undiagnosed

    • kcoss
      June 6, 2018 at 2:51 pm

      Hello fellow sufferers
      After being diagnosed with residual guillian barre a year ago my neurologist told me yesterday that he has no idea what is wrong with me and he is sending me to the Cleveland Clinic Neuromuscular Center. Not sure if I belong on this forum anymore

    • Karen6542
      June 6, 2018 at 9:47 pm

      I’m glad you have a doctor who fesses up, that he is clueless about whats going on with your health! Too many doctors, in my experiance, would rather change the oil on a 85 Ford Aerostar, than admit they need another medical opinion!
      Please let us know how you make out at the Cleveland Clinic. If you are in New York State, the University of Buffalo also has a great neurolgy department, and maybe they are closer to you. I beleive the GBS/CIDP folks have the contact info. Please let us know how you make out! We all care!

    • kcoss
      June 11, 2018 at 12:47 pm

      Thank you. The Cleveland Clinic is only about an hour away and hopefully they can come up with something. I will keep u posted.