Here’s a link to an article in today’s Washington Post about the shortage, which is becoming dire. If you can’t get the story to open, I can copy and paste it here.
This is pretty incredible, and very alarming. I was fortunate to get my 5-day IVIG treatment for AIDP just over a month ago.
I actually had a call from a nurse to come out to do it, then found out later she assumed the Privigen had already been sent out to me. That was a couple weeks ago. I’m still waiting.
In the meantime, I saw my neurologist and she cut my Prednisone down to 30mg/day. At this point, I don’t feel like I’m getting better, just not getting worse.
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