Tremor

I have a residual tremor, but it’s minor. It seems to be worse when I am overexerted. It isn’t a problem except that I have to remember to handle dishes carefully.

I get tremors when I get upset or push my body to hard. The wave of tingling is not so bad now that I now what triggers them.

That’s me. Fine work, especially if I am tired, is maddening.

Same here. It comes and goes. Specially annoying when I type. Also get what I call “the morning shakes” . Wake up with a subtle but generalized tremor. Not bad, as soon as I get up and start moving, it goes away.
Rick

I get a weird motorized general tremor all over sometimes. Especially when I am getting close to needing an infusion. I find it annoying but now that I see others get it I feel better. I was wondering if it was only me or if it was related to my CIDP or what. Now I know that it probably is and I will relax the next time I get it. Rubbing the back of my neck seems to help because I swear the tremor originates from my neck. Feels like my body is standing on a tuning fork. Hands shake too when trying to do fine stuff. I look like an old lady and I am only 49!

My left hand trembles constantly, specially the thumb. It is there all the time, nothing seems to make it better or worse and my neurologist didn’t have any suggestions so I just had to learn to live with it.

Hi,

Nice to hear I’m not the only one going through this issue.I have experienced tremors for the past 2-3 years now and they are only getting worse. It use to be just once in a while now I have tremors daily but they only get worse when my heart rate increases and if I get nervous or exercise. I asked my doctor he said it could be a side affect from me getting better. I have been on IVIG for 7 years now taking a double dose every 4 weeks, the past half year I have been able to extend my IVIGs till 9 weeks between doses. I feel great. I started exercising and lifting weights I see all my muscles coming back and I can finally run again. I ran for the first time in 9 years last summer. I never thought the day would come but I believed and fought. I hope we all will get through this terrible disease. Glad to have this forum for support.

http://en.wikipedia.org/wiki/Nerve_root

Chronic inflammatory demyelinating polyRADICULOneuropathy is my diagnosis.

Meaning; many (perhaps all) of the 33 nerve roots coming out of the spine are inflamed. If you consider what demyelinazation does, many of the diverse symptoms in this thread can be explained. IvIG therapy(and other therapies and drugs) allows remyelization in a non-inflamed environment, thereby allowing action potentials to reach muscles without or with less conduction blockage.

It took 7 years for me to get my CIDP diagnoses. I was told over and over that all my symptoms were diabetes related.
Unfortunately, during that time, I lost partial function in my left foot (drop foot), developed permanent breathing problems and right hand dysfunction.

I also have fasciculations (tremors) that originate from cervical spine nerve root deymelinazation
that manifests in my left deltoids, right trapezoid and sternocleidomastoid muscles. When these muscles are effected by CIDP I have severe left arm weakness, diaphragm related breathing difficulties; leg and gait, and swallowing/chewing problems.

Luckily, with bi-monthly IvIG (200 grams/month) and 50mg of azathioprine 2x/day, I have regained many motor and sensory functions
over much of my body. My tremors have subsided. What was diagnosed as Essential Tremor in my right was also CIDP and ceases
after infusions.

I will never run again, but I feel blessed to have achieved a measure of success with the correct CIDP diagnoses, and drug and IvIG therapy.

And, yes, everything is worse when the IgG wears off, but I’ve discovered that the relapses can be ameliorated by strenuous and disciplined lap-swimming or repetitive lifting of small weighs, while walking.

My initial diagnoses was ALS, so everything and anything is better after that misdiagnoses.

I am still very early in this disease, struggling to get diagnosed. But I already have tremors. In my hands and feet. And an overall vibrating feeling. Without treatment, they are getting worse.

I am glad to hear ivig seem to work for so many of you and hope it keeps working.

I am having problems with tremors also. I have them in my right hand, which is my dominate hand. So hate to have my right hand do that because I eat with that hand. A loaded fork/spoon is not good!!! I have actually stopped eating at times because of this. I don’t want to go out to eat with my family, its so embarrassing!!! I refuse to get to the point of being fed!! My left hand is so weak that holding a fork/spoon is near impossible. Stress brings the tremors out in a flash. Oh the joys of CIDP!!!! 😕

I get a weird motorized general tremor all over sometimes. Especially when I am getting close to needing an infusion. I find it annoying but now that I see others get it I feel better. I was wondering if it was only me or if it was related to my CIDP or what. Now I know that it probably is and I will relax the next time I get it. Rubbing the back of my neck seems to help because I swear the tremor originates from my neck. Feels like my body is standing on a tuning fork. Hands shake too when trying to do fine stuff. I look like an old lady and I am only 49!

I’m not happy to hear that anyone else has these full body tremors, but it does make me feel less alone that someone else has them. Thanks to all who contributed to this thread.