Looking For Emily!!!

    • Anonymous
      January 15, 2010 at 2:30 pm

      Everyone keeps telling me that my sister’s situation sounds a lot like “Emily’s”. Who is this mysterious Emily? and where can I find her??!! :confused:
      Sandy’s sister

    • Anonymous
      January 15, 2010 at 4:06 pm

      I’m not here often enough to be certain but why don’t you look up under member’s names for “Emily”…

      good luck…

    • Anonymous
      January 16, 2010 at 1:23 am

      Emily is one of the young ones that unfortunately suffers with CIDP.

      Her mom Kelly can give you much more information but this is the info that is posted under each of Kelly’s posts. She goes by Emilys mom.

      Emily, 8 years old
      Dx’d at 4 with CIDP w/cranial nerve involvement & right eye paralysis. Went 20 months relapse free with 20 grams of IVIG. Tried to wean her down from the IVIG from every 3 weeks to 1 month & started to go downhill. We caught it in time before any damage was done. Currently getting 20 grams of IVIG every 3 weeks & holding strong! We’re not giving up hope on reaching remission one day!

      I hope that helps
      Rhonda from Canada

    • Anonymous
      January 16, 2010 at 10:46 am

      The emily you are looking for isn’t a child. she is in her 20’s now and her log in name is Emily. look in the members list and find her and then email her. she had cytoxan after being completely paralyzed with CIDP and she is doing really good now. you can also read all of her threads adn responses if you find her on the members list and click on that icon.

    • Anonymous
      January 16, 2010 at 12:38 pm


      I didn’t realize there was another Emily. Sorry to confuse you.

      Rhonda from Canada

    • Anonymous
      January 17, 2010 at 12:10 pm

      I emailed you Emily’s full name, her current phone number & email address. I haven’t talked to her since last summer, but I hope nothing has changed…

    • Anonymous
      January 17, 2010 at 4:24 pm

      Thanks to everyone for your info. Rhonda, I knew it wasn’t the child because i had heard that she was in college. No problem 😉

      Pam, thanks for you info. I will contact her 🙂