![/COLOR][/SIZE][/FONT]
[FONT=Georgia][SIZE=3][COLOR=#9932cc]Interpretation of above: Hugs to you Drive-by Mike!!!!!!![/COLOR][/SIZE][/FONT]
[FONT=Georgia][SIZE=3][COLOR=#9932cc][/COLOR][/SIZE][/FONT]
[FONT=Georgia][SIZE=3][COLOR=#9932cc]I noticed Mike was here, too, B! It’s exciting watching people come back![/COLOR][/SIZE][/FONT]

Brandy is planning her outfit for the junior (member) prom. Big shopping hint: make sure gown is color coordinated to tattoo.

Love,
Louise

Everyone will have a “Join Date” of May, 2006… That is kinda neat… Like an invasion or something… 🙂

Aimee

Hey Ever’ body!

Glad to see the site is back and I’m loving this new stuff, woo hoo!

except, i miss my waving smiley 🙁 and :rotflmao: as well!

all in due time i’m sure!

thanks for the email Donna!

😀

Hi everyone, it is very nice to be back. I used to check up daily about this site but in vain. Yesterday I got this and not only glad but gained some energy again to live with ‘Family’

Well said Jan. I do agree with you.

Hope everybody is well during the missing period.

Sandeep

Hello, I’m new to this forum.
I just got back from the Lutheran Hospital in Fort Wayne, Indiana. I left my wife there. Took her yesterday afternoon. Most of the symptoms point to GBS. Today at nine they will try a lumbar puncture to confirm.
You guys got to help me, we never heard of this symdrome.
I’m going to bed, to see if I can get one hour of sleep, talk to the baby sitter, and check again this post.

Dave and I are back, thanks to Brandy for the e-mail. His nick is the same, changed mine up a little tho.

This group has given my family such wonderful support in the days when we were fighting to figure out what in the world my little girl was dealing with. It has helped teachers and caregivers of hers to better understand what she continues to struggle with and to put validity in what she says is going on with her body.

Thank you for getting things back up and running!

Thanks, to the foundation for getting the site up and running. Thanks to all of you for being here. It is great to see things starting again.

Jfitzen (GBS — Going Beyond Survival)

Benjamin…

If this site had not been hacked and all the old posts lost, I am sure that any of the GBSers would have been able to point you to the perfect post to describe their illness for you… As it is, we are trying to put things back in order as best we can and often have to start from scratch… I hope that someone may be able to point you somewhere to look for the answers to all the many questions I know you must have about GBS…

Hope your wife recovers soon…
Aimee
(CIDP diagnosed August 2005)

Benjamin – do not hesitate to ask anyone any questions. I was diagonsed this past July and was very confussed when I finally made it back home….these guys are the best at not only answering questions but reaching out and making you feel part of a family.

Best of Luck
Stephen

Benjamin – I am so sorry your wife is ill. I hope the tests provide you with a firm diagnosis soon. What are your wife’s symptoms? Has the doctor talked to you about IVIg or plasmapheresis treatments if it is determined to be GBS?

We will do our best to give you the information you need – just ask your questions. If it is GBS then it will take time for your wife to recover but the good news is that most people do. There are also many caregivers like yourself here and they will be able to provide you support and offer good advice.

Benjamin, sorry you wife iis ill. I noticed that the link “About GBS” on the GBSFI home page points to the wrong information, CIDP instead of GBS. But here is a link to GBS info on the UK site. [url]www.gbs.org.uk/info/gbs.pdf[/url]

I’m glad that the forum is back running Did it come down with a case of GBS or CIDP LOL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!:p :p :p

[size=”5″]verry Glad To See The Forumn Up And Running ! After All Its Where I Met Ellen And Debi ,,ect… Great Family And Friends!:) [/size] survivor 48

Dear Survivor 48:

It’s great to see you back on board. We lost a lot to the hacker, but so far everyone has been real positive.

Lee

Well said Jan!

Hi everybody. It’s been too long. It’s great to see a bunch of the old regulars back and some newbies too. I hope that everybody has been taking care of themselves.

Luv
Val

Hi Everyone!!!

I am back! Nice to see you all again. I am getting ready for my son to graduate high school! Mike & I are also getting ready to buy a new home this summer…..lots of fun & good things happening here. I hope all of my old pals are doing & feeling great. You all are always in my thoughts & prayers.

Take Care,
Hugs,
Dawn~Lynn

Dear Dawn~Lynn:

Welcome back you reformed mad posting fool. It’s good to know you are back with your GBS family.

Lee