Please help me locate a neurologist
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January 4, 2020 at 4:50 am
familiar with CIDP for a 25 year old female diagnosed in 2014. Had amazing care under a great neurologist in Maui, Hawaii but has now moved to Asheville, North Carolina! Mom (still on Maui) seriously starting to panic. Mahalo in advance.
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January 4, 2020 at 7:07 am
I know one a couple hours away (Oak Ridge, TN). Apparently neurologists are in short supply so hard to get into around here so don’t be surprised if there’s a long wait. I only got in because my PCP pushed hard to get me in earlier. I’m glad he did so I could be treated before too much damage was done.
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February 7, 2021 at 8:12 am
While this is an older thread I wanted to share how I found my neurologist in Charlotte. I asked my in home infusion care provider, Option Care, if they had anybody they would recommend. They hooked me up with a younger doctor who I feel is very good. She suffers from an autoimmune condition herself, and has a more hands on understanding of exactly the kinds of pain that her patients describe. I don’t want to give her name on the open forum, but I’d happily share in a private message with forum staff. She’s not a Center of Excellence care provider, but so far in she’s maintained my care as it was before I moved from Chicago to Charlotte, and was receptive to moving me to SCIG when I started having issues with vein access for the IV infusion.
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August 15, 2021 at 11:19 am
Late Response: I live in Brevard NC, and use Dr James Patton at Asheville Neurology He seems knowledgeable and has retained me on SubQ IG. There is also a good GBS CIDP group in the region.
next Chapter meeting
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