walking without AFOs

    • Anonymous
      March 31, 2009 at 8:50 pm

      Anyone wear AFO then get out of them. My mom said the dr said i could walk without my AFOs. took one off now and using my walker around the house. Just took off the left one. that is the one that bothers me. seems i have a bump in the bottom of my foot that hurts. supposed to get my ankle fused but dr not availabl e until the 21. going to call tomorrow to see if he can get me in sooner. I am kinda of scared to walk in just my shoes. I have had the AFOs on for two years, and i am still numb from gbs/cidp. dr says i will always be numb.

    • Anonymous
      March 31, 2009 at 11:50 pm

      The main question is why do you need the AFOs? Do you have total or partial foot drop? If so, then that is probably why you are wearing them. I have been wearing mine for over 5 years now (couldn’t walk 6 & 7 years ago at all), & have almost total foot drop. The one time I tried walking without them, just from my bedroom to the bathroom, I fell & broke two bones in my feet. Aftet two years out from either GBS or CIDP, it is pretty rare to get any nerve healing back.

    • Anonymous
      April 1, 2009 at 5:58 am

      I walk without them at home because my feet get dependant on them if I use them all the time. I only use them when I go out of the house. After a full day of using AFOs my feet will be quite floppy so I need to take extra care until they start responding again. I fall sometimes but so far no breaks – way too much padding I guess! 😉

    • Anonymous
      April 1, 2009 at 9:37 am

      I had foot drop before and had achilles t3endon release in both feet. My ankles were also weak. Now it seems that i have foot drop and need the ankle fusion in my left foot.