New here, many questions

This is my first post, will try to keep a very long and complicated journey, as short as possible. 14 years ago, after a few unexplainable rib fractures, I was diagnosed with a severe osteoporosis. Very unusual, since I was a 39y/o male. i started receiving treatment for the osteoporosis but eventually developed fatigue, weakness, was always tired and in need of a lot of sleep. Things gradually got worse to the point that eating made me tired. After a viral infection in 2002 I developed, for the first time, neuromuscular symptoms. My legs became weak, my calves painful, walking became difficult, I had tremors in my hands, etc. After visiting several renown neuromuscular centers, as well as many specialists, my diagnosis remained a mystery. All labs were normal, two muscle biopsies were neg, as well as CTs, MRIs, etc. Eventually, by late 2003 ( unable to walk, barely able to stay awake, having lost 60 lbs, had a severe arrythmia, etc.) I visited a geneticist who in less than 30 min diagnosed a severe Carnitine Deficiency. I was hospitalized for IV Carnitine followed with high oral doses. After 4 months, for the first time in years, I was fully awake, quite active, gaining weight and osteoporosis improving. I was able to walk again. However, leg weakness, fasiculattions, numb feet, tremors, clumsy hands persisted for another year or so. Eventually went back to work ( on my life saving Carnitine) and back to a normal life, which included weight lifting in a gym 5 days a week. During those years I grew afraid of colds which would bring back malaise, fasiculations and some weakness on my legs. But never for more than a few weeks. Also when I traveled and walked for several hours a day (my job is quite sedentary) I would get some pain in my upper calves and my legs ( always under my knees) seemed to buckle. On other trips, however, I was able to walk for hours (10-12) with no symptoms whatsoever. Trough all these years the Internist, Genetisist and Neurologist attributed all symptoms to the Carnitine deficiency, which somehow made no sense to me, specially since I had read hundreds of hours about this genetic disease. The post viral onset suggested an immunologic etiology, as well as the on and offs.
On March 2012 I got the flu. Since then things went, once again downhill, progressing slowly. Leg weakness, pain in upper calves, numbness in my feet, eventually progressing to my hands and arms. Since I never developed the fatigue, weight loss, lethargy ( all characteristic of Carnitine deficiency) I decided, against all physician’s opinions, that my neuromuscular symptoms had nothing to do with my genetic disorder, and that most probably had an autuinmune cause. That’s when one night, 6 weeks ago, I entered into my browser “polineuropathy and autoimmune”. To say the least, I was in shock as I read about CIPD. Two days after, I was in my Neuros office with the info, my theory that I had two different, coexisting diseases. I insisted, almost begged, for an EMG. Results showed slow conduction in both arms and legs, F wave abnormality and conduction block typical of a “moderate” CIPD. Reflexes were very diminished ( or absent) and eventual CSF testing showed high protein. I ended my first 5 day IVIg treatment two days ago.
I conclude that concurrently with my Carnitine deficiency, I had an episode of CIDP back in 2002 – 03. I went into spontaneous remission, and eventually Im in a relapse since march 2012 after the flu.
All of the above (sorry folks!!) to say that I have a mixed and complicated clinical picture and thus confusing symptoms which lead me to some questions:
Anyone else with tinnitus (ringing ears)?? Makes me crazy.
My tremor is at times generalized, whole body. Some days I wake up shaking in bed, anyone else?
My memory loss is at times scary ( forget names, do stupid things, never remember if I did or didn’t do things) but sure it’s not Alsheimers or Dementia because my job is highly skilled and complicated and can perform perfectly. Anyone else?
I have frequent headaches. They seem to originate in my neck muscles which always seem to be stiff. Is this seen in CIDP?
On bad days or “stages” I feel all my muscles stiff to the point that everything I touch seems to also be in a tremor ( crazy?) anyone else?
Never had double vision, but its kind of blurry. At night lights are stars, not dots. Everything under my knees seems to shake since I must be having a fasiculation every second. Again, anyone else?
I am very grateful to all who took their time to read this unusually long post. Any advice/answers will be a blessing.
Wish you all the best
Rick