Visit with my mom

Crazy talk, eh? We’ll see how many respond to this one 😀 When you get hit with this “stuff” your whole world changes and you’re trying to find your way around. How I hated it when I thought one word and another word would come out of my mouth 😮 And sometimes, trying to get my thoughts to “line up” properly was such a struggle. Yup ~ when I had the awareness of what was happening, I’d just laugh or cry at myself!

There may be lots of “crazy stuff” that your mom will experience but with time things will improve lots. It will be a new “normal” for mom 🙂 I wish her well.

Jenn, Soo glad to hear the good news about your Mom. The rented tongue talk is common, I do it with my relapses also. It does get better as recovery goes along. I still have brain farts, especially when my mind goes faster then my tongue. I know what I want my mouth to say, but what comes out isn’t always what I wanted to say.:rolleyes: Its worse when type is the same way!:eek: 😀 Your Mom sounds like she is right on track for recovery. Take care.

JennIvy….it could be that the medication they have her on if there is any pain might be doing that too! I was like that when they gave me morphine. It gave me night and day terrors and I told my family to call 911. I wanted to leave the hospital and go to the other hospital up the street. If it continues you might want to bring it to their attention that is not normal for her to be doing that.

I am glad you got to see your Mom! I am sure your visit made her very happy too. She could show off all she can do. I am sure Christmas is going to be a great time for all of your family! Just think how much change there is going to be in all of us!

Jen,

I’m so glad you were able to spend the week with her! I know its hard that you will only see her again at Christmas, but just imagine they difference you may see at Christmas time – full report expected 😉 . I’m sure that the information you got on the forum better helped prepare you for seeing her, it must be awful when people go to see family and dont even know what they are up against.

Hi Jenn,
Glad your mom is doing so well now. It is so weird how all of a sudden it just starts to happen. Thats how it was with Kevin.

My dad was recently in the hospital for 10 days and we thought he all of a sudden got dementia as well. They told us that it is commom for older patients to get this thing called sun downers. They kind of act like they are in dementia, but that it clears up either when they get home or they start to get less confused about where they are. My dad was no where near as serious as your mom and it took him 8 days, he was still a little confused even on the tenth day. Your mom has REALLY been through a confusing ordeal! Besides the normal sun downers type of confusion, many on this site have talked about being confused while in the hospital from their gbs. Good luck and I am so happy for you!!!

Love, Dawn Kevies mom 😮

It’s lack of sleep that makes you a little nutty. When you only sleep in 15 minute to two hour segments in the hospital your brain gets fried and you can’t think straight. I told my neurologist if he wanted me to get better he needed to stop doing the IVIg at night where they wake me up every 30minutes for vitals. He finally did and I finally started getting better. My current neuro says it is common and they call it ICU psychosis. :p

i am so glad to hear your mom is improving and that you got to spend some quality time wither her. You know what is the best though … hearing you sound so positive about all the little things she is achieving. I can understand how easy it would be for family and friends to get bogged down with all the negatives but you really do seem to get strength from the positives however small, and that is really the only way you can face this illness.

As for the crazy talk, i agree with the idea of icu psychosis. I had the most bizarre hallucinations that were so real to me (and to make things worse they had bits of reality woven into them like the names of nurses, doctors etc) which just made them even more real to me. I’m glad that i was on a vent at the time and couldnt talk as i’m sure i would have been sent to the psych ward if i actually said what i was thinking. I h ave read it is due to a combination of factors – the meds you may be on plus the stress of being in icu, lack of sleep, constant monitors going off etc. I dont know if it would continue in a rehab hospital … but rest assured many of us have been through some strange things as a result of GBS and you can just put it down to another thing we dont know how long it will take to improve!