Looking For Emily!!!

I’m not here often enough to be certain but why don’t you look up under member’s names for “Emily”…

good luck…

Emily is one of the young ones that unfortunately suffers with CIDP.

Her mom Kelly can give you much more information but this is the info that is posted under each of Kelly’s posts. She goes by Emilys mom.

Emily, 8 years old
Dx’d at 4 with CIDP w/cranial nerve involvement & right eye paralysis. Went 20 months relapse free with 20 grams of IVIG. Tried to wean her down from the IVIG from every 3 weeks to 1 month & started to go downhill. We caught it in time before any damage was done. Currently getting 20 grams of IVIG every 3 weeks & holding strong! We’re not giving up hope on reaching remission one day!

I hope that helps
Rhonda from Canada

The emily you are looking for isn’t a child. she is in her 20’s now and her log in name is Emily. look in the members list and find her and then email her. she had cytoxan after being completely paralyzed with CIDP and she is doing really good now. you can also read all of her threads adn responses if you find her on the members list and click on that icon.

Sorry,

I didn’t realize there was another Emily. Sorry to confuse you.

Rhonda from Canada

I emailed you Emily’s full name, her current phone number & email address. I haven’t talked to her since last summer, but I hope nothing has changed…
Pam