Say a prayer
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AnonymousJanuary 27, 2008 at 7:52 am
I am asking for prayers again. Tomorrow I am having a double mastectectomy and lymphnodectomy for my breast cancer. I am somewhat apprehensive about my neuro status. I have come so far and don’t want to go backwards again. Please pray that all will go as planned. Thanks in advance. You guys are the best support! ๐
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AnonymousJanuary 27, 2008 at 2:08 pm
I had my Mast[1] and Lymph.. done over 18 months ago, and I have to say that I am glad the evil is OUT! Ironically the tumor was what the surgeon called ‘tame’ and well-behaved [not in my mind!] I attribute that to being on the IVIG in a way. There was a very small case study done on PN patients in Israel who later developed BC and it seems the IVIG helped tame the cancer. The IVIG was given for the PN. I don’t know if it’s applicable, but it is comforting.
Prepare for surgery by gathering everything non-refrigeratable next to your favorite chair and plan on parking yourself there for quite a while. Showers will be out for the first few days, but after that it will be really a treat! Drains are the worst part. Or were for me. Be sure you understand the how-to-do’s of it all. Metamucil and citrucel will be good friends for the first few days after surgery, as the pain pills do their side-effects job nicely. Have/get little half or quarter pillows to keep your arms off your surgery sites. And, hard as it seems, MOVE! Keeping your circulation going as you move keeps the swellings down at surgery sites and those pesky ankles. An info site that helped me lots was ‘breast cancer . org’
Going into surgery, be SURE to tell the anathesiologist that you have an AUTOIMMUNE DISEASE, not unlike MS. Somehow that clicks and you can avoid some of the nastier side effects from some anathesias…MS’ers have learned this lesson well and have been vocal in changing how we are treated as well. When I had my surgeries, I made it clear that I wouldn’t do it if they didn’t understand my medical issues. It Worked!
I wore pink fuzzy chenille socks that a friend gave me to keep my feet warm. I was allowed to wear them into surgery and all the nurses wanted to pet these soft socks – after that…I was out. But the petting of the socks I’ll never forget! At least my feet didn’t turn blue?
Truly – My heart and mind are with you. For me, cancer has been easy compared to CIDP! Many soft warm and heartfelt hugs. -
Jan,
Well wishes and prayers are sent your way. I wish you a speedy recovery.
Dawn Kevies mom -
AnonymousJanuary 27, 2008 at 9:57 pm
Again this gang comes thru will so many nice words and ways to say Get Well and Good Luck with your surgery and recovery! You are on our prayer list!
[B]Hang In There[/B]
Hello, my friend; You’re on my mind,
Because you’re somehow ailing,
But your response to any challenge
Has always been unfailing.So I’m confident you’ll win again;
Hang in there, and you’ll see;
You’ll be back on top in no time,
Tackling life courageously.By Joanna Fuchs [url]www.poemsource.com[/url]
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AnonymousJanuary 29, 2008 at 3:05 am
We’ve been PM’ing each other from last year.
I want you to know I’ll be thinking of you and wishing you peaceful recovery. ๐ Take your time and ask for help from family/friends/neighbors.
Surround yourself with good energy and positive warm fuzzies. :p
Let us know how you’re doing.
Good luck””” -
AnonymousJanuary 30, 2008 at 7:38 pm
Well my surgery is over and it went well. I didn’t have any issues with my CIDP. I did stay in the hospital one extrs night for better pain control. I stayed on the IV medication longer. I am releived that it is over. The next step for me is radiation when I heal.
I want to thank you all for your thoughts and prayers. I do believe in their postitive influence. I feel blessed to have found all the support from this group.
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How positive you sound in your post! I will continue praying for a speedy recovery.
Dawn Kevies mom -
AnonymousFebruary 3, 2008 at 5:07 pm
that all the biopsies come back for the good stuff and if you need chemo or rads that it’s at the Minimum.
What I did when I got home, and my DH went back to work, was invite some friends over for lunch if they could make it…Ordered carryout. and spent some cheerful time with friends…I slept for about 14 hours afterwards, but I had the comfort from my friends’ company to keep me warm.
Thinking good things very HARD regarding what the biopsies outcomes say!
You have already done the trip of walking on the ‘hot coals’ with CIDP, this is easier, except for the wait. Truly. -
AnonymousApril 1, 2008 at 1:14 pm
I haven’t been on the forum much lately. I have been busy but I don’t know doing what!!! :confused: I thought I would update you all on my progress. I am in the middle of radiation now. I have done 11 of my 25 treatments and so far so good. I have a little redness but no blisters or burns.
I am living proof that steroids are scary drugs as I found out that I have cataracts on both eyes. This is a side effect of the high dose steroids that I was on for months. I am having surgery to correct one next week. Hopefully if all goes well I will get rid of the glasses I have now. That’s a positive out of the whole thing I guess! :rolleyes:
My CIDP remains under control. I threw away my cane last week. I am now walking independently and I must say it does feel good. I still get fatigued very easily and can’t walk long distances or my ankles and feet hurt but I am not complaining as I was reminiscing and I figured out that one year ago I was still in a wheelchair. I have come a long way in one year. Well that is my update for now.
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