Questions about Diagnosis

This topic contains 1 reply, has 2 voices, and was last updated by  Mark Robichek 6 months, 2 weeks ago.

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    Emily Howard

    I’m looking into CIDP and it seems to fit me. I’m going to bring it up with my docotr. I was wondering, does your nerve test your emg have to show something for you to be diagnosed with CIDP or can it be considered normal?


    Mark Robichek

    Hi, Emily.

    I’m happy to share with you my personal experience as well as what I’ve learned. First off, about 40% of people told that they have CIDP are probably misdiagnosed. There are several factors which–when combined–lead to a proper CIDP diagnosis. Those include tingling, weakness and/or numbness in the limbs as well as unusual protein levels (as from a spinal tap), difficulty walking, balance issues, and finally subnormal readings on an EMG/nerve conduction test.

    In my case, my EMG test was considered “subnormal” by one doctor and “normal” by another. It turns out that I was receiving IVIG for an immune deficiency, and those infusions were normalizing my EMG test results. When I waited a few weeks before another EMG test, it suddenly became conclusive that I had CIDP.

    As you can see, it’s quite complicated, so I’d recommend that you see a genuine expert in your area to make sure that you really get diagnosed properly.

    Good luck!

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