residuals for over 19 years constantly. Left leg is getting worse

This topic contains 2 replies, has 3 voices, and was last updated by  jon swanson 1 week, 5 days ago.

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • #116421

    Judy Paluch
    Participant

    contracted GBS in 2000 and never stopped having residuals.
    About 3 years ago my left leg started to have more and more pain, feeling swollen, 3/4 numb and very sensitive (like wearing a sox on it with crawling bugs feeling, and now I am limping because it is getting stiff and hard to walk with my canes. The Nero doctor is no help. Now my pain doctor needs to take away my pain meds,(because of the government) which is the only way that I can walk or get out of bed.This is too much–What can I do? What is happening? All I ever hear is that only 5% have these problems, the rest of people are perfectly OK. I will be OK and no help given. Judy

    #116423

    Jim-LA
    Participant

    What treatments have you had? IVIg, Plasma Exchange (PE), and corticosteroids (Prednisone, etc.) are the typical treatments. Some people do not respond to all treatments… I never responded to IVIg, but PE, Prednisone, and Rituximab worked for me.

    #116444

    jon swanson
    Participant

    Have had gbs for past 7 months. I got off of oxycodone via Kratom and lyrica. Kratom was a god send for my pain. I take 150 mil. of lyrica daily and 6 to 8 grams of kratom when needed. Shop around for the best kratom source. The pain was the worse part of this disease. Good luck.

Viewing 3 posts - 1 through 3 (of 3 total)

You must be logged in to reply to this topic.