Remission Experience

    • February 25, 2023 at 3:17 pm

      Hi, I’m wondering if anyone has experience with remission and muscular issues? Diagnosed w CIDP,  I was resistant to all standard treatments, a slow year and 1/2 long decline to a walker, very limited  use of my hands, w constant nerve pain, all limbs. After about a year and 1/2, my third hospitalization was for PE (plasma exchange) and then started on Rituxan. 5 months later I was walking and using my hands. This April 2023, I will have been in remission for 2 years.

      I am beyond grateful to be walking, at the same time, it seems that’s what I got-period. The pain has remained severe, fatigue is brutal and the last 4 months, my muscular system feels like it’s gone haywire. Began with palellofemoral syndrome in one knee, 3 months later the other knee and a month ago, my elbow. (Tennis elbow, really??! I wish) To top it off, new diagnosis of sleep apnea. Anybody out there w similar remission experiences?  Thanks!!