contracted GBS in 2000 and never stopped having residuals.
About 3 years ago my left leg started to have more and more pain, feeling swollen, 3/4 numb and very sensitive (like wearing a sox on it with crawling bugs feeling, and now I am limping because it is getting stiff and hard to walk with my canes. The Nero doctor is no help. Now my pain doctor needs to take away my pain meds,(because of the government) which is the only way that I can walk or get out of bed.This is too much–What can I do? What is happening? All I ever hear is that only 5% have these problems, the rest of people are perfectly OK. I will be OK and no help given. Judy
What treatments have you had? IVIg, Plasma Exchange (PE), and corticosteroids (Prednisone, etc.) are the typical treatments. Some people do not respond to all treatments… I never responded to IVIg, but PE, Prednisone, and Rituximab worked for me.
Have had gbs for past 7 months. I got off of oxycodone via Kratom and lyrica. Kratom was a god send for my pain. I take 150 mil. of lyrica daily and 6 to 8 grams of kratom when needed. Shop around for the best kratom source. The pain was the worse part of this disease. Good luck.