Stopping IVIG

    • January 8, 2013 at 11:51 pm

      Just thought I would let you all know that in 6 months Emily will be going off of IVIG.

      I am going to take her for an MRI (to make sure she doesn’t have any inflammation on her spine) and we will see a neuro at University of MI but it looks like we are hopefully coming to the end of our journey.


    • January 9, 2013 at 4:40 am

      that is great news Kelly, it’s been a long  journey for you both. I hope it goes good for her and she can remain treatment free 🙂


    • Anonymous
      January 9, 2013 at 11:02 am

      good to hear that, Emilys, how long time since the first time your doughter 1st ivig?

      hope she will be better soon.

    • Anonymous
      January 13, 2013 at 11:38 pm

      Oh beautiful beautiful news.  Let us know how this goes for Emily. I know she’s the light of your life.

      I went down from 6 to 4 infusions a month myself and trying to adjust to it. I so hope I can go down to 3 month within the next 2 years.