Questions about Diagnosis

    • January 30, 2019 at 3:48 pm

      I’m looking into CIDP and it seems to fit me. I’m going to bring it up with my docotr. I was wondering, does your nerve test your emg have to show something for you to be diagnosed with CIDP or can it be considered normal?

    • February 1, 2019 at 6:17 pm

      Hi, Emily.

      I’m happy to share with you my personal experience as well as what I’ve learned. First off, about 40% of people told that they have CIDP are probably misdiagnosed. There are several factors which–when combined–lead to a proper CIDP diagnosis. Those include tingling, weakness and/or numbness in the limbs as well as unusual protein levels (as from a spinal tap), difficulty walking, balance issues, and finally subnormal readings on an EMG/nerve conduction test.

      In my case, my EMG test was considered “subnormal” by one doctor and “normal” by another. It turns out that I was receiving IVIG for an immune deficiency, and those infusions were normalizing my EMG test results. When I waited a few weeks before another EMG test, it suddenly became conclusive that I had CIDP.

      As you can see, it’s quite complicated, so I’d recommend that you see a genuine expert in your area to make sure that you really get diagnosed properly.

      Good luck!