My update

Hello everyone.

I havent posted much news lately. I dont want to seem like I’m giving daily accounts.

I do have good news to report, however. I had my ivig, two doses over two days, 11 days ago. The first two days after, I had strength in my legs like I havent in a long time. For about 7 days, I was able to walk up my stairs at home without pulling myself up using the handrail. In fact, I wasnt using the rail at all.

I am back to holding the rail, mostly for balance. I think I’m fighting a bug and being back to work after two weeks off, I’m a bit tired. I”m sure this is part of it.

I use the cane when I go out only b/c I’m scared not to. I wonder if I could go without it. hmm.
I’d better wait…I’m not THAT good …..YET!
I went to my pain dr yesterday. I’ve said before, he’s an excellent dr and would love to find a cure for me . He does the grip strength test each time and yesterday was my strongest yet. I was double what I was a month ago. Indeed I’m still in the “poor” category…but there’s improvement.

He invited me to attend a workshop with him at our Med Center here later this month. It’s given by a professor in nuero science. I was shocked to see that there was something like that locally. It may be just for residents, drs, etc…he’s going to find out and let me know. He said he is going and I heard him cancel his afternoon appts for that day with the desk lady. I am his only CIDP patient. I was pleased that he asked me to go. He seems to have been doing alot of research regarding CIDP. When he first asked me to go, he said, “how much do you know about CIDP?” and I said, “alot, but I need to learn more”…and he said, “me, too”. I wish you all had a dr like him. He is super.

Overall, I feel pretty good. Getting ready to face some stressors with selling our old house. We are going to finish the final clean up work starting this weekend and get it on the market. (not the house we just moved into recently) It’s a nice house and SHOULD sell reasonably quick if we price it right. Scares me b/c the market is so crummy.
I have to be feeling well for all of this ! Hubby needs me.

I’m planning a trip to Myrtle Beach in a few mos with just my husband and then planning another trip a few mos after that for all of us-happy to have something to look forward to.

Oh…and how could I forget…I havent had the hand-on -fire burning in the middle of the night for many nights now ! My prayers were answered.

I’m going to watch my strength and see how I do. If I get alot weaker in the next week or so, I’m going to tell the neuro that I’d like to try IVIG every three weeks instead of four. No more slacking here. I see how it helped me this time…for the first time actually…I saw the difference.

stay well my friends and have a great weekend-
😉
well wishes,
Stacey