Possible CIDP

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    • #117542
      Keith Metzger
      Participant

      Hello everyone,

      I’m currently in the diagnosis phase of figuring out why I’m having some muscular issues for about 1 year. My symptoms include muscle pain (at rest) and increased pain upon usage, fatigue, muscle stiffness and twitching, sporadic tingling in hands and feet. Objects are becoming more difficult to lift and feeling heavier. I have been through the extensive blood work up by my PCP which revealed no concern.

      Neurologist performed 2 EMGs in 12 months – no pathology. Lumbar Puncture revealed elevated protein in CSF (74) and other blood work proved positive for Contactin-1. Currently going back for additional/follow-up blood work today. Prior to this beginning I was a active 58 year old male.

      If any of you have experienced symptom patterns this, I’d be interested in your suggestive direction/course of action to take. If this is not the type of forum for this type of post, please let me know.

      Thank you very much!

      K

    • #117544
      Jim-LA
      Moderator

      If you have had this for a year it isn’t likely to be GBS or RGBS. The elevated protein would seem to indicate CIDP or one of its variants. An NCV test (which might have been done with your EMG?) can help identify certain neurological conditions. Please see the following thread for more info about an NCV study:

      Alpha lipoic Acid

      Some other informative diagnostic and treatment options are listed in the publications below:
      https://30g7el1b4b1n28kgpr414nuu-wpengine.netdna-ssl.com/wp-content/uploads/2012/01/Treatment-of-CIDP-by-Robertson-Donofrio1.pdf
      https://30g7el1b4b1n28kgpr414nuu-wpengine.netdna-ssl.com/wp-content/uploads/2013/02/AcuteCareICU13.pdf

      Good luck getting to the bottom of your condition.

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