Just checking in

    • Anonymous
      May 27, 2008 at 1:22 pm

      Hi all, I am proposing a new ongoing thread we can use if we just want to check in even if we don’t have a Daily Delight, a bad day or a joke to tell. We can check-in just to say hi or chat about what’s going on in our lives. I got this idea from another forum for Honda Element owners and I liked it.

      What do you think?

      I will start: since we now have a new wheelchair accessible car, a converted Honda Element, we’ve been planning for a long road trip east later this summer. My MIL was going to come along. She’s visiting right now from Oklahoma and after riding on the back seat for the past few days, she decided it would be too rugged for her. I had to agree and I was quite relieved, to be honest.:D Instead, she will be taking a plane and join us for a few days on Labor Day in Connecticut.

      This change means we will drive straight east from here past Chicago making a stop in Toledo to visit Cheryl (Angel2ndClass). From there to Pennsylvania to visit Stephan, my oldest son, and then on to Connecticut where Michael, Carol’s oldest lives. On the way back we will make a site trip to Toronto to spend some time with Andrew. Our next stop will be in Battle Creek, Michigan to see my daughter Angela and her family. Our last stop before returning home will be in Grove, Oklahoma to spend some time with my MIL.

      It will be quite a trip but should be fun. My only concern is being able to charge my power chair during the trip. We do have a power inverter but the cigarette lighter outlet does not support the high powerdrain of the charger.

      Okay, enough chatting. I’m doing okay still waiting for some more improvement from my Rituxan infusions. At least things don’t seem to be going downhill.

    • Anonymous
      May 27, 2008 at 2:02 pm

      I think this is a great idea! I sort of come and go on this forum because I don’t always feel like I have something to add but this will be a fun way for to stay in touch. I had a great Memorial Day weekend even though it felt more like late March here in Utah than late May. I went swimming at an indoor pool with my neice and nephew and my 2 year old daughter. We just had a blast!

    • Anonymous
      May 27, 2008 at 3:38 pm

      Hi Norb,
      Read a lot of your post and was happy for you when you got your wheelchair accessible car. What a long trip you have planned, it sounds exciting.
      Enjoy your trip.

    • Anonymous
      May 27, 2008 at 4:19 pm


      Let me know the details of your trip. I would love to meet you guys also. I could come to Toledo if needed.


    • Anonymous
      May 27, 2008 at 4:21 pm

      Norb, Great Idea for a thread!:) I can’t wait to meet you and Carol:D

    • Anonymous
      May 27, 2008 at 10:07 pm

      I’m excited about meeting you guys too.

      I just received a copy of the May issue of the German GBS Journal “GBS Aktuell”. It included my translation of Carol’s summary of Dr. Jeffrey Raff’s recent talk in Denver on GBS residuals which I posted earlier here. Since I speak a little bit of German;) I thought our friends in Germany would benefit from a translation. I was happy to see that they actually published it.

    • Anonymous
      May 27, 2008 at 10:23 pm

      Great news about your trip and good news about Carol’s article.

      So you must really really be happy ๐Ÿ™‚


    • Anonymous
      May 28, 2008 at 12:42 am

      Congratulations to you and Carol on being published! Just a thought ~ maybe next year you could make a road trip west on the Oregon Trail and visit “us” North Westerners ๐Ÿ˜€

    • Anonymous
      May 28, 2008 at 12:51 pm

      [QUOTE=espersen4]I think this is a great idea! I sort of come and go on this forum because I don’t always feel like I have something to add but this will be a fun way for to stay in touch. [/QUOTE]
      hi, this is exactly why I started this thread, not to be “Norb’s thread” but everybodies. I hope it catches on.

    • Anonymous
      May 28, 2008 at 1:54 pm

      Just checking in,

      I’m going to the first local meeting of the Dayton, Ohio Chapter of the GBS-CIDP Foundation Support Group this Saturday.
      Looking forward to it.


    • Anonymous
      May 28, 2008 at 9:09 pm

      I was wondering about coming to the Dayton meeting even though I likely could not be a permanent member. I only live about two hours away (west on I-70 in Indiana) and I would love to meet someone else with GBS/CIDP and get/give some hugs and share some stories. What do you all think? Would that be okay to do?
      WithHope for Cure of these diseases

    • Anonymous
      May 28, 2008 at 10:05 pm


      I sent you a pm. I think it would be great if you came.
      I sent you e-mail address and phone# of whom to contact.
      Hope to meet you


    • Anonymous
      May 29, 2008 at 7:39 am

      Norb, I am glad to hear of your future travels. How fun that will be. I am looking forward to a disney world trip sometime next year.

      I have plenty to add to a thread like this b/c my life is full of all kinds of stuff. ha.

      We got moved over the weekend…..never again ! We have moved into a beautiful home that we have worked on for nearly two years. The entire house was gutted…all new carpet, all rooms painted, new roof, new windows, new paint, landscaping…I am very proud. It is nearly 3,000 sq feet finished. What was I thinking ? The thing is huge….but hubby has promised to help me clean it and take care of it.

      Its in a very good neighborhood with one of the best school districts for Connor.

      We moved Friday night and Saturday and I could not get up on Sunday. For the first time in my own CIDP history, the fatigue literally and truly kicked my back side.
      Now , too sell our old house….but, that shouldnt be a problem…HOPEFULLY.

      …wishing I was a stay home mom.


    • Anonymous
      May 29, 2008 at 11:39 am

      Moving, yuk ๐Ÿ˜ฎ I hope we never have to move again. But our daughter keeps bugging us. After she finishes her fourth year of residency next year in Denver she wants us to follow her to Seattle to live with them. I’m pretty torn about this.

      That was pretty cool yesterday. I was sitting in our new Honda Element in front of a grocery store waiting for Carol to come back. A woman who was parked next to us came over to ask me what kind of car this was. Fort Collins doesn’t seem to be a very E-friendly town even with Colorado State University here and 20 some thousand students. Since I started looking for E’s I am averaging only one a day.

      We finally got all the papers together and are ready to submit our application for state and city tax refunds on what they charged us for the E modifications which cost us about $26,000. The tax codes we found clearly state that handicap modifications prescribed by a physician should be exempt from taxing. If the application gets rejected we will start using bigger guns by contacting the TV stations.

    • Anonymous
      May 29, 2008 at 1:32 pm

      I have never seen that kind of car around here but that doesnt mean they arent here. I drive to work on autopilot and one time didnt even notice a gas station being torn down on one of the corners I pass. I have blonde hair…but, I am NATURALLY spacey. ๐Ÿ™‚

      they are calling for strong storms here tonite with possible 2 to 4 inches of rain. Omaha hasnt been hit with a big tornado since 1975 and I was too little to remember…I hope to never witness such a thing.
      I love the thunderstorms but not tornado warnings.

    • Anonymous
      May 29, 2008 at 6:18 pm

      Well I went to see my neuro today and am proud to announce that I will be stopping my mnedication! My husband and I want to try and have another baby; so 2 months from now we’ll be having some fun! ๐Ÿ˜€ I am so excited as this also means that I will be able to be a stay at home mom as soon as #2 comes along! I’ll let you all know if something happens; I am also hoping that my symptoms go away with this pregnancy as they did with my first. Pray for my success! I love you all!

    • Anonymous
      May 29, 2008 at 6:52 pm

      I’m crossing my fingers for you Christie!;)
      I’m planning a family brunch for my Dad. Today my parents were telling my Dad’s pt about our family’s radition of brunch get togethers when I was younger. My Dad’s face just lit up when he was talking, which triggered a lightbulb moment in my head. So I asked him if he would like to do a family brunch for Father’s Day this year, and he had the biggest smile on his face—soooo that is what is going to happen. Now to get all my brothers and sister and all the other family members together in a few weeks:eek: ๐Ÿ˜€

    • Anonymous
      May 30, 2008 at 7:50 pm

      It’s been a long week of training in the Maritimes, but I had an awesome class which makes all the difference. I am going to spend the night in Moncton then head over to Nova Scotia where I will be doing a training next week. I will finally be able to fly home next Friday so am already looking forward to that.

      I am hoping my garden will be up and I want to get some flowers in so that it brightens up the yard. I will bet the grass will be a foot tall by the time I get home so I will get the chance to soak up some rays! I love cutting the grass.

      Take care everyone.:p

    • Anonymous
      May 31, 2008 at 12:26 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Norb,
      Roll out the cannons if that’s what it takes!:D
      So glad to hear that your life is full, and you sound so upbeat.
      About Seattle, milder winters but fewer sunny days, hmmmm..
      Just chuckling over the robin defending his territory, attacking his rival (reflection in the car’s rear view mirror) Gonna have to go out and tie a bag over it so he can save his energy, not to mention my paint job:)
      See Ya

    • Anonymous
      May 31, 2008 at 1:32 pm

      We went to Boulder yesterday with my MIL to count how many ugly Honda Elements we would see and have some fun. I counted eight E’s all different colors although we spent most of our time in the pedestrian zone on Pearl Street. Fun place to visit. Lots of fascinating or “colorful” people, outdoor cafes and pubs. I am that old geezer with beard and straw hat in a power chair plugged into an outlet by a tree, oogling (sp?) the sexy girls while “borrowing” Boulder 110 Volt power. Unfortunately, my 84 year old MIL pooped out too soon and we went back after 2 hours.

      The mountains on the way there were beautiful. Twin Peaks and the rest of the back range are still snow covered. You can’t see that from where we live or from Boulder because both cities out too close to the foothills.

      Oh well, it’s back to the E loneliness of Fort Collins. When we came back last night we saw the one obligatory daily E.

    • Anonymous
      June 1, 2008 at 1:23 pm

      PACKING PACKING PACKING for my move to Florida. I do it in spurts, then rest, which is what my fatigue level needs. I sure do hope I remember everything that has to be canceled or have address changed. I saw a rat outside in the yard onetime and because he was running back and forth, I named him Amuck, that’s how I feel now.

    • Anonymous
      June 1, 2008 at 3:42 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Lizzie,
      packing and rats, pack rat, get it?:p Will you get to have a pet at your new place, i mean besides the local wildlife?

      Say Norb, you look pretty chill there, did you think about patting a few of those girls as they walked by, you could always blame it on involuntary reflex!
      How clever you are to wear that hat to cover up the mouse ears from the Rituximab:D

      I’m back to work, yay [IMG]http://i253.photobucket.com/albums/hh47/oldbat2ccats/Flying-Pig.gif[/IMG]
      Long trips (newark to brasil) but am so happy to be back i ain’t complainin’ Come fly with me,

    • Anonymous
      June 2, 2008 at 12:33 pm

      Went to the First Chapter Meeting of GBS/CIDP in the Dayton, Ohio area.

      It was very informative with the video on recovery and each person speaking of their own personal story. They spoke of their symptons when they came down with GBS/CIDP, their diagnosis, treatment or (mis – treatment) and healing.
      It showed how we are all so different in the way we come down with these syndromes and how our healing is so different. It was nice to meet the faces behind the stories.
      Caregivers were spoken of with the greatest appreciation for all they do.
      It helped my husband to remember that because I looked well on the outside I was not well on the inside. People can not see the tingling and numbness on the inside of my body or feel the fatigue that gets a grip on us at the most unlikely time, not to mention those aches and pains that show up out of nowhere.
      If you can go to a chapter meeting in your area it is my hope that you come away with a great feeling and repect for the new people you meet and the information you get.
      Bill Werling, his Wife and Daughter were wonderful and gracious host.

      Thank You


    • Anonymous
      June 2, 2008 at 2:56 pm


      Esecially lately…I cant count how many times I want to say, ” I really dont feel good…I MEAN I DONT feel good”. I look fine…I’m walking worse and dont know if anyone notices…but, I just wish I had a pamphlet or something to give to others to help them just minutely understand…I LOOK fine…but on the inside my body is doing all kinds of tricks that nobody would laugh at.
      My legs are tired and I can barely walk…but, I LOOK fine. I”m so tired I could sleep at stoplights…but, I LOOK fine.
      Someday, right ?
      I’m hoping my husband and I can make it to Chicago.

      Liz, I feel your pain in the packing. Try to rest as much as you can in between boxes. Moving stinks !!!!!!!! Never again !!!!

      I went swimming yesterday….the water was so cold ! Connor had a blast. Kids can swim in the coldest of waters. The sun is intense tho…I was already somewhat tanned and got a bit of a sun burn anyway.

      Back to work today and SUPER tired….but, hey, I look good. ha…now that was funny. ๐Ÿ˜€


    • Anonymous
      June 2, 2008 at 5:58 pm

      Stacey, I know how you feel. If you look at my picture I posted earlier you wouldn’t think there’s anything wrong with me. “Fortunately”, I’m using a wheelchair to prove that there is.:D
      Shirley, I’m glad you had a good meeting. I had a similar experience when I went to my first one in Denver last month.
      Veronica, great suggestion. I have to remember that next time I get the urge. lol
      Liz, noticed the power outlet I am using in my photo? Every tree had one. Hope you will find that many, too, in Florida. Just stay away from back alleys ๐Ÿ˜€

      I finally finished a tentative travel plan for our long road trip east in August/September and Carol approved it. ๐Ÿ˜€ I added a few extra travel days because I cannot drive anymore and I’m very concerned about Carol having to do it alone. We do have a big family and we are excited about seeing all of them again.


    • Anonymous
      June 2, 2008 at 8:12 pm

      Sorry you don’t feel good but hey, just remember, as you said, you look good!

      I remember reading about the excursion with your power chair to attend the meeting.
      Your tentative travel plans put you within three miles of our home. My husband and I would love to meet you and your wife and take you to dinner if possible.

    • Anonymous
      June 2, 2008 at 8:56 pm

      Hi Shirley, thanks for the invitation. Where in Ohio to you live? It would be great if we could work it out somehow.

    • Anonymous
      June 2, 2008 at 9:15 pm

      We live in the country, 3 miles south of interstate 70, between Springfield and Yellow Springs, Ohio.

    • Anonymous
      June 3, 2008 at 12:13 pm

      according to our plan this would be on our last leg between Intercourse, PA and Grove, OK the second week in September.

      Today I am a bit discouraged. Just received an e-mail from our son in Connecticut telling us they might not sell their house by the time we come. It is not wheelchair accessible at all and I don’t see how they can make any temporary changes. They already have a new house which would be okay but it would be empty. We are supposed to stay at another house, a beach house, just for sleeping.

      I also started looking at the huge amount of material we received from AAA trying to figure out our intermediate stops and where to stay. None of the campground listings indicate whether they are handicap accessible. I probably will go online and look at KOA listings instead. Paging through the books with my numb hands is another hurdle and gets to be rather frustrating because the pages are very thin.

      Sorry, I’lll try to be more upbeat next time.:(

    • Anonymous
      June 3, 2008 at 5:45 pm

      Norb, don’t know how far off course you are willing to travel, but looks like you will be just south of us. If you are looking for a stopping point or would like to meet up, my husband and I would come to a convenient point.
      We are in the country, near Amboy, Il. Look us up on the map and see what you think.
      We do have a ramp at our home.

      Sounds like a wonderful trip!

    • Anonymous
      June 3, 2008 at 10:13 pm


      Just wanted you to know that I will come to Toledo or wherever if you guys can’t loop up into Michigan on your trip. I am looking very forward to meeting you guys.


    • Anonymous
      June 3, 2008 at 10:16 pm

      Norb, it looks like you can meet the whole gang…according to your map, you’ll be coming straight thru Omaha…and my new house is just off the interstate…
      there is an awesome ice cream shop nearby…:p

    • Anonymous
      June 4, 2008 at 11:37 am

      [QUOTE=ConnorZmom]Norb, it looks like you can meet the whole gang…according to your map, you’ll be coming straight thru Omaha…and my new house is just off the interstate…
      there is an awesome ice cream shop nearby…:p[/QUOTE]
      ๐Ÿ˜€ wow, this is turning out to be a GBS/CIDP trek. Carol put her foot down and said no more detours since she has to do all that driving. So I had to find some other way to get her excited about this, too. I did get her interested in writing some kind of journal we can put out on the web and promised her only to meet during regular rest stops.

      Stacey, so, where in Omaha to you live?
      JayDee, I pulled up my nifty Microsoft Streets and Maps Program. La Salle seems to be a good place for a rest stop. It is close to Amboy. Would that work for you?

      [B]Why don’t you all send me an e-mail with your phone numbers so we can discuss details when it gets closer.[/B]
      I hope you all are prepared to be interviewed and tell your story. Carol is an awsome writer and has written about our adventures in Thailand, Nepal and Laos, all published on our website.

      Here some tentative dates:
      Omaha: Stacey (ConnorZmom) – August 15 or so
      Illinois: JayDee – August 17
      Toledo: Cheryl & Jerimy – August 22
      Toronto: Andrew – August 24
      Ohio: Shirley – September 8 or 9

      Yesterday I used KOA’s website to find intermediate stops. I still would have to call each one to find out if they are handicap accessible. After my MIL leaves end of the month, we will take out the back seats to see if sleeping in the car is even an option. Tenting is no longer a good choice since I can’t get off the ground easily. Since our budget is pretty tight, we would prefer camping.

      I hope it all works out. I’m feeling better today and more optimistic.

    • Anonymous
      June 4, 2008 at 12:22 pm


      Travelling down Interstate 44 – you’ll go through Lebanon Missouri. That’s about 20 miles from my house. Let me know if you would like to know any information about the area…..I read that you’re using KOA sites so I’m assuming that you’re camping.

      There is a State Park right outside of Lebanon – Benett Springs State Park and it is really awesome. Camping sites galore. It is renouned for being a true rainbow trout fish hatchery and the trout fishing is awesome….I’ll have to check on seasons and limits and other things if you’re interested.

      Now to my daily stop just to check in…..

      I’m sitting here in Day three of a jury trial waiting for the jury to deliberate and come out with a verdict. After I’m done here, I’m going to head out to our building site and look at the progress on the house that I’m building for my wife and two girls.

      I’m not boasting or bragging, and I’m very conscious of that when I talk about the new house, but I’ve worked and saved and worked more jobs to be able to purchase a small tract of land and begin building my wonderful wife and two daughters their house.

      Contracting, Obtaining, Coming down with (I’m not sure if that is the correct nomenclature) GBS in January of 2007 put the building of the house back a bit, HOWEVER, it did put building the house to the FRONT of my list of things to do. I decided, after I was in the hospital, laying in my bed looking at the ceiling that I’m not going to wait ANY LONGER!!!!!

      I had to go back to work and make sure that I was able to perform my duties sufficiently and then my wife and I started the process. Currently I have basement walls poured and the forms stripped. I’m conversing with a plumber to have the plumbing fixed in the floor and then the framer will start ASAP after those things have finished.

      I’ve ranted long enough…..but I’ve ranted with a smile on my face. Thanks Norb for the thread.

      Everyone be safe.

    • Anonymous
      June 4, 2008 at 2:43 pm

      I’m sure GBS affects memory.
      I think I sent you the same e-mail twice.

    • Anonymous
      June 4, 2008 at 2:56 pm


      congrats on the house building. I know what you mean about not wanting to sound like you are bragging. My hubby and I spent two years and a ton of money renovating the home we just moved in to. We didnt build it from scratch…but we re-did 90 percent of it….roof, windows, paint, finished basements, (there are two b/c of an add on), and carpet thru-out…also sprinkler system, landscaping, etc….but, I dont brag or boast either b/c I’m not “bragging”…I’m just proud.
      It’s awesome to watch the process unfold. best wishes to you. Are you anywhere near Bolivar, Missouri ?

      Norb, I’ll email you from home… as to where i live exactly…
      too bad you didnt have a great big camper…what do they call those…are they mobile homes ? the kind you drive. brain fog going on cant think of what they call em. I cant imagine what that would take to gas up. yikes. but, wouldnt that be nice…

      I am feeling really crummy today. I woke up at 3a…usually up at 4…coughing like crazy. It was a bad cough but thru out the day it’s not as “chunky” ? dont know how to describe it…but it’s a drier cough now but it burns terribly…..very bad burning when i cough.
      ug. if it’s not one thing it’s another. I emailed hubby at work and asked if we could do an easy dinner tonite…we have his daughter on Wed’s…he said of course…that he’d cook or he’d pick up something. He knows how to make mac and cheese…and grill stuff…or if there’s a recipe, he can follow it…:rolleyes: I just appreciate his willingness to help !

      I want to lay down.

      know of any good remedies for the burning cough ?

      till later……
      ps…my Connor hit four out of four pitches at baseball practice last night…he was the only one. the coach threw until each kid hit the ball three times…since Connor hit the first three, he got an extra and hit that, too. ๐Ÿ™‚
      He’s so shy and takes a bit to acclimate…but I’m so proud. :p


    • Anonymous
      June 5, 2008 at 9:01 am

      well, guess what we had for dinner….Mac n cheese and grilled chicken breast.
      how did I know ?

      Today I woke up and I have the full blown upper respiratory crud going on. Stuffy, drippy nose…chest still burning…so, I called the dr and going in at 1130. I was just there Tuesday. ug. I havent had this since I was diagnosed almost 2 yrs ago…actually, the last time i had bronchitis, I was pregnant with Connor. The body aches and fatigue are pretty bad but how do I know what’s what.

      We had strong storms again last night…no tornadoes here but heavy rain and some huge hail…there is flooding near the creeks and more rural areas.
      They are calling for more rain tonite….more storms. The humidity is fierce.

      I’m at work contaminating everyone around me…they dont beleive you when you call in sick.
      I’d better try to get some work done……….:rolleyes:

      good day everyone.


    • Anonymous
      June 5, 2008 at 10:50 am

      Stacey, Sorry You feel soo bad. I’m just getting over that stuff which turned into pneumonia. Try honey in a warm drink(of your choice!;) ) it is known to soothe the hardest of coughs! Hugs and hope you get feeling better soon!

    • Anonymous
      June 5, 2008 at 12:57 pm


      Travelling down Interstate 44 – you’ll go through Lebanon Missouri. That’s about 20 miles from my house. Let me know if you would like to know any information about the area…..I read that you’re using KOA sites so I’m assuming that you’re camping.
      actually, we are rethinking our camping idea and are looking at motel options. We love camping – have done it for over 40 years – but we just have to be realistic about the limitations that come with using a power chair. Two years ago when I was still using a rollator we camped in a “handicap accessible” campground in Rocky Mountain National Park. At that time we still had our pop-up camper and it was very difficult to get to the bathroom. This time around we would have to sleep in the car and that does not make any sense anymore.
      Thanks for offering your help, though.
      Good luck with building your house. To do that is such a great experience. I was lucky. We built ours in 2001 before the slight numbness in my toes turned into a major disability. Now seven years later we are still very happy with our house and the way it turned out.
      [QUOTE=ConnorZmom]Norb, I’ll email you from home… as to where i live exactly…
      too bad you didnt have a great big camper…what do they call those…are they mobile homes ? the kind you drive. brain fog going on cant think of what they call em. I cant imagine what that would take to gas up. yikes. but, wouldnt that be nice…[/QUOTE]
      now I have to think too:D motorhomes — I actually had to google it ๐Ÿ˜ฎ do they come wheelchair accessible, with a ramp that comes out and enough space inside for me to turn, go to the toilet etc. n o t !! Actually, I never liked them. We were quite happy with the pop-up campers we had for 40 years camping everywhere, Canada, North Carolina beach, Yellowstone, California etc. gosh, do I miss it.
      Hope you’re feeling better and cheers for Connor.

    • Anonymous
      June 5, 2008 at 1:00 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Out weed whacking and mowing two days ago,
      sure i looked pretty funny, liberally slathered with insect repellent, socks pulled up over my jeans and long sleeves in 80 degree weather, but am highly allergic to mosquito bites.
      Boasted to a friend that i seem to be immune to poison ivy, oops, NOT!
      The only area of skin exposed were my wrists above the gloves and guess what? Uh huh. Well guess i learned my lesson, next time i’ll wear gauntlets, or better yet, get someone else to do the job, eh?

    • Anonymous
      June 5, 2008 at 1:39 pm

      [QUOTE=oldbat][FONT=”Comic Sans MS”][SIZE=”2″]Out weed whacking and mowing two days ago,
      Gardening, I miss that, too – not so much the weed whacking and mowing, though. Yesterday I ventured into the backyard with my power chair for the very first time. Carol was bugging me to give it a try so I could admire all the landscaping she and her mom did the last few days. She put down an old tabletop and a couple of roof shingles to bridge the gap between the driveway and the footpath. It was a bit scary but I did make it okay, actually made it all the way around the side of the house and onto the grass in the back. They did a wonderful job. I couldn’t believe all the trees and bushes and flowers they planted. This was an area we had neglected over the past few years, living in Thailand for a while and with my situation getting worse after we got back.

    • Anonymous
      June 6, 2008 at 1:31 pm

      Good for you, Norb! We don’t know until we try, eh?

      I have been enjoying the flower gardening. I like to “tuck” unexpected things around ~ like a treadle sewing machine head (not usable for anything), a ceramic worm, an old wooden screen door frame with the rabbit (I’m late, I’m late) from Alice in Wonderland hanging from the center brace. Oh yes, I love “teapots”, that are ready to be re-purposed, tucked among the roses. And tucking a mirror in front of the fence but behind the flowers really magnifies the area ~ more bang for my buck ๐Ÿ˜€ And we both love “old things” used on an old farm, like a cream separator filled with geraniums and trailing plants. Most things are put away for winter, so when springs arrives how I love to bring out my “old friends” !!

      I’ve been experiencing so much more leg pain than usual but being in the garden helps me to “forget” for a few minutes. Wish I could share my flowers with y’all ๐Ÿ™‚

    • Anonymous
      June 6, 2008 at 2:07 pm

      I planted a few flowers this year. I’m not the gardening type but must admit I enjoyed it. My mom was an avid gardener so I’d like to think she’s by my side as I am planting.

      Severe brain fog…I couldnt remember my password to log in. I went to the dr and have bronchitis…got an antibiotic for just in case and some cough syrup with codeine. I literally slept from 130p yesterday until 430a this morning. I woke only to go to the bathroom and say a word or two to hubby and Connor. I was so sick I thought I was gonna have him take me to ER…couldnt get off the couch.

      Still feeling crummy but alot better than that…and I am at work. Like I say, my work has no sympathy for calling in and right now I am one of two filling in for someone on medical leave.
      Hubby kinda mad that I didnt stay home. I am not a good patient.

      I’m taking Connor to DesMoines next weekend…to Adventureland. Going with my niece and great niece…they are 25 and 4. The great niece is 4 and is bigger than Connor. She is quite the chunk..weighs like 70 lbs. Connor is 51 lbs and 18 mos older than she.
      I’m looking forward and hoping the kids have a good time. NOt sure how well I’ll do walking around the park. I probably should bring my AFO, huh.
      and my cane.

      I’ve been real dizzy since yesterday…wondering if its the cough syrup. I suppose I should measure how much I take rather than chug it out of the bottle. Ha…no, not really. I sip.

      My dr also gave me a script for my pain med re-newal and gave me 120 rather than 45. The pharmacist called her questioning the amount. I had just gotten some that were stronger on the 30th from a different dr…which I’d rather not take during the day. They are making me wait until next Thurs to fill them. And, that’s ok b/c I have enough left. Walgreens ticks me off sometimes tho. I guess they are just trying to be careful. They held the script there so I guess I just call em Thursday and get it. I’ll need them then…and especially going to the amusement park.

      well enough for now…second night of storms last night but I slept thru it. tornadoes all around us but just heavy rain here. Today is beautiful and sunny just a bit windy. Wish I felt better.

      have a great weekend everyone !

    • Anonymous
      June 7, 2008 at 8:10 am

      Hope you get that cold under control. We don’t have to tell you that you need to take it easy because you’ve already told us you are a bad patient,
      but ‘take it easy, anyway’.

      Gardening is my therapy. I’ve had to come up with some alternative ways to do things. Like sitting on a bucket to pull weeds, taking my time and accepting that it’s not quite perfect. My husband suggested we downsize our vegetable garden this year. He was just trying to help, knowing how much work it is, but it’s the first comment that made me cry in a vary long time. Guess it was the realization that I can’t do what I used to.

      My cup if tea is perfectly steeped, the sun is out and there is a soft southern breeze…I hear my plants calling my name…
      Have a great day

    • Anonymous
      June 7, 2008 at 3:57 pm

      [QUOTE=ConnorZmom]I planted a few flowers this year. I’m not the gardening type but must admit I enjoyed it. My mom was an avid gardener so I’d like to think she’s by my side as I am planting.

      ![/QUOTE][FONT=”Comic Sans MS”][SIZE=”2″]My Mom hated gardening as she grew up on various farms in Texas where there was always hard work to do. After my Dad passed, she sold our old house with it’s huge yard and moved into a brand new mobile home which she had us ‘landscape’ with various colors of rock. When i’d call and ask what she was doing, she’d joke she was out watering her rocks:)
      Guess i got the garden bug from my Dad. Have always practiced organic methods but the poison ivy is making me[I] itch[/I] to reach for the BrusBGone, and it’s about those pesky ground hogs…..


      ๐Ÿ˜ฎ Hey don’t shoot! I was just kidding.[/SIZE][/FONT]

    • Anonymous
      June 8, 2008 at 7:48 pm

      Great idea Norb. Just checking in.

    • Anonymous
      June 9, 2008 at 11:26 am

      Last night I discovered that our account dropped dangerously low. I have not looked at it for a few days and I was quite shocked. Lots of extra expenses with my MIL visiting here for six weeks ๐Ÿ˜ฎ on top of that on the news they gave more gloomy predictions for fuel prices this summer. Carol’s reaction to all that was maybe we should cancel our big road trip. I just pulled up our Microsoft Streets and Trips Program and plugged in five dollars per gallon. For the 4225 miles it came up with $855.

      There is another consideration: our daughter is thinking about applying for a emergency medicine fellowship at Brigham’s Women’s at Harvard University next year. Since she made chief resident for her last year here she might have a good chance. She wants us to come live with them for the first half year for a number of reasons. If that happens we would have to make a trip east by car anyhow.

      I have to chew on all that one for awhile.

    • Anonymous
      June 10, 2008 at 7:31 am

      I hope you dont have to cancel your trip. The price of gas is just absolutely ridiculous and the sad part is, there is no relief in sight.

      We have had a bad bunch of storms roll thru. Saturday night at 230a we were awakened by a tornado. Literally. It hit about five miles southwest of our home and damaged a few homes but left many with trees down and no power. We had no power until late Sunday. My neighbors had a tree uprooted from their lawn. The storm came with no warning and by the time the sirens went off, it had already touched down.
      I cant tell you how scared I was. The wind and the pressure in the house was unreal. We went to the basement with a portable radio and flashlight and hid under the stairs. Usually we dont get so worried but this time it was pretty intense.
      Nobody was hurt or killed and that was good….

      still suffering with the bronchitis…cant shake the cough.

      I’m taking Connor to adventureland on Friday….in DesMoines in case you all hadnt heard of it. It’s an amusement park…not like disneyworld or anything but fun enough I guess.

      I wish I were home and not at work……..

      have a good day everyone,


    • Anonymous
      June 10, 2008 at 8:39 pm

      We had huge limbs come off the Sweet Gum tree in the wind last nite. It all landed where our summer bed usually is. It’s been such a cold spring that we hadn’t put it up yet!! Wow, sure made us think . . .

    • Anonymous
      June 11, 2008 at 4:15 am

      Stacey, I know how you’re feeling with the storms and tornados. We have been getting all those storms from your way–power outages, wind damage, a few funnels and tornados too. I’m tired of it now. Thank goodness it broke this afternoon and we are in for a couple days without rain and storms.
      This morning I had an appt with my neuro, still trying to narrow down the list of possible dxs. Did some more lab work and next will be a mri of the brain, another(#12) ncv/emg and a skin biopsy to look at the small fiber nerves. And I got in plenty of walking today.:)

    • Anonymous
      June 11, 2008 at 9:07 am

      Hi, back again, It good to see all the posts of so many friends again.

    • Anonymous
      June 11, 2008 at 3:03 pm

      Good afternoon everyone.

      Its Wednesday. Spaghetti night at Church tonight. Really looking foward to it.

      Just thought I would check in.

    • Anonymous
      June 11, 2008 at 10:35 pm

      It is 8 p.m. and I need to be patient. My mother-in-law with Spunky, her poorly trained chitzuu who pees everywhere and who my sister-in-law is calling buttface, is still here visiting from Oklahoma watching a movie I really don’t care for. The only two places for me to escape, the bedroom or the desk in the kitchen with the laptop. So, hello everybody here, I am browsing the forum.:D my ex with her new boyfriend (now fiancee) is going to visit in a couple of days for the weekend. They’re on their way to Portland, Oregon to visit Michael, our second oldest son. We get along with her fine for a few days and he is an odd but pretty nice guy. We met him last year at my daughter’s in Battle Creek. I’m glad she finally found somebody she’s happy with. I hope it lasts this time. She actually invited us to her wedding next year, her third. ๐Ÿ˜ฎ She turned 70 this month and life must have been pretty lonely the last few years. We got divorced 32 years ago and unlike her I’ve been in a great relationship ever since. And so it goes, Vonnegut would say.

    • Anonymous
      June 12, 2008 at 12:36 am


      I so love your attitude about everything, there is lots for me to learn from it.


    • Anonymous
      June 12, 2008 at 4:51 am

      Norb ~ you are a kick!! Survival is seeing the funny every time you can:D

    • Anonymous
      June 12, 2008 at 10:51 am


      I thought you were making reference to Billy Joel’s track, [I]And so it goes[/I]——-not Vonnegut’s reference!!!!

      I suppose I’ll have to turn the page on yet another new chapter of culture in my life.

      Thanks Norb.

      [I]And so it goes[/I]……..

    • Anonymous
      June 12, 2008 at 11:09 am

      Well, and I didn’t know about Billy Joel’s album. You made me curious and I checked my iTunes library, it’s “Stormfront”. I’ve never been very good at remembering individual songs, prerogative of old age, heh ๐Ÿ˜€
      Here is what someone said about Vonnegut;
      [Quote]Kurt Vonnegut: So it goes
      Those three famous words from Slaughterhouse-Five hold the key to understanding the humanism that underpinned the late novelist’s work[/QUOTE]
      take care

    • Anonymous
      June 12, 2008 at 11:36 pm

      Brett, it’s from Vonnegut’s “Slaughterhouse five”.

      We had some unexpected medical and other expenses on top of soaring gasoline prices. In addition, our son Michael and Kathy in Connecticut have not sold their house yet but already own a new one which will be empty for while. It is only the new one that would have been wheelchair accessible. It seemed like a wise decision to postpone our planned trip east. This is all a bit disappointing for us but we hope that we can go through with it early summer of next year. We will put the many AAA travel books and maps away in a safe place so we don’t have to look at them. ๐Ÿ™

    • Anonymous
      June 13, 2008 at 10:46 am

      Oh Norb ~ how disappointing! I know that you and Carol were so looking forward to “the great adventure”. And the others were so excited about getting to meet you! I’m glad that you are putting the AAA books/maps in a safe place for when the “new” time arrives. Perhaps you can do a special long weekend right there in Colorado ~ something you haven’t done but would like to. Some disappointments are difficult to get over but with the “can do” attitude that you have, it will be alright ๐Ÿ™‚ Hugs to you both.

    • Anonymous
      June 13, 2008 at 11:43 am

      Well Norb, when life hands you lemons…..Make lemonade. So what is the good that is coming out of this? Gotta be something. How disappointing though as I know you were looking forward to the trek across the country.

      Keep the maps and itinerary and who knows…maybe you will win the lottery in the next little while and the trip can go ahead. ….You can always hope, right? Best wishes and I will pray for a turn around so you can make your journey happen.

    • Anonymous
      June 13, 2008 at 4:47 pm

      Thank you guys. I think I’ll save the lemonade for later and have a margarita instead. I’ll probably need it with my ex and her fiancรฉ showing up at the door in a couple of hours.:eek:

      So it goes… [B]Brett[/B], in case you are interested in expanding your cultural horizon ๐Ÿ˜€ , I have a copy of Slaughterhouse Five in Word format on my computer. Just send me an e-mail and I’ll reply and attach it.

      You got me curious and I looked for Billy Joels song on my iTunes directory. I actually found two copies, one in The Best Of and the other one in Stormfront. I don’t think it was inspired by Vonnegut, it’s a love song: “and so it goes and so it goes and you’r the only one who knows”

    • Anonymous
      June 13, 2008 at 9:47 pm

      Norb, I’ll meet you over at the tavern! I preordered your drink so it’s waiting for you.

    • Anonymous
      June 14, 2008 at 7:47 am

      Norb, your reference to a ‘love song’ is a great lead for my “Just checking in…” post of the day.
      Today my husband of 33 years and I always greet each other with an extra long hug and a HAPPY FLAG DAY! It’s our 33rd anniversary.

      So everyone join us on our anniversary as we proudly fly the flag!

    • Anonymous
      June 14, 2008 at 9:25 am

      Happy Anniversary JayDee

    • Anonymous
      June 14, 2008 at 10:31 am

      [COLOR=red]Happy Anniversary Jaydee and Hubby!!!!!!:) [/COLOR]

    • Anonymous
      June 14, 2008 at 12:00 pm

      Happy 33rd, Jaydee

    • Anonymous
      June 15, 2008 at 1:21 pm

      Happy Father’s Day to All You Fathers out there!!!!
      This evening we are getting together with my parents and a sibling or 2 and their families for a Pie Iron Pizza cookout! I Love pie iron pizzas!! Since Dad is not able to camp right now, we are having it at their house over the burn pit.

    • Anonymous
      June 15, 2008 at 4:49 pm

      I have to ask hope you don’t think I’m dumb.
      What is a pie iron pizza?

    • Anonymous
      June 15, 2008 at 5:24 pm

      That makes two of us. I’ve never heard of it either. Did you make that up Cheryl?
      We got Renate, my ex, interested in the Great Stupa of Dharmakaya which is only 40 miles away from here in the mountains. It is pretty fantastic, 108 feet high. The Dalai Lama visited it in 2006. If you ever are in this area don’t miss it and our house is always open. Anyhow, they wanted us to come along but my MIL refused which was fine with us:D she won’t admit it but I know she’s afraid of heights and on the way to the stupa there is a long stretch with a steep dropoff on one side.
      They invited us for this afternoon to go out to lunch in town. There is ” The Taste of Fort Collins” and a concert in the old town Square. We’ll probably find a place at Coopersmith Pub and Bewery. They have a nice outdoor area. Whoops, they’re back.

    • Anonymous
      June 15, 2008 at 7:06 pm

      I had to look up what the Great Stupa of Dharmakaya was.
      Liiving from place to place during my husbands military career, I have always had an interest in different nationalities, cultures and faiths. I found this to be of great interest to me.
      The Hawaiians believe that if you take the black lava rock off the islands that bad things will happen to you. I didn’t know this when I brought back a piece of lava rock the size of a grape in 1973, I found it out years later.
      If only I had not taken that piece of lava, what a difference my life could have been!!!!! They also say you can take it back and bad things will stop.
      I wonder if my GBS would completly go away?????
      Wishful thinking ,

    • Anonymous
      June 15, 2008 at 9:29 pm

      Norb, would I make something like that up?;) I’m surprised you never heard of them, being a camper and all. Here is a pic of my Dad cooking pie iron pizzas today. He wouldn’t let anyone else do the cookin’! He enjoyed doing it. The plate has a perfectly cooked pizza on it….[IMG]http://farm4.static.flickr.com/3031/2582578410_948a3ec9b0.jpg[/IMG]

    • Anonymous
      June 16, 2008 at 6:59 am

      Norb, I can so imagine your dissapointment. I wish I could help.
      I took Connor to adventureland this weekend and just the cost of THAT…I cant imagine a trip across the country.

      We are planning our own camping trip in Valentine around the 4th. Valentine, Nebraska, that is. We tube down the Niobrara. The last time we were there I was a very 6 months pregnant with Connor. Havent been back b/c I didnt think he could handle it. Hoping he enjoys it …we tube on the river about 5 hours and as long as he doesnt get bored, it should be ok. We’re taking my 11 yr old stepdaughter…which I am reluctant b/c her and Connor dont get along so well. For her it’s an attention thing, I think. She doesnt like him and never really has. Makes it very hard for me sometimes.

      anyway…back at work and the boss is on me for being behind……..

      good day everyone.

    • Anonymous
      June 16, 2008 at 8:36 am

      Never did it with pizza, but we’ve done regular pies that way for years.
      Have you all tried “grilled pizza”? Brush olive oil on a pre made pizza crust.
      Grill both sides on the grill for just a minute or two. Then add your favorites beginning with a good sauce, onions, olives, peppers, etc. If you are doing meat such as sausage, brown it first (obviously). Return pizza to grill and top with cheese. When cheese is good and melted, enjoy! Works best on low heat, and if you have a grill pan, like the kind you do veggies on.
      Gives the pizza a grilled flavor and you can customize it.

    • Anonymous
      June 18, 2008 at 9:31 pm

      This is so cool:D I just played around with Google Earth to find Offenbach, my hometown in Germany. Seems like a lot has changed since I have last been there in 2001 when we were going to attend my brothers funeral. We missed it because our flight was scheduled on 9/11. I was born and raised in the apartment building shown with the red arrow. It used to belong to my grandparents and they also had a grocery store on the first floor. It was a lot of fun as a kid because it was right across from the main railway station. There was a wall across from the street which we used to climb and then crawl up the embankment to watch the coming and going of the trains. World War II was pretty scary and excitement at the same time for us children. One time we actually found an incendiary bomb that went through the roof of our house but didn’t go off. Well, there is a lot to tell but this is not the place. It was just fun to see it again from above.


    • Anonymous
      June 19, 2008 at 1:51 am

      Wow! Norb. Isn’t it simply amazing what satellites and computers can do ๐Ÿ™‚

    • Anonymous
      June 19, 2008 at 2:32 am

      How Awesome is that, Norb!:) I like looking down on my area on the image site also. I just wish they would show a then and now look instead of all older. My area has changed soo much, its fun to see the fields that I grew up with that are now all houses.

    • Anonymous
      June 19, 2008 at 8:23 am

      I worked with a lady from Germany that married an American soldier during WWII and came to live in America. She has never been able to talk about what she saw and went through during WWII.
      Reading the few things you said about it helps me understand why she could’t talk about it.
      I hope to read more of what you went through. When you do tell more, let me know where I can read it.
      I’m glad that bomb didn’t go off when it went through the roof of your house.
      Google Earth is great.

    • Anonymous
      June 19, 2008 at 10:12 am

      Just checking in
      I took my first walk by myself (since Oct. 07). Went out the back door, down the ramp and around the side of the house to the front of the house. YEA!!! YEA!!! YEA!!! I didn’t fall but sure did stumble even with the cane.
      Now I have seen the mulch bed up close and have some triming and weed pulling to do. I’ll try that later.

    • Anonymous
      June 19, 2008 at 11:00 am

      [QUOTE=Matteyrae]I hope to read more of what you went through. When you do tell more, let me know where I can read it.[/QUOTE]
      Shirley, some time ago Ali and Allaug on the forum asked me to talk about my life during WWII. Here is what I wrote:

    • Anonymous
      June 19, 2008 at 3:10 pm

      Wow, what horrible things you and so many others have been through.
      Thank you for telling your story.

    • Anonymous
      June 19, 2008 at 9:06 pm

      I just read your story Norb. What traumas and atrocities you had to see at such a young and tender age. I admire you for sharing this with us. It takes trust to open your heart to virtual strangers and let us in to see the pain and grief you have suffered as a result of the war years. God bless you and your family. Thank you for sharing.

    • Anonymous
      June 20, 2008 at 2:20 pm

      I echo Shirley and Jan in thanking you for opening your heart to us.
      I think your Mutti must have done a wonderful job of raising you, for though you suffered much, you managed to retain your sense of adventure and grow to be the person you are today, the one we all care for deeply.
      Was it a difficult adjustment for you to have your father suddenly back in your life after all those years?
      Just wondering
      Thanks again for sharing.

    • Anonymous
      June 21, 2008 at 11:46 am

      Thank you guys:D : Jan you’re not virtual strangers, you’re virtual family and it feels good to be able to tell my story.
      Veronica, I don’t remember much about the time my dad came back. The only thing I do remember is that my mother kept talking about how much he had changed and that he did not talk much about being in Russia.

      We did receive a disappointing reply from the city yesterday. They turned down our request for a tax refund for the handicap modifications to our new car. The city code only exempts tax on prostheses and according to them, car modifications do not fall into this category. We did read the tax code and in our opinion these modifications should be included. We’ll probably appeal it.

      We did not get an answer from the state yet. They do not use the word prostheses which gives us hope that we will get a better answer.

    • Anonymous
      June 22, 2008 at 12:02 am

      Norb, I look forward to reading your story…awful tired right now, been in the hospital since Tues…but, I’m just checking in. ๐Ÿ˜ฎ

      and, btw, I am ok.

      more later………


    • Anonymous
      June 22, 2008 at 12:01 pm

      [I][B]Stacey[/B][/I], I read the other post about your hospital stay. I’m so sorry you have to go through all this. It may not always be easy to do but just try to get as much rest as possible.

      Last night I rediscovered one of my favorite German shows, Lindenstrasse. They changed the format and now I can watch it full-screen in very good quality on my widescreen laptop. I’m not a fan of soap operas but this one is different. It’s been around continuously for 23 years, 52 shows a year no reruns. It shows life in a Munich street, mostly in one apartment building, a restaurant, bakery and some other stores, very realistic and down to earth nothing soap about it.

    • Anonymous
      June 22, 2008 at 3:32 pm

      [FONT=”Georgia”][SIZE=”2″]Hi Norb I’ve been away for a little while trying to get an understanding of all the things that happened in my life this yr. But I wanted to say Hello to Everyone here.[/SIZE][/FONT]

    • Anonymous
      June 23, 2008 at 9:58 pm

      hi [B]dustdemon[/B], welcome back. How are you doing? I know how a major loss hurts for a long time and how difficult it is to get over it. I don’t think wounds like that ever heal completely but it will become more distant as time goes by. I can relate to that because our youngest son, the only one we had together, committed suicide five years ago at age 25 and it still hurts today.

      Well, anyhow: I’m having a great time right now because Carol and my mother-in-law went to a two hour cooking class giving me some space. My mother-in-law is 83-year-old, she’s a good person, she’s visiting here for six weeks from Oklahoma. She’s a widow and pretty lonely in that big house by the lake. She likes to talk a lot, ask me a thousand questions, and has habits that don’t quite agree with us, one of them are eating habits. She won’t eat fish, chicken or turkey and is very suspicious of foods she doesn’t know. We stay away from beef which is her preference and love Thai food which she doesn’t like. She doesn’t know the meaning of the word space. Yesterday, she wasn’t ready yet and we wanted to go out to run some errands. When we said why don’t you stay here and give us some space, she got ready in a hurry so she could come along. I could go on and on about this. Sorry for venting. She’ll be leaving in one week.

    • Anonymous
      June 23, 2008 at 10:13 pm

      Norb, You are a Saint!! I’m sending you alittle extra strength-so you can make it through the next week.;) Big Hugs to You Terry. Sorry I haven’t emailed you back yet-been soo busy and it doesn’t seem to be slowing down anytime soon.:( Last sat night my hubby broke his foot–doing something I have told him many times over the past 17 yrs not to do–he walked across our waterbed and fell off when his foot became lodged between the side rail and the watermattress. He was supposed to start a new job as a truck driver on weds—I guess thats not going to happen now:(
      We do look kinda funny when we walk next to each other–him on crutches and me with a cane. Take Care All.

    • Anonymous
      June 23, 2008 at 10:31 pm

      [QUOTE=angel2ndclass22699]Norb, You are a Saint!! [/QUOTE]
      No, I’m not. I’m just an old fart who gets cranky when my MIL tries to talk to me first thing in the morning after I just got up
      [QUOTE]I’m sending you alittle extra strength-so you can make it through the next week.;) [/QUOTE]
      I sure need it.
      Wished I could see a picture of you and your hubby. ๐Ÿ˜ฎ outch, sorry about his accident

    • Anonymous
      June 24, 2008 at 10:56 am

      Norb, you are a hoot!!! I love reading your posts. I am sad to hear about your son though. You are right…it will always hurt, but we do learn to somehow go on with life, don’t we?

      As for your MIL, sounds to me like she is one lonely lady. ๐Ÿ™ Maybe you need to set her up with some guy her own age and see if you can’t get a romance budding…you’re never too old!!! ๐Ÿ˜€ well, it would be worth a try!

    • Anonymous
      June 24, 2008 at 11:20 pm

      Norb, Thanks for that laugh!!!!!:D I really needed that!!!:)

    • Anonymous
      June 25, 2008 at 12:14 am

      Norb ~ you are to funny! Thanks for giving me my laugh for the day ๐Ÿ˜€

    • Anonymous
      June 25, 2008 at 10:51 am

      just checking in….
      doing ok…slow to recover from all of this but I will.

      hope all is well and wonderful today !


    • Anonymous
      June 25, 2008 at 11:01 am

      I didn’t know what I said was funny. But I’m glad y’all got a laugh out of it.

      [QUOTE=jan’83]As for your MIL, sounds to me like she is one lonely lady. ๐Ÿ™ Maybe you need to set her up with some guy her own age and see if you can’t get a romance budding…you’re never too old!!! ๐Ÿ˜€ well, it would be worth a try![/QUOTE]
      sounds like a good idea but I’m afraid it won’t work. We don’t live near her in Oklahoma and secondly, she would probably be afraid that they would be after her nice house and the oil wells.:eek:

      This morning I will have another three hours alone, hurray:D yesterday Carol took a series of photos of me getting into the car with the power chair. I’m going to try to make it into an animated picture using Photoshop. Wish me luck. I’ve never done that before.

    • Anonymous
      June 25, 2008 at 1:12 pm

      Doing okay here but the pain in my feet along with the tingling has been extremely harsh lately. I think I have been overdoing it. I am going to see the dr in a few days as I want to see about going on Lyrica. I find Neurontin causes me to be so lethargic and to retain fluid not to mention I gain weght which I absolutely do not need…I already feel like a beached whale most days:D .So did stop taking it which really may be part of the problem. My hubby gave me a wonderful foot massage this am and it really helped.

      It is a beautiful sunny day here so am heading out to catch some rays. Have a great day everyone!

    • Anonymous
      June 25, 2008 at 1:34 pm

      [FONT=Georgia]Hello Everyone: Today is not a good day for me the neuropathy pain is really at it today making me one unhappy camper. Oh Norb could I interest you in some Cicadas, this area was plagued by millions of them. I couldn’t even get outside & cut the grass without them landing on me. [/FONT]
      [FONT=Georgia]I got bit by the stupid things several times, & the one thing is the hotter the temp gets the worse they get. This was Brood 17 what I call the nuisance brood, I’m just patiently waiting for them all to die. I don’t ever remember seeing them this bad as long as I have been here. Well at least it’s nice & sunny here today ![/FONT]

    • Anonymous
      June 25, 2008 at 6:35 pm

      I did it – see below. A bit choppy but it’s my first try.

      [B]Dustdemon[/B] – they probably taste good roasted with lots of protein ๐Ÿ˜€ I’ve tried bamboo worms before

    • Anonymous
      June 28, 2008 at 5:06 pm

      Just checking in.
      It was a good day. Went shopping for carpet and used my cane to walk with.
      Made it through two carpet stores. Went home and the shoes came off, the feet went up.
      That’s what I call PROGRESS!!!!

    • Anonymous
      June 28, 2008 at 10:31 pm

      Norb, I want a ride, [I]paleeze[/I]’? I won’t talk, promise ๐Ÿ˜€ (the voice has left me . . .)

    • Anonymous
      June 29, 2008 at 10:14 am

      [FONT=”Comic Sans MS”][SIZE=”3″]Norb,
      Me too please, is there room in there for an old bat, i’ll try to be still and won’t ask a single question, promise.;)
      i live alone and so don’t have anyone pestering me (except the cats). Am not fit to be spoken to until i’ve had my 3 cups of tea.
      When Significant Other comes to visit he drive me nuts, he’s a morning person and always raring to go as soon as he opens his eyes, so disgusting!:D
      My neighbor just turned two of his horses out in the paddock, and am enjoying watching them kick up their heels.

    • Anonymous
      June 29, 2008 at 11:09 am

      Hi Norb-I have an idea-we ladies that live alone could sign up on a list, of “ride in Norb’s car-promise to ask no questions-just have fun”???:D

      How I’m doing-had my #3 home ivig yesterday, nurse had me double my premeds, and miracle of miracles-NO headache. Legs feel a little better and balance is better-went out to dinner with a friend last night and didn’t even need a cane !! And today is last day of ivig for a month-once that iv gets pulled out of my arm am going to take an hour normal shower and not feel like the statue of liberty holding her arm up so the iv doesn’t get wet.:)

      Take care everybody. Dust Demon-trade you 1000 cicadas for 1000 mosquitoes????? Emma

    • Anonymous
      June 29, 2008 at 11:26 am

      Okay you guys, you twisted my arm. I’ll even let you sit in front in my [COLOR=”DarkRed”]power chair[/COLOR]. Maneuvering it into position is a bit tricky so I have to do it mself. Like yesterday coming back from a short trip into the mountains I did not stop the power chair in time and ran with my big toe into the driver’s seat. It was bleeding like crazy. Today is my mother-in-laws last day before returning to Oklahoma so we decided to go for for a short two-day excursion through the Rockies. Our last stop yesterday was in Nederland were they had an art fair. We first ate lunch at the famous Kathmandu restaurant. The Indian/Nepalese dishes were delicious. My MIL waited until Carol came back from the bar with a full plate . She only was willing to taste the sweet potato dish and then called the waiter to order some cheese Nan bread since she couldn’t find anything on the menu. She took one bite and didn’t touch the rest. Well we have give her credit for at least tasting it. Back home last night I finished the Nan. One more day:D ๐Ÿ˜€

      [B]Veronica[/B], we would get along just fine. I won’t talk in the morning until I had my second cup of coffee and checked out the Internet.

    • Anonymous
      June 29, 2008 at 12:28 pm

      Norb, I just can’t figure out men. You don’t like ones who talk, and my brother doesn’t like those who don’t talk:confused: I’m a morning person and nightowl-but I don’t talk all that much and get in trouble for it.;) Can I go for a spin too?

      Today I have to go shopping for a birthday gift and take my son to the birthday party. One down, 2 to go:D
      Can’t do anything outside, its raining for the 7th day in a row!

    • Anonymous
      June 29, 2008 at 4:37 pm

      Got my new car day before yesterday had an accident yesterday. I wear AFO’s on both feet and hit brake and gas at same time.Just hit a curb and the handicapped parking sign.(sign hit another car parked opposite in the handicapped space.)Minimal damage. I need a new bumper. More damage done to my ego than anything else. I figure I set a record at the dealership not even 50miles on the car. Trying to walk without AFOs but I have been wearing them for 2 yrs now. Still numb from my chin down feels like my arms and legs are asleep. My confidence is shakey at best now. Family and friends say it was just an accident and no one was hurt, me not physically but not so sure about mentally.I should be thankful i have come a long way to be able to drive still using forearm crutches and a cane sometimes but havent seen any improvement in functionality for a while. Having a hard time accepting that this could be asgood as it gets.

    • Anonymous
      June 29, 2008 at 5:44 pm

      Oh no, JoJo. I feel so bad for you. But just think it could’ve been worse. Last year I did something similar since I have no feeling in my feet. Except there was no damage except to Carols level of anxiety. Instead of stopping at a red light I lurched into the intersection. Carol made me switch seats and told me I was not going to drive anymore. ๐Ÿ˜ฎ In the meantime, I’ve resigned myself to the fact that I’ll never drive again unless a miracle happens.

    • Anonymous
      June 30, 2008 at 7:25 am

      JoJo,I’m sory about your accident but I bet you gave those guys at the dealership a good story to talk about.

      Norb, Your animation getting in your car was worth watching several times and having my husband watch it too. We loved it!
      I want a ride also but only if Carol is driving, don’t want to go lurching through those intersections with you . ha! ha!

    • Anonymous
      June 30, 2008 at 7:43 am

      JoJo-sorry about your accident too, but as I read your story, it did make me smile but more importantly it spoke of your character and spirit to keep trying to do more. Enjoy your new car and don’t give up mentally, and stay hopeful and positive; our journeys back to being better are long and have lots of ups and downs along the way. And besides it takes everyone some time to get used to a new car–enjoy it-go for a short crruise with it. God was just having fun with you and the curb and sign and all. A new bumper is nothing-get a new one and get stylin–you’ll get the hang of the AFO’s and the pedals. Emma

    • Anonymous
      June 30, 2008 at 8:05 am

      Emma, we haven’t met, just want to say hi and welcome.

    • Anonymous
      June 30, 2008 at 11:43 am

      It’s strangely quiet here at the house. I got up at six this morning to say goodbye to my mother-in-law and went to bed for another three hours.:D Carol took her to the airport in Denver. It’s been a long six weeks but I think she enjoyed her stay here.

      The driveway is going to stay empty, too. We’ve finally found a taker for our old car, the Subaru Tribeca. Our daughter and her husband are taking it. Carol is going to leave it in Denver today and take the limousine back. We will miss this luxury car. Compared to our new Honda Element it was unbelievably comfortable. Since one of our sons bought both for us we had to give one of them back. Too bad the power chair did not fit into the Tribeca.

    • Anonymous
      June 30, 2008 at 12:40 pm

      The whole family is together at St George Island FL for a vacation. For the past thee days we have had rain to the north, rain to the south, rain to the west and rain to the east. It looks like today is the day that it will rain here. So we will have the whole afternoon for “quality” time together…:D

      JoJo hang in there. Remember, if they put bumpers on cars you are supposed to use them. :rolleyes:

    • Anonymous
      June 30, 2008 at 12:41 pm

      [FONT=”Comic Sans MS”][SIZE=”3″]Oh poor kid,
      When i first started driving again i drove with my hand under my right knee so that i’d be able to pick my leg up and move it to the brake pedal, back in the day i always drove a stick shift, now that would be impossible!
      It [B][I]will[/I][/B] get better, never give up! You just got confused and that happens to everyone driving a car they aren’t familiar with, especially if someone is with them in the car.
      Cheryl, i’m a night owl too and so i suppose i could consider myself a morning person if we’re talking 2 or 3 in the A.M. ๐Ÿ˜‰ Most of the talking i do around the house is to the cats, but have lately found myself talking back to the TV.. yikes maybe i should get out more??

      Emma and JudiZ, Cheryl and Shirley, think we’ll all fit in Norb’s ride? Norb can drive, we’ll work the pedals for him and give Carol a break ( and quite possibly a heart attack, i suspect) so maybe not.

      i’ve never seen a cicada, are they like grasshoppers?
      You poor guy, i remember traveling thru Texas on summer nites and how the crickets were so thick you couldn’t avoid crunching them under foot. they were even all over the gas pumps, ick!
      You have been thru so much lately, i hope that something really good happens in your life very soon. Like Norb says, the grieving process is different for everyone, don’t try to tell yourself you should be “over it” by now, let it out and don’t try to hide it, it’s our way of healing, and if some folks don’t understand, they aren’t worth messing with.
      We love you, ya know and you’ve always got us.

      It’s another beautiful day here in PA and i’ve weeds to pull and plants to plant, but am too lazy to do anything but sit here and gaze out at the sheep next door
      Take care ya’ll
      Alte Fledermaus

      P.S. Norb, you [I]are[/I] driving un less that”s Obi Wan Kenobi in that power chair?:D [IMG]http://i253.photobucket.com/albums/hh47/oldbat2ccats/JetWhlchr.jpg[/IMG][/SIZE][/FONT]

    • Anonymous
      June 30, 2008 at 12:43 pm

      Norb, If it’s too quiet you could always have the MIL come for an even longer visit!!!!!!!

    • Anonymous
      June 30, 2008 at 1:12 pm

      Sounds like things are going well for everyone.

      Well, we had a new water heater put in on Wed. and yesterday morning it shorted out so we have been without hot water for a couple days now. The plumbers were here this am to fix it but didn’t have the right parts so had to go back to town and hopefully they will make it back out to the farm before the end of the day. It is our July 1 holiday tomorrow so no one will be working. Can’t imagine a couple more days without hot water.

      Been watching the news and seeing all the flooding and levies breaking in the midwest. Are any of you affected? Been thinking about everyone and how horrible it must be to have this happen and loose so much personal stuff. Thoughts and prayers going out to everyone. Let’s hope this rain abates for you for a while.

    • Anonymous
      June 30, 2008 at 1:58 pm

      [FONT=”Comic Sans MS”][SIZE=”3″]Janet,
      i know what you mean! My spring dried up 2 years ago and was living without running water for a bit over a year.
      I collected rain water and heated it in an electric teapot, got quite adept at mixing it and taking little ‘cat baths’ while i tried to save up the money for a well. Good thing i had one of these…….

      When i got sick last summer SigOther came out and had a well dug for me and have been trying to remember how in the Heck i managed without! The water has a sulfur smell but i don’t care, to me it’s Manna from Heaven, besides back home in California people paid big bucks for sulfur baths so maybe i should open a Spa?
      I think you’re right that we should count our Blessings, since people in the MidWest seem to be getting hit with everything about now.

      Norb, was just looking at your Brag Book The Grandkids are adorable.
      You mentioned that you’d had Wienerschnitzel, i want to know who did the cooking, can i have the recipe? Pleeze?
      That’s another thing i miss about Germany
      Should i order that next time i’m in The Tavern? I like mine with lemon and those wonderful fried potatoes, makes my mouth water just to think of it, Yummmy. [/SIZE][/FONT]

    • Anonymous
      June 30, 2008 at 5:13 pm

      Oh how I remember those days!! I didn’t have running water for about 9 years. Well, I had running water…I ran out to the well at the barn and got it!!! It was a chore to do anything like laundry, bathe, etc. Then when our youngest came along, we found some money..well the bank found it and made us pay it back!…and put the system in. At least back then, I was set up for it with huge boilers for the stove to heat the water in, but now I have a small electric kettle. By the time I get water heated for the tub, I’ll be too tired to bath.

      The plumber did make it back and I have hot water again. Let’s hope it lasts….

    • Anonymous
      July 1, 2008 at 1:05 am

      Hi everyone. Let’s see if I can remember all I wanted to say. Hi Shirley-I have been reading these forums on and off all day. Had an energy spurt this morning and no headache and didn’t pace myself, and I know better, had no energy except to sit here and read about all of you rest of day.

      Old bat-it looks a little tight to all squeeze in with Norb and ObiWan, but I’m game. Your “outdoor facility” looked alot like back home on the farm when I was a kid but we didn’t have a lean to on the side. Had to prime the outdoor pump everyday for our water and bring it into the kitchen-it was hard water but it tasted fine to me. Played alot by myself as a kid, my sibs are 7 & 11 1/ years older-think maybe that’s why I am comfy being alone, plus I talk outloud sometimes?

      DustDemon-hang in there and remember what we said-takin it a day at a time.

      I have a new rhyme-rain pain…..we don’t have the flooding in this part of Michigan, other than the usual lowland areas of homes that flood every spring when the ice melts. But we have had so much rain every day it seems that no matter what I take or do I just plain hurt.
      The first series of 4 days of home ivig worked better-I really think the sharp intermittent pain in my legs has lessened. No headache today:D ๐Ÿ˜€ ๐Ÿ˜€

      Norb-I read your WWII story tonight-incredible pictures and heartbreaking but heartwarming story of your family’s strength and courage to survive. And you still survive, you and Carol, and I am just getting to know you and I think you are an incredible and inspirational man! And please, I am not patronizing you but you exemplify what we do to survive as children and how our role models teach us to carry both strengths into adulthood-I have not read one story about any of you that isn’t filled with pain, struggles and triumphs.

      Thank you again for referring me to this site DustDemon-I am so grateful to have friends that understand.

      Best memory of childhood-riding on the tractor with my dad up to the feed mill and picking out the next feedsack for my next jumper.
      Worst memory of childhood-gathering eggs-those hens were a mean bunch of women!!!!! I think I still remember every peck….got even with them-my cousins and I played tag on the henhouse roof-those hens didn’t lay eggs for a week–course we got in trouble with mom and dad.

      Good night everyone. Hope we all have a better day tomorrow.:) Emma

    • Anonymous
      July 1, 2008 at 7:12 am

      Norb, I love you little movie clip or whatever you call it….that is cool. I cant or should say really, havent TRIED yet to post pictures…not to mention a movie.

      Yes, Jan, I am affected by the weather that has made national news…however not the levee issues. We have had the strong winds of 100mph destroy many homes and trees, and killing two 18 yr olds. Myself personally, I have not had a damaged home or flooding but my neighbors and friends have.

      Looking forward to the 4th…will have a four day weekend. Hubby is having his knee scoped so we arent able to do the vacation, but, that’s ok.

      Too much going on right now anyway.

      I’m going to talk to him about the symposium. I’d love to meet everyone, too.

      have a great Tuesday.


    • Anonymous
      July 1, 2008 at 7:20 am

      one more thing to add…
      my sister lives in Peculiar Missouri now…one of her many stops along the way I think…but, shortly after moving in, the house flooded in the night…leaving things floating around on the floor. The water was up to the countertops. She lost everything. Including her little Audi mid life crisis sportster.

      She rented a car but brought a pick up home to Omaha…leaving the rental in Missouri. While she was here, a tree landed on her rental.

      SHE was with me during that storm the other night and I just knew a tree was going to fall on us. It didnt, but they were coming down all around us…and with the black cloud over her head, it was a MIRACLE we survived.


      I’m going to the OB dr today…a second follow up from the hospital…this is a second opinion b/c the first one I saw…one that I recently switched to, ticked me off…and there is nothing I like more than firing a dr that wont listen to me !

      well, not really…but I do move on and find a better dr.

      It’s gonna be 90 and humid in Omaha today….feel sorry for those without power. Especially the elderly and disabled.

    • Anonymous
      July 1, 2008 at 12:26 pm

      Wow, this thread is sure taking off. I am having a hard time keeping up with all the posts……….

      Back again one hour later. Carol had asked me to come outside and sit on the patio to keep her company. She has been digging around relocating sprinkler heads and replacing one with a drip system. At the end she looked like she had been in a mud wrestling contest.

      [B]OldBat[/B], there are several variations for Wienerschnitzel recipes. Here is a link to one that comes closest to what I know:


    • Anonymous
      July 1, 2008 at 4:29 pm

      [B]OldBat[/B], I forgot to tell you what I like with the Wienerschnitzel:

      Frischer Gurkensalat

      1. Peel Yukon Gold potatoes, cut into quarters and boil in salt water for 20 minutes
      2. Hunter gravy comes in a package, add a slosh of wine
      (we actually prefer green peppercorn gravy which is not always easy to find)
      3. Slice cucumbers and make your own dressing from vinegar, oil, water, salt, pepper and some sugar plus fresh herbs if you happen to have any (I prefer this over commercial dressing any time)

      Yummy, this made me really hungry. Carol, can we have some soon? She was listening in and commented: “when are you not hungry?”

    • Anonymous
      July 1, 2008 at 5:15 pm

      Norb-thank you for the recipe and meal idea-am going to make that next week. Really does look yummy!! Did Carol make you something to eat? Emma

    • Anonymous
      July 1, 2008 at 5:35 pm

      Norb-Actually old bat asked you for the recipe but I made a copy. You are getting too many women asking you questions, huh? Maybe when she gets out of the tavern, she’ll come to this thread and see the recipe too. Emma

    • Anonymous
      July 1, 2008 at 5:38 pm

      Today is Canada’s birthday so we are all on holiday but as usual around the farm, this ain’t no holiday!!! Hubby helped me put a huge red rock in front of the house this afternoon and now he is out trying to bale up some hay. We have some kind of weevil in our alfalfa so need to get it down and kill off the little critters. Add to that that we got about 4 inches of hail 2-3 weeks ago and there isn’t much there to hay.

      There is a huge forest fire in northern Saskatchewan the last couple days and two towns have been evacuated. There is a strong north wind blowing today so we are blanketed in smoke. Hard on anyone who has allergies.

      Was thinking of tracking down some fireworks displays tonight but with this wind and the dry conditions there isn’t too much going around. We have had rain but it was so dry that it just soaked it all away. Stacey, sorry about your sister losing everything. It is a tough time when things like this happen. Will say a prayer. The fortunate part, even though it is hard to see sometimes, is that she is okay and still healthy. Take care everyone.

    • Anonymous
      July 1, 2008 at 7:28 pm

      Jan, I hear you…we farm in northern Il. Always something to do. We have had way too much rain and will loose a some acres of corn at harvest. All we have to do is look at pictures from Iowa and we count our blessings.
      July 1st! Where did June go? It’s been so cold and rainy I feel like we got cheated out of springtime. So we stripped down the Jeep Wrangler, good weather or not, and once the load of hogs are gone tonight we will go out for what I affectionately call “wind therapy”. Top down (on the jeep that is) and all back roads!

    • Anonymous
      July 1, 2008 at 10:56 pm

      [QUOTE=Emma]Norb-Actually old bat asked you for the recipe but I made a copy. You are getting too many women asking you questions, huh? Maybe when she gets out of the tavern, she’ll come to this thread and see the recipe too. Emma[/QUOTE]
      Sorry, had too much wine. Fixed it:D

    • Anonymous
      July 2, 2008 at 10:51 am

      Well, the smoke has subsided today but over 1000 people have been evacuatied from three communities and more will need to go before the day is over. I sure feel for those folks.

      My hubby called after I posted yesterday and asked me to bale so that he could haul the hay home. I love being out in the field so off I went and enjoyed a couple hours alone in the tractor. Looking forward to cutting the alfalfa as I love the smell! He lets me mow the hay and he can get some baled or hauled home.

      Planning a big bash on Fri. for my husbands 55th b’day (his b’day is actually Sat.). We are planning a BBQ so praying for good weather. We live in a small house and no way can I fit everyone in here…but the weather man is saying clear and sunny.

      Jaydee, never seems to be a happy medium when it comes to farming and weather. It is either too wet or too dry. We are doing the too dry thing this year with cold weather to boot. We were laughing because it is the beginning of July and we’ve had 2 warm days now:D Hope you are able to harvest some of the corn.

    • Anonymous
      July 2, 2008 at 12:18 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Norb,
      Thanks for the recipe’s, will try them out when am feeling energetic enough to do more than simply dump some prepared salad into a bowl ๐Ÿ˜‰
      Would be nice with a small glass of your Scuppernong Wine. i remember having some Muscadet from an oex boyfriends home region in France and i think the tastes are similar, except maybe the Muscadet is a bit sweeter?
      i too hope Carol fed you!
      Jan, Glad you have hot water again, sounds like hard but enjoyable work you are doing up there on the farm, i must send some rain up your way.
      Emma, had to leave the tavern early last nite, gotta go to work today and ther’s no drinking allowed within 12 feet of the aircraft ๐Ÿ˜€


      Red eye to Sao Polo, short layover and back again Wed. AM, see ya’ll then
      Try to stay out of trouble while i’m gone, ‘kay

    • Anonymous
      July 2, 2008 at 12:58 pm

      [SIZE=3]Can I go to, I’m tired of sitting around here, haven’t felt like doing anything due to NP & right shoulder pain. We have a holiday coming up on the wknd. That means a 3 day wknd. Hooray ![/SIZE]

    • Anonymous
      July 2, 2008 at 5:15 pm

      Hey old bat…Sounds like you work for an airline or something, So are you the pilot or the flight attendant? I travel all over…maybe we’ve met but just don’t know it!!! What air line are you working for.

    • Anonymous
      July 2, 2008 at 5:51 pm

      [QUOTE=oldbat]Would be nice with a small glass of your Scuppernong Wine. i remember having some Muscadet from an oex boyfriends home region in France and i think the tastes are similar, except maybe the Muscadet is a bit sweeter?
      i too hope Carol fed you!
      I’m not familiar with Muscadet. I don’t think it tastes similar to Scuppernong. According to Wikipedia “Muscadet tends toward bright citrusy (lemon, lime) and minerally notes (flint, steel).” The Scuppernong grape is also called Muscadine. It is native to this country and does not grow in conventional bunches but individually on the stem.
      Carol always feeds me. Today it was a delicious submarine sandwich ๐Ÿ˜€

    • Anonymous
      July 4, 2008 at 5:19 pm

      Old bat—–12 feet of the aircraft????? You gotta explain that. I have missed talkin to you guys and gals. 3 days without power….any of you farmers out there-when I was young and on the farm the government(or some agency) paid my dad NOT to raise wheat….felt badly for my dad, think that was when he stopped loving farming-too much control from outside agencies, plus like you have already said it is either too wet, too dry, too hot, too cold. I also love the smell of fresh cut alfalfa or hay and loved helping with corn-run over by the corn planter when I was 5-an accident. Anybody out there raise Yorkshire hogs? Have a good day everybody. Dust demon, hope your NP and shoulder pain are better. I hurt all over today-blaming it on 3 days without power, had to improvise in everything-think my body is rebelling.:( Emma

    • Anonymous
      July 7, 2008 at 11:09 am

      Emma, we live in Canada and the gov’t here paid farmers to not raise grain as well. My father in law was one of them. Ewww, run over by a huge machine. You must be okay though?

      Well, we had the most awesome party for my husband. We had a huge turnout and everyone had a blast. We had a BBQ with a weiner roast if you wanted to. We sat around the fire until 2 am. It was the most gorgeous night we have had in months. I sat outside with a sleeveless blouse until 2 am and was not the least bit chilled. It was a great day healthwise. I think the good lord was smiling down on me. I had no pain in my feet and my legs were strong and able to carry me up and down the stairs with no trouble. I was so thankful for that! I had worried that it would be difficult but it was great! I had numbness and tingling but was able to almost completely ignore it and that was a blessing. We ate, drank, laughed and enjoyed each other. I want to do it again…..

      How was your long weekend everyone? We celebrate on the 1rst in Canada and you on the 4th, so hope you all had a great day.

      Heading in to town today to do up some odds and ends, pay the bills….yuck…and visit our daughter. It is a rainy day so my husband is home from work and will probably come with me. Have a great monday everyone.

    • Anonymous
      July 7, 2008 at 8:33 pm

      Sounds like you had a great party, Jan. We had a busy day today. We had the leaky hydraulic door opener checked out in a nearby city. We have to go back Wednesday to have a replacement put in. Afterwards, we went to the Department of Motor Vehicles to finally get a license plate. It turned out that we have to get the old handicap one transferred. Our daughter in Denver has our old car but did not registered yet in her name. This means we have to go to Denver to get the plate. What a pain. On top of that, they based the annual fee on the total value of the car including the handicap modifications, $46,000. We are going to appeal that just like the excessive sales tax we paid earlier. We are still waiting for an answer from the state tax office.
      Other than that, we are good.:D

    • Anonymous
      July 8, 2008 at 8:21 am

      After constant spring flooding we didn’t think we’d ask for rain for a long time.
      But summer arrived and it was getting pretty dry. Since we farm, we watch the weather constantly. Had a good old fashion mid-west thunderstorm last night which brought us a good rain.
      This also means my husband will have less to worry about when we head north to the University of Wis. Hosp on Thursday. The staff has scheduled tests all day, knowing it is a fairly long drive. With the price of gas we are hoping not to have to make too many trips.
      I’d be happy just to get some questions answered by the end of the summer.
      As a teacher, that is coming too fast!

    • Anonymous
      July 9, 2008 at 11:49 am

      This morning I finally finished getting all the paperwork together to apply for a reimbursement from Honda for the disability modifications to our car. If all goes well we should receive a $1000 check in about four weeks. This afternoon we have to go to Loveland to have the replacement hydraulic door opener installed. After that we might see the science-fiction movie Wanted. Not much else new here.

    • Anonymous
      July 9, 2008 at 12:00 pm

      That’s great, hope all goes well.
      My check in – I’m enjoying one of my favorite sandwiches for lunch, a ruben. Don’t get it to often, the blood pressure and saurkraut don’t mix well.
      It’s a better day than yesterday, I feel better and it’s not raining.

    • Anonymous
      July 9, 2008 at 3:01 pm

      Hi everyone-tis a sunny day in western Mi and the humidity finally dropped. Saw my neuro doc today(actually saw his PA)-tweaking my ivig frequency and rate–the PA not prickly like my doc-I told her everything I needed, got copies of my lab work, mentioned you guys several times and told her that after I get done looking up all the www. sites, reading all my literature that the forum sent me, and your continued support, I will know more about cidp than she does, and she laughed and said I was right.:) Having a good day so far, knock on wood, legs feel heavy as a rock and can’t walk far, but all the side effects and pain are gone from my old ivig brand. Emma

    • Anonymous
      July 9, 2008 at 9:33 pm

      [FONT=Palatino Linotype][SIZE=3]Hi Everyone: This has been a day of painful cramps for me, the lyrica has helped on the stinging pain. But it doesn’t seem to do much for these cramps, I had a bad one in my lower left leg this morning that woke me up. When that one finally eased off I had this nice pain in my left foot, oh & if that wasn’t enough I also got cramps in my left hand. [/SIZE][/FONT]
      [FONT=Palatino Linotype][SIZE=3][/SIZE][/FONT]
      [FONT=Palatino Linotype][SIZE=3] That also left my hand hurting, I would just love one day without this neuropathy pain. Every time it rains here like last night, the pain really unloads on me from something Oh well I’m just trying to ignore it all right now. I wish this for everyone here a better day, with no pain.[/SIZE][/FONT]

    • Anonymous
      July 10, 2008 at 11:56 am


      I may be away tomorrow so just want to say I will be thinking of you throughout the day.

      I too am getting a lot of cramping and have never had these kids of cramps before. ๐Ÿ™ I am not sure what is going on. I had a doozie last night. My whole left leg was in such pain and I didn’t know what to do with it. It is not a cramp like a charlie horse that you can just stretch out. It was the whole leg in a cramp of some sort so I ended up getting up and walking a round a bit. They seem to happen when I am sleeping or just as I fall asleep and am starting to relax. I have never attriubuted them to weather change but may watch that, as we are in a change right now…Hmmm…anyone have any thoughts on the cramps?

      I have to be away for work next week so need to get my act together around here. I usually leave goodies and stuff in the deep freeze for hubby so he doesn’t have to come home from work and start cooking but I still haven’t got to it. See, I’ve been spending too much time in the tavern:D

      Talk to you all later.

    • Anonymous
      July 10, 2008 at 7:22 pm

      Jan and Dust Demon, Have you had any bloodwork lately to check your potassium especially? Some of the cramps sound muscular, but I went on a potassium supplement and my cramping reduced. Just a thought from my corner. Emma

    • Anonymous
      July 10, 2008 at 11:03 pm

      Had the bloodwork and have a magnesium deficiency. Take a hefty dose of that. Maybe we should add potassium. Love bananas so that would help.

    • Anonymous
      July 11, 2008 at 1:25 am

      Hey Jan, sounds like we’re in this together! At 2 am today, I awoke to the sound of my own screaming ๐Ÿ˜ฎ The inside of both thighs were doing the “crazy cramp dance”. I have never had this before or this much excruciating pain. Needless to say, I scared the wits out of my husband. The legs are still very sore tonite. I have taken more neurontin than usual plus an extra-strength tylenol. I know that weather can definitely have an effect on the nervous system but this?? There is still so much to learn about GBS/CIDP; I feel like a guinea pig ( at least they are cute ๐Ÿ˜€ )

    • Anonymous
      July 11, 2008 at 10:07 am


      The cramping has been awful of late. Sometimes, just lifting my foot to take a step (like getting into the shower last night!) sets a cramp in motion. I have gone off my Neurontin because I was retaining fluids so badly and gaining weight which I can’t afford to do. It certainly had helped but I am going to try to stick this out and not go back on if I don’t have to. I am not sure about Lyrica and what side effects it has. I can’t get drug coverage so it makes the choices limited in what I can afford. ๐Ÿ™

    • Anonymous
      July 11, 2008 at 12:09 pm

      I can’t imagine what it must be like what you guys have to go through. Maybe this sounds terrible, but with all my limitations being in a wheelchair and not being able to do things at least I don’t have the nerve pain that you do.

      Carol and I both had a bad day and night yesterday. I found out this morning that the reason she couldn’t sleep and cried all night was the bad test result. Maybe I didn’t admit it to myself yesterday but I was in a funk also. I felt there was nothing that really interested me anymore, nothing I could get into. At eight o’clock I told Carol I felt like eating something good. So we ended up ordering pizza and gorged ourselves and drank a bottle of beer each. As a result of that we couldn’t go to sleep. Carol got up and went back to the computer and I tossed and turned. Finally at 1:30 I took a Temazepam. It must have been 2 a.m. when she came back to bed. She was up again at 6 a.m. Well, we’ll get through the day somehow. At times like these being retired and not being forced to go to a job can be a curse. Anyhow, we are thinking about going to an open air jazz concert in town. I also want to go to Home Depot to find some flat rocks to put on the drop off between the driveway and footpath to the back of the garden. This way I will be able to go around to the back with my power chair.

      Now I’m wondering if this blood test result was just a bad reading since it’s almost off the chart and doesn’t make sense at all. This particular one is pretty tricky and it is easy to get a false reading. I guess I just have to wait for the next one.

    • Anonymous
      July 11, 2008 at 12:10 pm

      Jan-likely your income is too high to get free drugs from the companies? I think that is so stupid because you have too much income to get free, but can’t afford to spend all your $$ on drugs either; I “fall through the cracks’ when it comes to so many other prograns, like food programs, getting my medicare premium paid, etc. because my income is “too high”, by about $100-200.00 a year-it’s all black and white to those people! As to the cramping-I get that in my foot like you do and in my calves, but I talked to my pharmacist about it and the over the counter potassium isn’t a lot, but honestly, it has helped me-I get the 595mg. caplets and take 4 a day. There is nothing worse than finally getting to sleep and suddenly instant sreaming(like Jeri said) cramping pain when you are sound asleep!! Emma

    • Anonymous
      July 11, 2008 at 12:26 pm

      Norb-when can you have the test again? That would be something if the test was a false positive. Sounds like you and Carol have made good plans for today. And your garden sounds wonderful. Yup-nerve pain is no fun-have a good day now and then that I feel like I could work again, and I clean my home and run errands and push to the max(forget the rest bit) and the next day I can’t even get out of bed hardly-my nerves are screaming and the rest of my body says”nope, lady you did too much yesterday and you are going to rest”, and I guess then I realize I can’t really work my old job. Still do volunteer work when I can and send boxes of goodies to the military and try my darndest to accept my limitations and the pain, but it is hard. I hope you and Carol have a much better weekend. When you don’t feel like doing anything, write me and say hi. Sending you a big hug.:) ๐Ÿ™‚ Emma

    • Anonymous
      July 11, 2008 at 12:40 pm

      Norb, I follow your other thread for the rituxen…It is so involved and I get easily lost. I was sorry to see your results arent what you’d been hoping for.
      It’s my turn to tell you, dont give up. Dont ever give up.
      Carol sounds like such a gem and you are lucky to have a spouse that is so in to you and the research of your illness. You sound like a very happy couple…

      I am having nerve pain myself today. UG. It doesnt happen too often but came on last night. My legs are just killin me and it’s in my hands today. It’s an all over, traveling sharp ache. So hard to describe.

      I got to work at 4:15am this morning…YIKES. I couldnt sleep so I came in. I havent slept well all week- maybe 4 to 5 hours solid… and have been here by 5 each day. I dont get to nap and have a busy world so…the result…more nerve pain, I’m afraid.

      I get to leave at 12:45…but have a dr appt so it’s not like I can go home and rest.

      It’s 95 here today with heat index above 100.

      I’m tired..have more to say but need to stop here…

      well wishes to everyone…good luck on those cramps ladies…
      Norb…enjoy tonite.


    • Anonymous
      July 11, 2008 at 2:12 pm

      Thank you guys for all your support. You know me Stacey, I really won’t give up. We all have to be down once in a while which makes coming out of it feel so much better. Yes I really do appreciate Carol. She’s such a good friend and we are very happy together.

      Emma, the next blood tests will be done next month when I see the oncologist again. Yesterday I was given the result over the phone. I am going to pick up the printout today to see with my own eyes. There’s also an alternate test done every time to confirm the results. It is SGPG IgM which cross-reacts with MAG. That is of interest now.

    • Anonymous
      July 11, 2008 at 3:48 pm

      Terry I hope you have gotten some relief from your pain, Hun. And everyone else for that matter!!
      Norb, Please give Carol a Huge hug from me, just for being such a Wonderful friend, Great Supporter and a Pillar of Strength! I’m envious of You two!
      This past monday I had an appt with my pcp, he suggested I do alittle more fishing(my way of relieving stress) so I followed his suggestion 2 days this week. Weds went well-just sore but still able to get around and get more done at home. Thursday, I took my kids with me, we had a Great time, caught all sorts of fish and even brought home a few to eat. Thats where things steadily went down hill. I’m in another relapse, severe weakness, severe pain-in the back, extremeties etc. Just sitting here typing with one finger and making mistakes with every word i type, is very painful and tiring, but I just have to get my fix!:D My pcp just put me on a pred burst to try to get it under control and told me no fishing and rest all day:( I think I’ll go over to the tavern and relax with a few liquid stress relievers. Take Care.

    • Anonymous
      July 12, 2008 at 9:46 pm

      Hi everyone. Sounds like we are all in the same boat. Norb, and Carol too, I hope there is an error on those tests. It is hard when the news is not good and not what we wanted to hear.

      Emma, I live in Canada and only some of our drugs are subsidized. We have private insurance to pay for them and then only pay a nominal fee, but I have been denied coverage because a lot of the drugs used for neuropathy pain are also used for migraines (pre-existing condition as is GBS) so they only cover me for drugs not related to GBS, migraines and arthritis. (I was diagnosed with arthritis pain years ago but they now believe it is GBS rsiduals but now really have arthritis so won’t get coverage). Who said the Canadian healthcare system is great? Some of it is but not everything….:mad:

      Am going to add potassium to my “diet”. I also have discovered that if I forget my alphabet vitamins (B,C, D) that I have a worse day. ๐Ÿ™ I try to take them every day without fail, but in the summer when I get busy, I tend to forget. Need to tie them around my neck, I guess.

    • Anonymous
      July 13, 2008 at 8:55 am

      [FONT=Georgia]Good Morning from rainy ky, one good thing I got all my mowing taken care of yesterday. I noticed something when this neuropathy, I was upset on Friday because of my wifes birtday. The nerve pain was really bad & the Lyrica, didn’t seem to be very effective it was just a bad day totally for me. [/FONT]
      [FONT=Georgia]The stinging pain needle like pain was really fired up & I got a numerous amnt of cramps in my left foot that ran up my ankle halfway to my knee. As if that wasn’t enough I also got one bad one in my left hand, when it quit it left my hand hurting. Well I have one more bad day to deal with, that’s July 27th that will be 1 yr since I lost Debbie. I hate this neuropathy it is literally draining all my energy, I just stay tired & worn out all the time. Rainy & damp days just seem to make this the pain really kick in, like today. Just very bad today, anyway I’m just tolerating it today. Wishing Everyone a Good Day Today if at all possible.[/FONT]

    • Anonymous
      July 13, 2008 at 1:26 pm

      dustdemon, I hope you start feeling better soon and get some sun, too.
      I had a scare the last few days. Carol was having terrible abdominal pain. About 20 years ago when she was having pain like that it turned out to be a tumor in her colon. Fortunately, it was benign. So last night I was fearing the worst lying in bed awake for hours. She finally took some laxative and was going to the bathroom all night. This morning she is feeling somewhat better and we hope that’s all it was.
      We went to the jazz concert in town yesterday instead of Friday because she was feeling worse then. We also did not go to Home Depot to get stones for our driveway/footpath because she wasn’t feeling good. Anyhow, it was a fairly pleasant afternoon listening to the music and watching the kids play in the many water fountains that kept squirting up from the ground every minute or so. We also walked around a bit to look at the sidewalk sales and then stopped at an outdoor restaurant to have a beer and a sandwich.
      Have a nice Sunday everyone.


    • Anonymous
      July 13, 2008 at 5:02 pm

      Bad start today. Husband is painting , everytime I turned around I was in his way. He had four doors propped up in the garage he and my niece had painted.
      When he checked to see if they were dry enough to turn and do the other side they were still tacky. I got the bright idea to send my niece out to open the side garage door so the air could flow through and dry them faster. Just as she started to open the door my husband sees her and said “don’t open that door,” she didn’t hear him and when she opened the door, he also had a door propped against the inside of the garage the door she opened. Those four doors fell like giant dominoes That was the straw that broke the camels back. He had already told me I was in his way in the bedroom then chases me out of the kitchen because he needed the sink. I got upset and stared crying.
      I told him I was sorry I was in his way, he gave me hugs and a xanax, I got hugs from my family that came over and I finally settled down .
      The rest of the day has been good!

    • July 13, 2008 at 8:59 pm

      I suspect us women are in our husbands way cidp or not. Mine always tells me I’m in the way, and I’m the one who does everything! Go figure. Hey at least you got some hugs and a xanax. Not to mention that is a story for the books you guys will laugh about in the years to come!!! Glad the rest of your day is going well.
      Dawn Kevies mom

    • Anonymous
      July 13, 2008 at 9:38 pm

      [QUOTE=Dawn Kevies mom]Shirley,
      I suspect us women are in our husbands way cidp or not. Mine always tells me I’m in the way, and I’m the one who does everything! Go figure. Hey at least you got some hugs and a xanax. Not to mention that is a story for the books you guys will laugh about in the years to come!!! Glad the rest of your day is going well.
      Dawn Kevies mom[/QUOTE]
      You gave me the first laugh about those doors falling. My husband and niece laughed with me when I read what you wrote.
      Thank you

    • Anonymous
      July 14, 2008 at 9:08 am

      The only good thing about being in the way is that you could go away…Yup, when that happens I get myself a good book and find a nice quiet place and read. Do I feel guilty? Only for a moment:D I guess it is about knowing what we can do and accepting what we can’t and finding that little place where we are never in the way.

      I have to get to work early todaya s this is set up so gotta run. talk to you all tonight.

    • Anonymous
      July 14, 2008 at 1:42 pm

      Usually we get along fine, but sometimes we get into each other’s way. We are both firstborn and headstrong and competitive. Just like now: a few minutes ago Carol kicked me off the laptop (she was listening in on me again using a microphone and commented “don’t be a whiner”). What I was going to say she decided to redesign her own website and all that stuff is on the laptop. Now I am on the desktop computer I generally don’t like to use. I can’t use the mouse and the touchpad I installed is a bit awkward.

      Fortunately, I finished the redesign of our Peace Corps website yesterday. I’m using a new background, “wood”, and installed a new banner and new buttons. I still like the music that comes with the different pages. The text could use some editing. When we first wrote it we often were in fairly difficult situations. But that can wait. [COLOR=”Blue”]peacecorps.ourbluemarble.us[/COLOR]

      It’s a nice day today. After lunch and after my nap we will be running to the lab to pick up a copy of my blood test results. I’m hoping that the anti-MAG IgM reading was not correct.

    • Anonymous
      July 14, 2008 at 5:34 pm

      Norb, got every one of my fingers crossed for you and that lab test. The other day when you mentioned you got the lab work over the phone, I painfully remembered that was how my husband got his news about him having cancer-we cried so long, and then I was really mad that a dr would be that insensitive to break that kind of news over the phone. Well that is past news and now I am crying again.

      Terry, I will do my best to support you on the 27th. I have been in those shoes and I really do know the pain you are having.

      Jan, I hope you had a good day at work. Come see me at the tavern-only place where I can stop crying.

      Shirley, I have to agree with Dawn and glad she helped you laugh. I am a very visual person and as you wrote about the doors, I could see it happening. Not funny at the time, but looking back, it will bring you a laugh or two.

      I was having a good day, but then I vacuumed and the pain up my legs crippled me and I hobbled to this computer to read and relax a bit. Went on the NTI site and I don’t know if I qualify for anything yet-bad for self esteem. Miss my husband-wished I had someone telling me I was in their way. Worried about getting my ivig again tomorrow. Well isn’t this a crappy “just checking in” story. More tears coming, so will catch you guys tomorrow. Emma

    • Anonymous
      July 14, 2008 at 7:20 pm


      How sad for you. What crap we face in life. But each challenge makes us a better, stronger person. So let your self cry, grieve for a bit and then come for a drink.

      Considered yourself virtually hugged. Wish I could do it in person.:(

    • Anonymous
      July 14, 2008 at 7:40 pm

      Jan, your so right, I went out to the yard swing with my niece and relaxed for awhile.

      Norb, good luck on those lab resilts.

      Emma, I’m so sorry you are sad, I didn’t know until I went back and read your post that your husband had passed. Hugs and better days.

    • Anonymous
      July 14, 2008 at 10:50 pm

      Emma, I’m so sorry you lost your husband. I had no idea. It must be difficult for you to read all our posts talking about our spouses. If you were here I would give you a big bear hug.
      Take care [IMG]http://www.ourbluemarble.us/forum/hug.gif[/IMG]

    • Anonymous
      July 15, 2008 at 8:20 am

      Norb, hang on to those bear hugs, now that we know you give them your going to have to pass a lot of them out. Can I have one now?

    • Anonymous
      July 15, 2008 at 11:25 am

      [FONT=Palatino Linotype]Good Morning Norb & everyone else here, having a little problem with numbness. Running from my little fingers back into the lower part of my hands today. The one thing about the numbness from this neuropathy, I don’t talk on the phone for very long. Or my hands will numb out, I’m just curious if anyone else has that problem. Oh well Just Have a Good Day if You Can ![/FONT]

    • Anonymous
      July 15, 2008 at 1:57 pm

      my hands get numb when on the phone, too.

      Emma I am sorry about your husband.

      As for my husband and I …I dont know that I so much get in his way…I guess I do…but my problem is I cant hear half of what he says. I am 5’4 and he is 6’4 and when his head is turned and he says something…mumbles rather…I cant hear it ! I get blamed for not listening. And so it is. :rolleyes:

      I am so tired today. I’m at work and just barely staying awake. It doesnt help that I’ve been here for 17 and 1/2 yrs and I’m starting to burn out real bad. It also doesnt help that anything good or extra I do goes unnoticed. I just really need to be thankful for a job and the ability to come here.

      Tomorrow I have to go for a test on my bladder. They are going to put a catheder in…gee, cant wait…and test the potassium. Not real sure why they are doing this. I have an ovarian cyst that needs to come out and the OB dr wanted to rule out something with my bladder first. Why, I dont know…I have no bladder symptoms.

      I’m so tired of going to drs.

      It’s another HOT day in Omaha…sunny and 90 something. I’m sporting quite the tan this summer. ๐Ÿ˜€

      have a great day everyone.

    • Anonymous
      July 15, 2008 at 3:14 pm

      how could i forget to mention,

      I’m going to be a great aunt again…my other neice is now expecting her first!
      38 and a great aunt…
      my nieces are 28 and 25. The greats are 4yr and 18mos.
      My mom is watching over her unborn great grandchild…for sure !


    • Anonymous
      July 15, 2008 at 4:55 pm

      Just got back from the new house site…..the framers have started on the basement and will have joists and floor decking on tomorrow. Pretty awesome.

      I was able to go out there today, by myself, without any workers or my wife and two girls, and I just sat on a big pile of rocks (driveway gravel, but it was in the shade) and sat back and thought about the last year and a half. Pretty amazing time for me.

      I thought about our girls, first Olivia. She’s older and had taken on so much more responsibility than a 4-year-old should, it seems…..she helped me when I was recovering and now has to make sure that Daddy doesn’t go back to the hospital, even though the hospital has really good food all the time (that equals fruit snacks). She remembers so much more than I do about my stay in the hospital. About the time I get concerned that she dwells on it too much she’ll say something so off the wall, that I just laugh out loud. I thought about last weekend, when I was at my grandmothers house, Olivia, my wife and I playing kickball in the front yard.

      Then I just pictured my little girl, Jorja. Rambunctious and going full speed ahead [U][B]ALL THE TIME[/B][/U] – I thought about yesterday, when on that very rock pile that I was resting on today, Olivia had climbed up to the top and Jorja had “attempted” to follow suit, unsuccessfully, falling down and crying over skinned knees and hands. I picked her up to soothe her, but she fought me to get back down and attempted to do it again, and again, and again… I just watched, and smiled, and teared up, a proud dad. A dad looking at a chip off of the old block.

      Smiling, sitting on a cool rock pile, with my hands laced behind my head, under a nice white oak shade tree on a warm July morning. All the while, thinking about my girls, that’s just about my definition of Heaven. ๐Ÿ™‚

    • Anonymous
      July 15, 2008 at 5:23 pm

      Brett, your story made me feel so good inside, imagining how you must have felt and the memories you will have for years to come.
      Keep it up, it’s special, your a great dad.

    • Anonymous
      July 15, 2008 at 6:45 pm

      Shirley, I was thinking the same thing about Brett. What special memories we have of our kids. Also Shirley, today was better for me, so I got a hug for you too, after Norb.

      And speaking of hugs, thank you for the giant hug Norb. Bear hugs are my favorite.
      Not sure any of you heard about the rock and roll 3 day weekend concert in a small town in Mich. a couple of weeks ago, but there was a picture of a guy dressed up in a grass skirt and sign that said giving out free hugs; lots of other free things, I’m sure that went on during those 3 days; they were comparing it to Woodstock. Thousands of tents wall to wall on the hay fields-interesting to see when I drove by. Didn’t stop though; feel safer getting my hugs here instead.

      Terry-I don’t have that problem with my hands, but if I stand for more than a few minutes, both legs go completely numb. Somehow, we are putting pressure on our nerves with those actions and then we get the numbness. Can you try a headset phone or would a speaker phone help, then you would be hands free-has an echo when talking, but effective maybe for you.

      ConnorZmom-thank you for the kind words. I sure hope you don’t have to work 17 1/2 hours a day-no wonder you are burned out-I got tired reading about your hours.:( . Employers sometimes give little praise for what you do, but they are quick to criticize for what you don’t do. Hope your hours lessen up a lot. Need a hug? I don’t wear a grass skirt, but I give good hugs.

      Well about my day—no tears and no headache after my 1st day of a two day run of ivig-took 3 pokes to get my iv in and it went bad at the end, so my nurse pulled the iv out, and tomorrow will start over. I feel like I’m going to float away from drinking so much water, but if it helps, I’ll do it. Getting hot today(high 80’s) and supposed to be hotter tomorrow, but sunny.

      Thank you everyone, Jan too, for your hugs, kind words, and prayers. A few rough days coming up, but you guys are wonderful-just knowing you are here makes any crummy day better, and any good day great. Emma

    • Anonymous
      July 16, 2008 at 12:13 am

      Sounds like things are going well for all of you. Emma, you will get through this, difficult as it may be. I think Stacy said she had been at her job for 17.5 years so that made me feel better. 17 hour days would be too much. Brett, I really apreciated your post tonight. I had to say goodbye to my granddaughter that I am very close to. We have a very special and unique relationship, so when she leaves, it is so painful ’cause we never know when we will see each other again. Reading your post reminded me to not focus on her leaving but rather on the fun we had tonight.

      Her step mom dropped her off this am at 11 and she got to spend the day with me seeing what Grandma does for a job. After work we went down to the hotel pool where she swam for about an hour. Then it was back up to the room to clean up, do our hair and head off to Tony Roma’s for a big girl supper. We then went for ice cream and had a girl visit back at the hotel. so we did have a great time and I will hold that until I can see her again. All together, it was a great day.

    • Anonymous
      July 16, 2008 at 12:32 am

      Brett, That was sooo Beautifull!!!
      This morning my little man and myself went for a walk around a nearby lake. Its marked for walking and we made the whole 1 1/3 mile! It was a nice walk, I just wished he wasn’t having the childhood problems that he is currently going through. It just breaks my heart when he talks to me about his problems, but I just love it when he feels he can dump his problems on his ol’ mom!! Can’t wait for “our walk” tomorrow. even if all I can do is part of it, its going to mean even more to me. Man I hate these residuals!!!:(

    • Anonymous
      July 16, 2008 at 7:23 am

      Brett, your story is so very enlightening. I can picture the scenery…having been to your part of the country. Our children lift us up in a way nothing else can. My five year old knows too much about lung cancer and oxygen liters and tubing and nursing homes and hospitals. He spent every day with me for 6 mos taking care of my mom. He was even there, not in the room, when she went to Heaven. He talks of her often and it’s still so hard. They were very very close and he was her every reason for fighting. He told me just the other day, “Nana is always with us”. Sometimes out of the blue, he’ll say things like, “Nana is probably taking a nap right now b/c she always likes to nap in the afternoon”. He told me he heard Nana’s voice and that he smells her alot. In my heart, I know she is here with us and especially him.
      You have to wonder what his little mind is thinking and how he processes it all.
      When my mom was at the Hospice house, about three days before she died…we asked her to send us pennies from Heaven so that we’d know she was watching over us. You cant beleive how many pennies Connor finds and how absolutely elated he is when he does. It’s like Christmas time excitement. With all the incredible sadness I’ve had losing my mom, the one thing that has kept me afloat is my blonde haired, big brown eyed boy and his million dollar smile. Thank God for our children.


    • Anonymous
      July 16, 2008 at 8:28 am

      Good morning everyone,

      Shirley, Janet, Cheryl, and Stacey – I’m glad you liked the post, I really enjoyed writing about it. The sequel to that post is that after I got home last night, I realized that I had a HORRIBLE itching on my feet. I quickly ripped off my shoes and socks and there were no less than 8 chigger bites on my ankles and legs. I suppose if that’s the “cost” for what I had experienced relaxing and thinking about my family and how blessed I have been it was well worth it. Well worth it.

      Emma, I remember in the hospital once I had to have my PIC line removed and put in my other arm, but I also had to have some sort of infusion RIGHT AWAY so they had to start an IV line – after a full dozen failed attempts an older gentleman walked in and came over and started talking to me about how he was a flight nurse and such. He threaded the line in with little trouble.

      I mentioned to him that all of the other staff stated that my veins were in terrible shape, and that they “roll” making it really hard to thread in an IV.

      He quietly remarked that flying backwards at 250 miles per hour, threading an IV into the head of an infant who stopped breathing was much, much harder. I don’t think he was showing off, he was very quiet and what he said was for my ears only – I think he was just reminding me of my situation, and they are others far worse than I.

      I give great big bear hugs also. I usually squeeze my oldest till she utters some sort of gutteral noise telling me I’m squeezing her too hard.

      Norb, what’s the latest on your trip?

    • Anonymous
      July 16, 2008 at 9:33 am

      Brett, what are chiggers? Not sure I’ve heard of them. Must ba a bug of some sort, but not sure about them.

      Had a great day with my granddaughter yesterday. It will be hard not seeing her today. I miss her already but Dawn gave me a pep talk and I feel better about saying goodbye. Talk to you tonight. Emma, hope that headache wasn’t too bad and you’re ready to get going again today. Good luck with the IVIG today.

    • Anonymous
      July 16, 2008 at 10:28 am

      [FONT=Palatino Linotype][B]Jan you don’t know what chiggers are, we use to get them all time when I was growing up. Once you get one it’ll let you know very annoying, we got a lot of them from being out in tall grass & did they ever itch. Here’s what I found on chiggers, [/B]Tiny six-legged [B]chigger[/B] larvae attack campers, picnickers, hikers, bird watchers, berry pickers, fishermen, soldiers, and homeowners in low, damp area There’s more info on Wiki Pedia [URL=”http://en.wikipedia.org/wiki/Chigger”]http://en.wikipedia.org/wiki/Chigger[/URL] check it out. [/FONT]
      [B][FONT=Palatino Linotype]Anyway I still have the numb little fingers this morning, guess I’ll just try & live with that. At least the lyrica is controlling the stinging pain. Well Everyone Just Try & Have a Good Day ![/FONT][/B]

    • Anonymous
      July 16, 2008 at 12:29 pm

      Brett,you may know this since you know about chiggers. If you put a dab of nail polish on the bites it helps the itch. (Preferably clear polish) Put a fresh dab as it starts itching again.

    • Anonymous
      July 16, 2008 at 5:57 pm

      I have to brag here, too, not just in the “Tavern”. Carol surprised me today with the most delicious Thai meal I’ve had in a long time. Here is a picture to make your mouth water. below the list of what was in it, also the Thai names and in Thai writing (to show off)


      Fried Trout Fish with head and tail Thai style
      Spicy Papaya Salat with green onions and cut-up cabbage leaves
      Spicy Fish Sauce with Fruit

    • Anonymous
      July 16, 2008 at 6:43 pm

      That looks delicious! Here is a picture of a “sushi” cake I made my father for father’s day.

    • Anonymous
      July 16, 2008 at 6:57 pm

      How do you get the pictures to post right in the thread instead of as an attachement?


    • Anonymous
      July 16, 2008 at 7:44 pm

      Christie, upload your photo to a free service like Flickr. they give you a link you can include in your post using the picture icon above your text box. I increased the size of your picture and uploaded it for you. Right-click on it and “properties” to see what the link looks like.


    • Anonymous
      July 16, 2008 at 9:41 pm

      My just checking in is I am on holidays for 2 weeks. The first week almost up.

      Also last year at work I got a disable parking spot but 2 months later another person got a tag and arrives earlier then me so he uses it 90% of the time. I asked for another spot for me and 8 months later I still haven’t got it. There is a small sign waiting to be put on a post and the the emblem on the ground. The original handicapped spot is not of legal size so in the winter sometimes it is hard to park in the spot.

      Well yesterday I called the city and explained to the man on the phone my situation. He has on his computer the handicap spot in the front where the offices are but he didn’t know about the one in the employee parking lot. He told me it has to be a certain size and I told him it isn’t. I also told him that when I was asking again about my spot to the head security guy he told me to stop harassing them. 8 months come on I waited long enough.
      Well it seems there is suppose to be 1 handicap spot for every 50 parking spot and we have a big parking lot.
      He told me he was going to call them. But I think he was referring to the head office not the local place I work at. Will see. He said there were more then 1 issue he has with this.

      So when I get back to work in 12 days I am sure I will hear about it.
      I will keep you posted
      I hate my job so much anymore. After 24 years I wish I could find work elsewhere with the same pay.


    • Anonymous
      July 16, 2008 at 10:54 pm

      Sue, there is nothing worse than having to go to a job that you hate. I love what I do and feel so blessed to be able to do what I love. I couldn’t ask for a better job. I am in Saskatoon this week doing a training and got to spend time with my granddaughters. It is nice to see them as we never get enough time together.

      It is clouding over here and I suspect we will get rain. There was a tornado touch down not far from here today so hope nothing happens as I am always wary when I am on the road and staying in a hotel.

    • Anonymous
      July 16, 2008 at 10:55 pm

      Sue, I’m sorry about your job-after your holiday, I would keep on them about that parking situation-and really start harrassing them, like maybe a talk to that other person that you had senority on that parking spot? !!!!!

      ConnerZMom-sorry I misread about your job, but I bet those 17 1/2 years feel like 17 1/2 hours sometimes. I feel pretty lucky-I was a nurse for 32 years, but I traveled around a lot, and changed jobs as I needed to if I wasn’t happy with my current job-makes for little pension, but the variety gave me a lot of wonderful experiences and I met a lot of wonderful people, and some not so wonderful people, but not many.

      Haven’t ever met a chigger-not sure I want to since Terry described them. As kids swimming in a creek, we used to get blood suckers on us and usually took a match to them before they could dig in completely under our skin. Fire ants in Florida are vicious too.

      Terry-glad the Lyrica is helping the worst of your pain. Numbness is strange to live with, but you get used to it as best you can.

      Well Norb-you can go to the tavern to see my comments on your Thai dinner.

      My day started out good till my nurse came-then it went down the tubes-four iv sticks and it was in a positional area in my left hand-“now don’t move your hand” the bloodsucker nurse said with a smile and I told her to tape my hand then, because I am left handed and gesture when I talk, so she taped it closed in a fist—for 4 1/2 hours. Have thought about it today and looked at my bruised arms and am going to call the infusion co. tomorrow and request a different nurse. BUT, there was a golden rainbow in my day today-my son called and he is in Seattle to visit his daughter for a week:) and he informed me they are coming to Michigan for Christmas-haven’t seen them since last July-so am storing up lots of hugs for them-hard on a mom and grandma Emma(other grandma is Nana) when you only see your kids every 1 1/2 years-thank goodness for the computer and email…..my day ended with getting drenched in a windy, thunder, lightening,rain storm, but it cooled things down-didn’t mind getting wet, just wasn’t in the mood to get struck by lightening. Sooooo, how was everyone’s day?

    • Anonymous
      July 16, 2008 at 11:15 pm

      Hi Jan I am glad you love your job. I did to for many years but since being on modified work they make you feel like crap and sometimes I do jobs that exhaust me at the end of the day.

      Emma for the parking spot it is first come first serve and he is in worse shape then I am so I know he needs it. I won’t keep bugging them about the spot I will just call the guy from City Hall I was talking to yesterday asking about what is being done. Now it is the City who will force their hands not me.

      Also good news you have about this Christmas. I hope it turns out really well for you. ๐Ÿ™‚


    • Anonymous
      July 16, 2008 at 11:47 pm

      Sue, it wasn’t always so with me. I worked at a job I hated. I started out loving it but there was a change in management and things just went down hill over time. I was finally laid off. I was so glad to have an excuse to leave and this job just kind of fell in my lap. I think when one door closes another one opens. I hope you find a better job but after so many years, it is hard to lose all the benefits, etc. isn’t it? Take care and hope there are better days ahead for you.

    • Anonymous
      July 17, 2008 at 12:24 pm

      [FONT=Georgia]Hi Sue you know as always I wish you nothing but the best. I hope things get better & all the problems get straightened out.[/FONT]
      [FONT=Georgia]Emma could those blood suckers your talking about be Leeches, I know all about them to well. We use to go swimming in the river near here, till it got damned up & turned into a lake.[/FONT]
      [FONT=Georgia]Jan hope your having a good day & hope Norb is also having a good day, I’m planning on getting out the atv & going to go looking around the farm in a bit. Thats the one thing I get alot of enjoyment out of, I wish I had a motorcycle I owned one when I was 18 & I had an operators license for it. I went everywhere on it, I sure do miss that. It would sure help with the price now you have to pay for gasoline. I guess I’m just wishing ! Have a Good Day Everyone .[/FONT]

    • Anonymous
      July 17, 2008 at 8:45 pm

      Hi Terry, I am having a good day. The class I am teaching are a great bunch and we are having fun so that is what helps. I am having a lot of buzzing though. My legs are vibrating like crazy. Wish it would just go away and leave me alone for a bit. But then I think about others like yourself who have so much pain and I think mine is not nearly as bad so who am I to complain?

      Talk to you later. Enjoy the ATV ride. That is one of my favorite things to do too!

    • Anonymous
      July 18, 2008 at 7:43 am

      An ATV ride would be a blast…never did it but would love to try. I imagine it to be like a wave runner only on land ?

      I had my catheter test and now they are telling me I have interstitial cystitis…something with the lining of the bladder. I have NONE of the symptoms of it except for abdominal pain, which, I am telling you , THAT pain is from the ovarian cyst. Now they want me to take a new med called Remilron or something like that and it has some bad side effects. I dont know what to do anymore. I cried about it…dont want my husband to know how upset I am b/c he worries about me so much. I find that the shower is the very best place to cry. Some days, I could take alot of showers. :rolleyes:

      On a brighter note…my son is learning to read and I am so super proud of him. At kindergarten round up, they gave us a packet that had what they call “core” words…we’ve practiced them and he’s mastered them all and I wrote a few sentences on paper and he read them. Then we got a few books out…my lil man is so smart ! He loves to accomplish.
      He starts school on August 15th…my baby…oh where has time gone!

      Looking forward to spending time with my husband this weekend. I’ve been realizing how different our relationship is. Distant in a way…yet we still love each other greatly. Since the CIDP and my mom being sick and all the depressing crap in between…and moving and selling and this and that…I just really miss us. I miss the old me.
      I have changed alot and I dont think it’s for the better.
      I’m so lucky to have him…he’s a very supportive and thoughtful and understanding man.

      well, as i type, it seems I’m a bit bummed this morning, doesnt it. I better go get a grip on this attitude.

      have a good Friday everyone !


    • Anonymous
      July 18, 2008 at 9:16 am


      This illness does change us. That being said, it’s kay to like the new you. I distanced myself from others because I didn’t want them worrying about me and I still find myself doing that. There is so much I never tell anyone. I come to the forums because here I can say how I feel and none of you judge me. So for you, when you feel bummed out, this is the place to come. No one here has judged me yet. I trust the same for you.

      Why not join us over at the Tavern? we’re gonna sit out on the deck tonight, have a few drinks and laughs and listen to Toby Keith…awe what a great virtual world we have here:D

    • Anonymous
      July 18, 2008 at 9:57 am

      [B][I][FONT=Palatino Linotype][SIZE=3][COLOR=purple]Good Morning: I feel like saying that today it’s Friday, well I had a nice time yesterday out riding around on the farm. We have a lot of overgrown areas here with roads where I can get through on the atv. The bad thing though is I got hit in the face one time after another, by spider webs their everywhere. I also got hit with a low hanging limb that had thorns on it & one of them stuck in the top of my head. I had to stop to remove it, as it was quite painful. That thorn came off a Hedge Apple tree or some call it an Osage Orange tree. There are several of them on this farm & they are full of small thorns. But I did have a good time, I love getting out like that. But I sure don’t enjoy those spider webs, well today is Friday & that means the wknd is here. So I’m just going to try & enjoy it, Wishing Everyone the Best Today ![/COLOR][/SIZE][/FONT][/I][/B]

    • Anonymous
      July 18, 2008 at 10:23 am

      Terry, I hear you on the hedge apple warning. We live on a farm too. We pasture some cattle and have a problem with multi-floral rose. Talk about thorns! There was a time when the local extension service suggested planting the ‘nightmare bushes’ for fence row. It worked as well as barbed wire, but what they didn’t mention was it’s ability to spread!
      I use a golf cart to run around with the grand-babies. Much safer than an ATV for both Nana and kids!
      Guess I better get out on the lawn mower before the it hits 90! If we mow the ditches and all the fence line it takes a day. Obviously, I don’t do it all at once.
      Enjoy your Friday and have an enjoyable week-end.

    • Anonymous
      July 18, 2008 at 12:48 pm


      The wood from that hedge apple tree (osage orange) is a bright yellow wood, and after it has cured a bit, it is truly harder than iron. I’ve tried MANY MANY times to drive a staple into an old hedge post only to have the steel staple bend and curl around…I’ve resorted to pre-drilling holes most of the time…just thought I would share that.

      To everyone else,

      Good morning. Its Friday. I’m taking part of the weekend and will visit my with my Dad who will be arriving tomorrow afternoon to inspect our new building site. I’m anxious. I w……

      I hope everyone has a great day, I’ll be looking foward to hearing about everyone’s weekend. Supposed to be hot and sunny here in the 90’s. I’ve got a date with a certain cute little 4 year old who has invited me (by note in my briefcase, no less. With stickers!!!) that she would love to go swimming with me today when I get home, and eat watermelon. And that the dog needs washed, and that little sister was next to her when this was written, and that mommy did a good job of writing the note to me…

      I think I’m going to get off a wee bit early today…..sounds like a date I can’t miss.

      I hope everyone has a GREAT weekend, and enjoy the sunshine.

    • Anonymous
      July 18, 2008 at 2:42 pm

      [FONT=Times New Roman][SIZE=3][COLOR=purple]I found out that trying to drive nails into locust posts that are seasoned doesn’t work very well either. Needless to say I bent a lot of nails, that also holds true on seasoned oak 2×4’s that are in our barn. With that it’s time to drag out the drill. [/COLOR][/SIZE][/FONT]
      [FONT=Times New Roman][SIZE=4][COLOR=#800080]Emma I hope your feeling better & hope everyone is having a most enjoyable day. [/COLOR][/SIZE][/FONT]

    • Anonymous
      July 18, 2008 at 10:16 pm

      Well, now that I have slept the major portion of the last two days away, the weekend is up. Yup, Terry, those blood suckers were likely leeches-as kids-we just torched them off each other and went back swimming and when they got too bad, we quit swimming and found something else to do on all the farms of my folks, grandpa and uncles-got real creative, as we didn’t have the $$ to go to town. Present day-I think I have learned to drive a quad up north with friends-they have a 40 acre lake, and I had a riot driving around it, but you are right-spider webs and thorny what evers-I was either ducking or pulling up a leg to avoid the thorns but I still had a lot of fun going around the lake and 3 of us on quads went around the rest of the property and up and down and through water and everything-saw deer and turkeys-it was really a lot of fun. My girlfriend and I priced a used golf cart and they wanted 1800 bucks for it, so we couldn’t get it–too bad, we had great plans where we were going to go with it.
      Brett-sounds like you have great plans with some beautiful women for the weekend, well add a dog and a dad-but I bet he will be proud of what you have accomplished with your new home so far.:)
      I have a kinda rough weekend coming up, but with your help will get through it. So, to all of you, I really wish you good thoughts for a nice weekend. Remember, Terry, you don’t have to work. Ride the atv again around your beautiful lake……Emma

    • Anonymous
      July 18, 2008 at 11:41 pm

      Forgot to add 2 things-Terry-I plan to coon some of those veggies out of your garden-thought I’d warn you….

      Stacey-A dumb question because I am new here-is Connor your little guy that is just learning to read? Or someone else? No matter-whoever-WAY TO GO on reading so early. You must be so proud…… Emma

    • Anonymous
      July 19, 2008 at 12:47 am

      [FONT=Georgia]Emma thats a long way to drive just to get here, Ok well come right on down & I’ll show you the farm. Just curious Emma I ran across a weed yrs ago that grew around the river here, where we swam at. Everyone called it Bull Nettle & if you ever got it against your skin you’d know why. It felt like a massive load of needles stinging your skin, we use to get into it every last time we went swimming down at the river. Believe me that is one nasty weed.[/FONT]

    • Anonymous
      July 19, 2008 at 3:02 am

      No Terry, didn’t come across any bull nettle-had a lot of blue racers, they were bad enough. When we moved from our farm to the river, my folks cut down all the small trees, shrubs, and undergrowth and blue racers so we could mow the yard all the way down to the river-rather treacherous as you were mowing on a side steep hill, but I used to run down that hill everyday and swim back and forth across the river, which had a very strong current, but I loved it.
      So just checkin in, I am better tonight. Actually fixed a hot dinner to eat.
      It’s 3am, and have been up 8 hours, so am going to bed. Forced myself to stay up awhile. Maybe won’t be so tired tomorrow. Have a good weekend everyone… Emma

    • Anonymous
      July 19, 2008 at 9:08 am

      [FONT=Georgia]Emma: those blue racers your referring to I take it are snakes, if so the one’s here are black. I don’t hardly ever see any of them here anymore, but there is one snake I see alot that one is a cowsucker. I’ve killed several of them while mowing my moms lawn, I don’t have much use for snakes at all. The one’s I killed were trying to get into my moms house. Anyway hope you feel better today Emma.[/FONT]

    • Anonymous
      July 19, 2008 at 12:20 pm


      yes, Connor is the lil man in my life learning to read. He’s five.

      Today we have a baseball game…coach pitch. My oldest sister comes into town and when she’s at the game , she threatens to kiss him if he doesnt hit the ball. He HATES that. Needless to say, he rarely misses a hit.

      After that, we’ll go swimming for the afternoon. Another hot day in Omaha.

      have a great weekend.


    • Anonymous
      July 19, 2008 at 2:23 pm

      Way to go Connor! Can’t think of any five year old boy that likes being kissed by any girl, well maybe mom can at bedtime. Hope he gets a lot of hits today..

      Yes Terry, blue racers are snakes-and I have NO use for any of them. Your garden is pretty big and with your lake, don’t you have snakes around them?
      If I were your mom and saw any snake, of any color, I would be calling you to kill them ALL. My brother used to torment me on the farm with 3-4 foot snakes, alive or dead, and I was 7 years younger than him, so I was an impressionable young kid. Carried over to my adult years. Blue racers, as a rule, squirmed away from you, if you can call a 6 ft. snake squirming, but on occasion they chased after you, maybe they felt threatened, no matter what they felt, I ran pretty fast back then AWAY-never took time to see which way they were going. They aren’t your run of the mill grass snake, and get bigger than 6 feet too. Seldom see a snake living in town now, and they are small ones, but I still walk away from them as quick as I can. Avoid that attraction at zoos and carnivals and look away from tv if they are on. They end up being in my dreams, and that is not where I want them. A result of being too visual a person maybe.
      And thanks, Terry, I am feeling a little better. Declined a friend’s offer to go walk out on the pier at Lake Michigan and get a coney dog with them, but it is a little too far for me to walk today. Those are 2 of my favorite summer things to do, especially get the coney dogs-they put a hot dog on a stick, dip into a pancake batter and deep fry them, slather one side with mustard and the other side with ketchup-delicious. I also like to stroll along the boardwalk to the pier, and their great grandson, who is 2 1/2 , and very active and fast just doesn’t combine well with me strolling. Another time.. I hope you and everyone else have a good weekend. Take good care. Emma

    • Anonymous
      July 19, 2008 at 7:25 pm

      It’s pretty hot here too, the thermometer on the fence shows over 100ยฐ. We spent the night at my daughter’s in Denver after my visit with my neurologist. Sydney was so excited to see us again and I actually got Sawyer to laugh at me after being scared for the first minute or so. I think it’s the beard. He is seven months now, Sydney is three years old.
      We got into some heavy discussions. Ryan is now in her fourth and last year as chief resident and needs to make some decisions about her future. When I asked her why she needs input from us her answer was that we are part of the equation and our plans would influence the direction she would go. I know she wants us to move in with them for good, possibly in Seattle. She wants family around and her children to have grandparents. I understand that.

      I am so torn about this. I love to be around them but at the same time I don’t want to give up the house we built here in Ft. Collins and probably my privacy. Everything here is power chair accessible and comfortable. I even can drive myself to a number of stores only 1 1/2 blocks away. Knowing this is very important to me because it gives me the feeling of not being locked in. A new place would have to offer much of that. Another big factor is Carol. She has to do all the work around here since my disability prevents me from helping much. She’s 59 now and things are not getting any easier for her. She tires very easily and experiences pain frequently. It sounds like she would move to Seattle anytime. It’s a fun city and the climate is great as far gardening is concerned . And we both love the ocean. Another factor is that we really don’t have any friends here. Our neighbors are nice but they’re not friends. I think what our daughter wants to hear from us is a commitment but we’re not ready to make that. What we think they should do is – provided she finds a job there – go to Seattle and rent an apartment or house for a year. This would give her time to look around for a place for all of us and give us some time to make up our minds. Then there is the issue of her huge student loan which is out of this world. If she would go to Anchorage or some other place in Alaska, she would be forgiven a good bit of it. This is because she went through a combined Alaska/Washington medical program.
      I didn’t sleep well there thinking about all that.:eek:

    • Anonymous
      July 19, 2008 at 9:03 pm

      [FONT=Georgia]Norb: this is going to require a lot of serious consideration on your part, it might be a good move. Especially due to the fact you don’t have any friends, where you live. Then again moving is always a lot stress, just don’t get any hurry to make your mind on what you decide to do. I wish you the best on this.[/FONT]

    • Anonymous
      July 19, 2008 at 9:31 pm

      What major decisions you and Carol have to make for the future. It sounds exciting, especially the ocean.
      Whatever decision you make your family here will support you.
      My best to you and Carol

    • Anonymous
      July 20, 2008 at 2:04 am

      Norb and Carol-my son has been stationed in Seattle/Bremerton and I really think he will return there. I loved visiting out there-across Puget Sound is a town called Port Orchard, and it had a nice ring to it, so I told my son I would live there. But the stress of packing, moving to a different state is a lot to think about. One interesting note about what I read on Yahoo today-re Alaska-the most expensive gas in the US is in Lime Village, Alaska: $ 8.55 gal. reg.-takes two barges and a small plane to get the gas to this town. Just a piece of trivia. You know that we all will support you no matter what you decide to do.:)


    • Anonymous
      July 20, 2008 at 8:05 am

      Wow Norb, sounds like a pickle place that you are in right now. I know how you’re feeling about the thought of moving, contempkating that myself. I like the idea of moving, but then reality makes itself clear again and I have to rethink the fact that I wouldn’t be of much help. We need our own place, currently renting my bil’s house, and its just too small for all of us plus his stuff that he left here. There is alot to consider when looking to move, and I know how it is when others don’t give much thought to what would make life easier for impaired people. In our case its usually 3 against 1 on the houses we would like to move to.

      Today we are having Our Family Reunion, and wouldn’t ya know its raining again! I hope the shelter house at the park is going to be big enough for everyone. Well gotta go, there is a nice, relaxing shower waiting for me.:) Take Care.

    • Anonymous
      July 20, 2008 at 3:31 pm

      Wow Norb, what a huge decision ๐Ÿ˜ฎ The Pacific Northwest is beautiful but that doesn’t negate the many adjustments. And it would be very “challenging” to leave the home that you love. But, then there are those beautiful grandchildren . . . ๐Ÿ˜€ I’ll keep you and Carol in my positive energy thoughts!

    • Anonymous
      July 21, 2008 at 3:33 pm


      I selected your “Just Checking In” post to post my 100th post!!!!!!!!!

      YAY, I’m a senior member!!!!!!!


      People in my office are staring at me wondering what I’m doing spinning in my office chair, quietly shouting WOOO-HOOO.

      I wonder if they think GBS Guy (a poor nickname) is having a reaction to another medication????? Just a thought.

      Everyone have a great day!!!!

    • Anonymous
      July 21, 2008 at 3:54 pm

      Hey GBS guy-I bet we girls at the tavern could come up with a better name for you, since we heard you sing with that openshirt and gorgeous eyes and all.:D ๐Ÿ˜€ Just a thought-probably would crack everyone up at your office and you would really spin in your chair…….

      Welcome to the senior member club-I didn’t even know what it meant till someone told me. Now I will have to go back and figure who my 100th was. Might be Norb too. Hey, how did your dad like your home? How did your date with your beautiful women go???

      Have a first to share with everyone-got a call from my 6 year old granddaughter-it is the first time she has ever called me!!!! Usually daddy prompts her to say hi or bye, so this is a first. Thanks to her, hey, even with the pain, my day is great.:)


    • Anonymous
      July 21, 2008 at 4:02 pm

      My checking in is:
      That a co-worker who I have worked with many many years died on Saturday of Cancer she was 51yrs old She was married for 33 years. She was diagnosed with an aggressive kind of Breast Cancer last year in May. I was looking at my local newspaper on Internet about 30 minutes ago. So I assume it will be posted in tomorrows paper.

      She was such a nice person. At work when I needed emotional support or encouragement she was always there for me. I didn’t know her as a child but I knew her brother who was mentally challenged because he would have a hockey net and my brother didn’t so they got him to play hockey with my brother and my brothers friends.
      I will go to the funeral home on Wednesday but I find it hard not to get upset especially when it is a good friend because I lost 2 brothers when they were teenagers because of lung disease (1976 & 1987) and I am still not over that.


    • Anonymous
      July 21, 2008 at 4:06 pm

      Congratulations Brett ๐Ÿ˜€ and welcome to our “exclusive club of senior members” ๐Ÿ˜‰

      This morning I talked with Honda. Apparently they’re going to approve the reimbursement application for the mobility modifications to our Honda Element. All they needed was a copy of the paid invoice. We sure can use the money.

      Carol spent all morning calling around to find a place for me where I can get aqua therapy which my neurologist prescribed for me. She finally found one in Loveland which is about half an hour away from here. The only one here in Ft. Collins is at the orthopedic clinic and their primary focus is on orthopedic patients only. You would think a place as large as ours would offer facilities that accommodate us. That place in Loveland is a rehab clinic that did the original evaluation for getting my power chair.

      Emma, my100th was 2 years ago. You asked me over a drink where I get all my pictures. Mostly google it except the fish and scallops. ๐Ÿ˜‰

    • Anonymous
      July 21, 2008 at 10:37 pm

      [FONT=Georgia][SIZE=3][COLOR=purple]That’s good news about the reimbursement on the Honda Norb. Hope everything works out on your aqua therapy, as for my 100th post I don’t even remember that one. I just noticed I have over 1000 posts, oh well Wishing you the Best Norb.[/COLOR][/SIZE][/FONT]

    • Anonymous
      July 21, 2008 at 11:04 pm

      Norb, what a dilemma. there are so many things to consider when contemplating a move such as this. I personally value my privacy and could not fathom living with any of my kids. I don’t want them to know what I’m doing:D and I don’t want to know what they are doing:eek: But that being said it sure is nice when I live close to them and can see them whenever I want to. I hate having to plan a journey and then try to figure out how to fit everything into a day or two.

      What ever you decide, we are here for you my friend and computers are good in all corners of the world. Maybe this is a chance for you to show us another corner of the USA.

    • Anonymous
      July 22, 2008 at 12:00 am

      Sue-am sorry to hear about your friend/coworker dying. Although her battle was not long, still she suffered and I know you’ll miss her. As to your brothers-some deaths in our life, we are just not able to get over completely. I hope you find a peace somehow with all your losses.


    • Anonymous
      July 22, 2008 at 6:47 am

      Thank You Emma

      Good news Norb about the reimbursement


    • Anonymous
      July 22, 2008 at 7:38 am

      Norb it’s a tough decision, I understand the privacy thing too, I have a rough time when we have visitors overnight and don’t know if I could take it permanently. My parents have told us much the same thing – they won’t move closer because their house is perfect for them. It doesn’t sound like you need or want to make a decision right away so maybe more research is in order – perhaps you can find or build something similar or better out in Seattle – with a separate guest house. ๐Ÿ˜‰ Good luck with the aqua therapy, it is helping me but it doesn’t take long in the water before I’m wobbly. That might be one incentive to move – you might find a place with a pool.

    • Anonymous
      July 22, 2008 at 7:58 am


      Sorry to hear about your co-worker. Also sorry to hear about your brothers passing. Hang in there.

      Be safe.

    • Anonymous
      July 22, 2008 at 9:56 am

      [B][I][FONT=Times New Roman][SIZE=3]Sue Sorry you lost your friend & coworker, losing good friends are always hard to deal with. I know this yr I’ve had more than my share of losses, you know your one of my online friends Sue. I’m always here for you.[/SIZE][/FONT][/I][/B]

    • Anonymous
      July 22, 2008 at 4:26 pm

      Just checking in – hey Norb, just think if you build a guest house, I could come visit:eek: The Pacific Northwest is so beautiful, although where you live now is pretty special too. And I have to agree with the others, my privacy is very important-miss my son, but on the other hand, the distance forces us to solve many problems on our own that when you live too close, you end up in the middle of those problems(hate that when it happens).

      I know when the time comes to decide, you and Carol will choose well.


      oh, back to the checking in – didn’t get much sleep, too much pain , so am trying to just rest and sit here on the computer-everyone seems to be calling to say hi, so nap is out of the question. Will sleep well tonight, maybe. Have a good day everybody.:)

    • Anonymous
      July 24, 2008 at 9:41 am

      Just checking in to see how you are doing Sue. A hard week for you.

      You too Terry.

      And Jan too.

      You all are in my thoughts and prayers. Take good care.


    • Anonymous
      July 24, 2008 at 9:49 am

      Hi Emma I am managing. I went to the funeral home last night to pay my respect well it didn’t take long for the tears to come out. Today 32 years ago my first brother died of Pulmonary Fibroses. Yesterday it was my parents anniversary My brother died after midnight in the wee hours of the morning on the 24th

      To Gilles and Brenda I miss you both so very much.

      I am getting my paperwork in order as I am going to see a new Rheumatologist about the tendinitis in my hands and other problems I am having to see if it is work related or CIDP related or something else. Will let you know what he says

      Also Thank You Terry for your support I appreciate it.

      Thanks Emma


    • Anonymous
      July 24, 2008 at 11:00 am

      [I][FONT=Times New Roman][SIZE=4][COLOR=purple][B]As Always Sue Remember I’m Pulling For You ! ๐Ÿ˜‰ [/B][/COLOR][/SIZE][/FONT][/I]

    • Anonymous
      July 24, 2008 at 11:59 am

      Sue, I’m really sorry for the “tough stuff” you are going thru. Just know that I care. I’m sending you hugs ๐Ÿ™‚

    • Anonymous
      July 24, 2008 at 12:25 pm


      I’m so sorry you are going through these rough times with the loss of people you love. I know what you are going through as my sister died 6 years ago
      July 24, and 3 mo. later my brother passed away.

      Know that my prayers are with you.

    • Anonymous
      July 24, 2008 at 12:39 pm

      Sue, sorry you are having such a rough time. Hope the visit at the rheumatologist will be positive.
      We are bummed out because Honda denied our reimbursement application for accessibility modifications. It is just a technicality, really, because we didn’t buy it from a Honda dealer directly but from Freedom Motors in Michigan who did the mods. This way we are not considered the first owner even though the first title is in our name. We are going to appeal it.

    • Anonymous
      July 24, 2008 at 1:38 pm

      Norb, that sucks. Don’t you just hate the red tape?:mad:

    • Anonymous
      July 24, 2008 at 8:20 pm

      Sorry to hear you bad news Norb.

      Thanks everyone I saw the Rheumatologist and he didn’t see anything wrong he checked my range of motion and it was fine but I haven’t worked in 13 days because I am on holidays. I know there is swelling in my fingers and I know my hands hurt when I work with them and also my back hurts because of my hands my shoulders also and my legs.
      He gave a new pill to try and he said if this doesn’t work then he guess that medication is not helping my tendinitis. I tried 5 already for this. Now I got pills and drops. He gave me Tiaprofenic 300mg twice a day. He also gave me drops for my hands and arms called Pennsaid 1.5%.
      I asked if I could get an MRI as my Neurologist order one for me but it got canceled in April. He told me to talk to her I tried. After the examination I talk him into let me have one. It will be of my lower back.
      I told him I was going to see a new Neurologist in September but don’t know why. He answered maybe your Dr doesn’t know what else to do for you concerning your CIDP. Could be true. Dr Bourque is involved with the GBS/CIDP board in Canada. His name is in the newsletter.

      He thinks my CIDP and work is what is not helping my Tendinitis. He also mentioned he was going to let my family Dr know I should get vocational training at work. I assume he meant an Occupational therapist to see what I do and maybe make suggestions. Well I work on a production line.
      I will keep you all posted on this.

      Thanks Everyone


    • Anonymous
      July 24, 2008 at 9:37 pm

      Sue-I was watching and waiting to read about your news with the rheumatologist-here’s hoping the medication and drops work. When is your MRI? Sounds like the new neuro. appt is aways off, any chance you can keep calling to get an asap appt. or get on the cancellation list, that you could come in then. Also-that vocational training and your production line( a tough repetitive job )-is there a different area on the line that you think would work for you? Does that mean bumping someone? Sorry for all the questions, but feely badly that you are on holiday and going through so much.

      Norb-Jan took the words out of my mouth-that sucks!! Honda otta be glad that you bought one of their cars in the first place!!!!! And being as you are the first owner on the title….that’s it-I am going to get out my voodoo doll my sis bought me in the Caribbean and start using it for a few people, starting with Honda….

      my day – one word – poopy. Couldn’t sleep, so slept during the day, now I’m all screwed up:eek: But hey I am hanging in there like everyone else.


    • Anonymous
      July 24, 2008 at 9:47 pm

      Hi Emma I already called the Neuro office when they had an opening sooner I would take it but so far no luck.
      No on the production we go where they need us and since I am on modified duties I don’t work as hard as everyone else but work harder then the people on workers compensation. So I have to keep reminding them I am a modified worker. We are all treated the same no matter the seniority. On the packing lines only; I am #2 on the seniority list and #8 through out the plant. But the last few weeks before I went on holidays I was having problems with my forearms and reported as a work injury so they been treating me better. Will see Monday when I go back to work.

      Thanks Emma I hope you sleep better soon


    • Anonymous
      July 24, 2008 at 9:51 pm

      Out the frontdoor – hail storm over west Fort Collins 20 minutes ago. Can’t see the houses across the street. The hail hitting the windows and the skylight was so loud, we had to turn off the TV. It’s wonderfully cool now and refreshing now after 95 degrees.


    • Anonymous
      July 24, 2008 at 9:56 pm

      thanks Sue. my sleeping issues aren’t always related to my pain-worked at least 17 years on night shift and I really like being up late at night, but it does screw up my days when I have appointments that are early am-try to schedule everything for afternoons when I can.

      Good luck on Monday Sue-you just tell them you got a lot of forum pals that will inundate some nasty emails if they don’t treat you decent!!!!

      OK, Norb-I found my voodoo doll-want to try it and see if it works????

    • Anonymous
      July 24, 2008 at 9:58 pm

      Wow Norb-we were writing at the same time. That is some hail storm!!!!

    • Anonymous
      July 24, 2008 at 10:02 pm

      I hate to ask but I only know about gbs and cidp. I have long been wanting to ask you what he rest is that you have. Mag? I already forgot the rest.

    • Anonymous
      July 24, 2008 at 10:42 pm

      [FONT=Georgia][SIZE=3]Me I have a very irritating form of Neuropathy, I came on this forum when I was taking care of my late wife. She had been left totally disabled by GBS in 6/2000, & also had CIDP so she got the double whammy.[/SIZE][/FONT]
      [FONT=Georgia][SIZE=3]Thanks for sharing the photo Norb, that reminds me of a hailstorm we had when I lived in Louisville Ky. About the reimbursement that totally Sucks, just keep on going with it.[/SIZE][/FONT]

    • Anonymous
      July 25, 2008 at 10:44 am

      Thanks for the doll, Emma. As long as it only works on that Honda guy mentally it’s OK. He is convinced he is just doing his job. We had another scare. We never received an economic stimulus rebate. So I called the IRS and found out from this automated system that we did not qualify. Since I was pretty sure we did, I contacted this IRS advocacy person in Denver. He looked it up and told me I didn’t report my Social Security income. No idea how that happened when I filed electronically. I still can get the rebate. I just have to file an amended return. This was at least something positive.

      Tomorrow we are planning to go the big annual Asian Dragonboat Festival in Denver with blessing by the monks ceremony, boat races all day, all kinds of music performances, food and other vendors. We will be wearing our Karen ethnic outfits. Karen are a persecuted Burmese minority, many of them living in refugee camps in Thailand. The outfits were made in one of the camps, presents we received from Karen friends.

      [B]Joan[/B], I have a website where I explain what I have: [COLOR=”Blue”]cidp.ourbluemarble.us[/COLOR], also includes a journal.

    • July 25, 2008 at 11:12 am

      Atlanta got together a GBS/CIDP chapter meeting a few weeks ago, my first in twelve years since dx. It was great to meet new friends and discuss the changes in our lives. Thread is a great idea.

    • Anonymous
      July 25, 2008 at 11:20 am

      Norb-hope you and Carol have a good time this weekend. Don’t suppose you will see that beautiful granddaughter of yours, will you?:) Boy, you sure have had a lot of red tape, or whatever,, to cut lately to get reimbursements, energy stimilus, etc. Know you will have that all cleared up. Again, have a wonderful weekend.

      Terry-sending you good thoughts this weekend. Take good care of yourself. Here’s a HUGE HUG !!!

    • Anonymous
      July 25, 2008 at 1:27 pm

      [B][I][FONT=Palatino Linotype][SIZE=3]Thanks Emma: I know this Sunday is really going to be hard for me to deal with. It will mark 1 yr since I lost Debra, I just marked it on my calendar as a special day in memory of my soulmate. [/SIZE][/FONT][/I][/B]

    • Anonymous
      July 25, 2008 at 6:00 pm

      Terry, Yes, Sunday will be a very special day and every July 27th. This one will be the roughest. You don’t always have to be the tough guy, ya know.
      I saved that picture of Debra that you sent me-a picture says a thousand words and her eyes just say so very much. We’ll all help you get through Sunday. Will watch for your special posting….

      By the way, Linda, from the other forum, finally posted here in CIDP-she could use a welcome.

      Take good care Terry. Emma

    • Anonymous
      July 25, 2008 at 6:21 pm

      Terry Pray to God on Sunday and say Thank You for letting me have her for all the years I did. Then you can talk to your wife like she is listening because she is most likely listening to you from high up above.


    • Anonymous
      July 25, 2008 at 11:29 pm

      [I][FONT=Times New Roman][SIZE=4]Thank You Sue & Emma well I got something from my daughter tonight. Debras mom sent a huge flower up by my daughter, to place on Debs grave. Now I have to figure out just how to place it, she got it for Debs birthday, Maybe when I get everything situated I can take a picture & post it so you can see it.[/SIZE][/FONT][/I]

    • Anonymous
      July 26, 2008 at 1:26 am

      Debra will love looking down and seeing the pretty flowers. Send her our love.


    • Anonymous
      July 26, 2008 at 2:33 am

      Terry, Have peaceful dreams, Debra will be next to you always. Hugs My Friend!:)

    • Anonymous
      July 26, 2008 at 11:32 am

      Terry, as tomorrow approaches, keep in mind you have many friends here thinking about you and praying for you to get through the day the best you can. Just let go and let yourself feel. It’s okay to feel lost and alone tomorrow. Sending you huge hugs.

      As for me, I am still experiencing pain. Went back to the dr. yesterday and he is convinced this is shingles but somehow I am doubting that diagnosis. Not a lot of chance for a second opinion this weekend so will see what next week brings. I am on drugs for it and man am I out to lunch. I feel fuzzy headed and on a high. This morning I had a drug hangover….or maybe I hung out at the tavern too long last night listening to Kenny:D
      Anyway, still no blisters along the nerve but stabbing pain this am; he thought we got me on to the antiviral quickly enough that we have averted the blisters. Let’s hope so.

    • Anonymous
      July 26, 2008 at 12:36 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Terry,
      Please don’t despair, there have been so many losses in our lives that i don’t think i could go on if not for my firm belief that we will meet again somewhere in time.
      Your Debra was special and i will light a Yahrzeit candle for her tonight

      Debra alehah hashalom


    • Anonymous
      July 26, 2008 at 6:20 pm

      Terry-thank you for the white candles-I will say a prayer special for Debra and you tomorrow and light a white candle. I really truly believe that our loved ones are only lost to us physically(the pain we feel) but we have them forever in our hearts and souls(the healing). Remember all your memories and you and Debra will meet again one day in a place, I call heaven, but others have their special word for it–and the blessed assurance that we will no longer have pain. Take good care Terry.

      Jan-sorry for the drug pain/drunk issues. Would love to blame Kenny, but I think it is the shingles. Here is a huge hug……have you tried really ice cold compresses to the painful areas? Sometimes when I get that sudden spiked nail pain through my feet, as soon as I am able to move, I immerse my feet into ice cold water-my brain doesn’t register the hot/cold nor the wet/dry, but my foot pain eases up. Just one thought. By the way, did your cramps ease up with the potassium? Forgot to ask you the other day.

      As for me, just checking in, flirting with a headache today. Flirted with nausea yesterday. Just want a couple days good before my next round of ivig, but at least I am sleeping well and not feeling exhausted during the day.
      So far behind on filling out forms, that I would like to have a fireplace and have me a form fire.

      Have a good weekend everyone. Terry, I know you got the flowers planted, so enjoy those wonderful veggies out of your garden. Blueberries and raspberries are in right now, but they are all a bit sour this year. Can hardly wait till the green beans get here. Did have wonderful asparagus and strawberries though.


    • Anonymous
      July 26, 2008 at 8:18 pm

      We had a good day today at Dragon boat Festival in Denver. Lots of people, good food, almost 100ยฐ. My power chair kept overheating and came almost to a crawl. I did have to take a few breaks in the shade of a tree. We wore our ethnic outfits, hoping somebody would approach us and comment, but it didn’t happen because there was too much going on. Our son-in-law came with Sydney and Sawyer. They didn’t stay very long because the kids were kind of cranky probably because of the heat.


    • Anonymous
      July 26, 2008 at 11:31 pm

      [FONT=Georgia][SIZE=3]I like those photos Norb, I just noticed something I probably hadn’t noticed before. Norb do have a beard, thats great because I’ve had one for the last 10 yrs. It must have caught on because my neighbor also has a beard, & my brother followed suit he has one to. I think I started a club here.[/SIZE][/FONT]
      [FONT=Georgia][SIZE=3]Thanks Emma, Veronica, Jan, Angel, Sue & everyone else. I still have the last words I ever heard Debra speak going through my head. Honey I’m hurting so bad, I can’t hardly stand it. I’m just going to try to get through tomorrow.[/SIZE][/FONT]

    • Anonymous
      July 26, 2008 at 11:59 pm

      Terry-what were your last words to Debra?

    • Anonymous
      July 27, 2008 at 12:35 am

      [FONT=Georgia][SIZE=3]That one Emma I can’t remember, as I was busy trying to get her medicine prepared. She had a G Tube in her stomach & I crushed all her meds up & put them in water. I used a syringe without the plunger on it to pour the medicine through. [/SIZE][/FONT]
      [FONT=Georgia][SIZE=3] After that she just went off to sleep, here’s the thing about her gtube Emma the stupid hospital in the town I work out of. None of the Drs in the ER even knew how to replace the tube, a nurse from VNA showed me how to replace it. After that I replaced the tube several times, the Dr at the office I clean. Was amazed when I told him about this, we have a bond of friendship Emma. Because I took care of Debra for 6 1/2 yrs in fact the Dr asked me for some advice. Debra’s nervous system had been destroyed by the GBS, sometimes it was very hard & the situation seemed hopeless more than a few times.[/SIZE][/FONT]
      [FONT=Georgia][SIZE=3]But I just faced it & kept going, my love for her was just too strong. Well it’s now officially 1 yr to the date since I lost Debra, I’m just trying to think about the better times when she was here. [/SIZE][/FONT]
      [FONT=Georgia][SIZE=3]I just want to say this for my soulmate, Honey I Love You & you are missed very deeply there’s a big empty place in my life now. My Love for You has grown even stronger . [I][FONT=Times New Roman][SIZE=4][COLOR=purple] [/COLOR][/SIZE][/FONT][/I][/SIZE][/FONT]
      [FONT=Georgia][SIZE=3][I][FONT=Times New Roman][SIZE=4][COLOR=purple][/COLOR][/SIZE][/FONT][/I][/SIZE][/FONT]
      [FONT=Georgia][SIZE=3][I][FONT=Times New Roman][SIZE=4][COLOR=purple][B] I’m going to look at this as a special day, as it was the day all your pain & suffering had finally been taken away. [/B][/COLOR][/SIZE][/FONT][/I][/SIZE][/FONT]
      [FONT=Georgia][SIZE=3][I][FONT=Times New Roman][SIZE=4][COLOR=purple][B] I Love You Debra ![/B][/COLOR][/SIZE][/FONT][/I][/SIZE][/FONT]

    • Anonymous
      July 27, 2008 at 11:15 am

      Terry-sounds like you made Debra comfortable in her final moments…I truly admire your dedication–I know that married vows include the ” for better, for worse” but it is amazing how many couples really bail out on each other when the times really get tough. Just get through today. Don’t forget the Lyrica doses. Tomorrow will be better.


    • Anonymous
      July 27, 2008 at 11:59 am

      Terry, no matter what I am feeling today, it can’t compare to what you are going through. I am glad you have done things like plant flowers that will bring you closer to Debra. She will always be with you in spirit. You made her last moments comfortable when she told you how badly she was hurting. God bless you Terry for all you did for her and may you find comfort knowing God will continue to look out for you.

      Take care today. Keeping you in my thoughts and prayers.

    • Anonymous
      July 27, 2008 at 12:40 pm

      Norb, You Look Marvelous!!! You really know how to party man!! We have Dragon boat races here this weekend also!! Maybe next year I can go to them.:)

      Terry a candle is lit here in Honor of Your Debra. Take care today My Friend. Just remember there is no pain in Heaven, I know that is true personally.:)

      Today we get to see Our Great Nephew for the first time.:D Have a Nice Sunday everyone.

    • Anonymous
      July 27, 2008 at 6:01 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Norb,
      those pictures are gorgeous, who is the camera operator, you or Carol?
      Wish i could figure out how to get snaps from my phone onto the computer.
      supposed to work tomorrow but am seriously considering playing hooky,
      Just the l[B][I]east bit of encouragement[/I][/B] and i’ll do just that, had a nice rain here today and the weeds will be easy pickings tomorrow.

    • Anonymous
      July 27, 2008 at 6:06 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]By the way,
      my Pal Jan and i just celebrated our 34th year at Continental, here’s a pic of us on graduation day, that’s Herself on the right.
      Not the world’s best shot but it’ll do.
      See Ya[/SIZE][/FONT]

    • Anonymous
      July 27, 2008 at 7:28 pm

      Veronica, Carol is taking most pictures these days. My hands are too numb to do it. – You should be able to email pictures on your phone to youself.
      Great to finally see a picture of you other than a flapping bat. Wished it was better quality.

    • Anonymous
      July 27, 2008 at 8:43 pm

      Continental? One of my favorite US airlines to fly! Don’t get to very often as they don’t fly out of Regina but when I do I always enjoy the attitude and service. Kinda feels like our WestJet here in Canada.:)

    • Anonymous
      July 28, 2008 at 12:58 pm

      [FONT=”Comic Sans MS”][SIZE=”3″]Hi Canada Jan,
      Glad you like COAIR, now would you mind spelling your Province for me so I can look it up ? Am geographically challenged:D
      Got you a new power chair, it ought to serve you better than the old one, and you can just run over anyone who gets in your way!
      Tried to get a translation for this in German but came up with[B][I] Elektrischer Stuhl.[/I][/B].Electric Chair?:eek:
      How about[B][I] Elektrischer roll stuhl[/I][/B], is that closer?
      By the way, decided to play hooky today even though no one encouraged me, the beautiful weather here convinced me.
      Ya’ll have a nice day, Y’hear?[/SIZE][/FONT]

    • Anonymous
      July 28, 2008 at 1:19 pm

      [FONT=Comic Sans MS][SIZE=3]Love that power chair Veronica ! All it needs is a blade on the front of it. ๐Ÿ˜€ [/SIZE][/FONT]

    • Anonymous
      July 28, 2008 at 6:30 pm

      Veronica, I live in Saskatchewan. Not too many people can spell it! In fact, not to many people can say it:D We are right over North Dakota/Montana. As kids we had a little rhymy thing we used to say to help us remember how to spell it:
      Susan And Sam Kiss At The Church Hall Every Wednesday After Noon.

    • Anonymous
      July 28, 2008 at 8:33 pm

      Cool power chair. I think I’ll save it for special occasions. In German: elektrischer Rollstuhl.
      Carol told me today that I’m spending too much time in the “tavern” and that I needed something else for balance. She named me as technical support for the nonprofit foundation she just established: the Rice Share Foundation. Its purpose is to support ethnic minority refugees from Burma to become integrated into this society while maintaining their cultural heritage, mainly by providing sustainable solutions. She’s been working all day getting it registered and writing bylaws etc. etc. initially we will be working with Karen living in Denver. My job is to work on a website and a database to track contacts, also to come up with a spreadsheet to track financials.
      It’s all pretty exciting.

    • Anonymous
      July 28, 2008 at 8:46 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Norb
      You are truly amazing!
      Just remember, everyone needs a little break now and then, to wet the whistle so to speak and the tavern is the happening place.
      Canada Jan,
      i like your rhyme, will write it down and look you up
      Wow Terry,couldn’t we do some damage with a blade on Norb’s new chair!.[/SIZE][/FONT]

    • Anonymous
      July 29, 2008 at 12:18 am

      Norb, this sounds like a great project. Count on Carol to find a way to keep you on the straight and narrow. Just make sure you drop by the Tavern every now and then and let us know how the foundation is going. We’ll buy the drinks. And if you aren’t using the van, just park it out back. I promise we’ll take care of it for you:D

    • Anonymous
      July 29, 2008 at 8:26 am

      hello everyone.

      As usual, plenty going on in my life. I mentioned in the prayer request thread that I need a prayer b/c Connor was big time exposed to chicken pox yesterday and he starts kindergarten in three weeks. Please pray that if he’s going to get them, they come now.
      My regular day care lady is on vacation all this week and my back up, …my niece has the daughter with the chicken pox. Hubby stayed home today b/c we didnt know if we should send him back over there since he’s already exposed or keep him away just in case. He’s been vaccinated…ugh !

      Also, I’m set to get IVIG at home on Friday. I had a wonderful idea. I am such a pool girl…dont have one but both of my sisters do. What if I were to ask the nurse to bring her swimsuit and we do my treatment poolside ?
      I know…it’s a brilliant idea.:D

      If I dont laugh, I will cry.

      have a great day everyone,


    • Anonymous
      July 29, 2008 at 10:10 am

      Yeah, Norb, Jan and I will take care of your van-at least at night, all we have to do is fall into it inside of climbing the tavern stairs???:D

      Just checking in quick-start my two days of ivig again. Hope I have less of a reaction than last time-will get to my concert with Neil somehow. Once there, I know I will perk up.

      Well everyone, have a great day. Norb, sounds like you have a wonderful project that you are helping Carol with. Well, if you get thirsty, you know where to come. ๐Ÿ™‚


    • Anonymous
      July 29, 2008 at 10:37 am

      [FONT=Georgia]Good Morning Emma, Stacey, Jan, Norb, Veronica & everyone else. I’m being aggravated with numbing pain this morning, in my hands & feet. Thank You Neuropathy I really needed that to make my day, Norb wish you the best on the new venture. [/FONT]
      [FONT=Georgia] Emma hope you don’t get any headaches from the IVIG, that always gave Deb bad headaches. Stacey hope your IVIG goes ok too, have you got one of those huge umbrellas to lay under at your pool. That sounds like a good idea too unless it gets unbearably hot. Everyone just have a good day ! ๐Ÿ˜‰ [/FONT]

    • Anonymous
      July 29, 2008 at 10:43 am

      Good Morning everyone. Emma, good luck today. Stacey, I like the pool idea. Let us know if the nurse goes for it ๐Ÿ˜€

      Terry, sorry your day is not starting out so great. Will say a quick prayer for you.
      I am heading out right away to help build electric fence with my hubby. It is a two man job so hopefully he gives me the easy ones! ๐Ÿ˜ฎ It isn’t too long a strip so shouldn’t take us a lot of time. It’s a good day though as it is cloudy and cool. Beats working in the hot sun.

    • Anonymous
      July 29, 2008 at 10:51 am

      [FONT=Times New Roman][SIZE=3]Jan just curious about something, who’s going to be the lucky one to test the fence. To make sure it’s working ok, I have a fence tester I got awhile back from a local farm supply dealer. It has 5 lights on it & if the fence lights all 5 of them up, it is rated at 5,500 volts DC. [/SIZE][/FONT]
      [FONT=Times New Roman][SIZE=3][/SIZE][/FONT]
      [FONT=Times New Roman][SIZE=3]Take my word on one thing I have an electric fence around the garden out back, I was testing it a little while back & I touched that fence. Take my word for it that fence has a very nasty bite too it, oh it lit up everyone of those lights on the tester. It also lit me up. ๐Ÿ˜€ [/SIZE][/FONT]

    • Anonymous
      July 29, 2008 at 1:51 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Stacey,
      What a great idea, hope the nurse goes for it.
      Canada Jan,
      When you wrote about the hay baler breaking, i had a horrible vision of that guy on ‘I Survived’ who got his arm caught in the corn harvester!:eek: Yikes!
      Now Jan and Terry, what animals are you trying to keep in (or out)?
      Remember, you just want to warn em, not fry em.;)
      Beautiful warm day with a nice dry breeze again, Maybe i’ll go take a nap under the oak tree, sip a cold glass of Pinot Grigio with dinner later. Yum
      See ya later, and stay away from that fence Terry! [/SIZE][/FONT]

    • Anonymous
      July 29, 2008 at 2:29 pm

      Emma, I hope your IVIG today went okay. I finished my morning routines got dressed and exercised on the exercise bike for 2 1/2 minutes and 1 km (boring). No matter how hard I push I simply don’t seem to be able to get past that. I just wish I wouldn’t dislike exercising so much but if I don’t do it my legs and arms will atrophy. Sometimes I picture myself riding my bike up KaiserstraรŸe in my hometown from the main railway station to the bridge over the river Main (pronounced mine). This is pretty much 1 km. From the railway station (I used to live right behind it) I ride past the butcher and the drugstore on the left and the bakery on the right. Then comes the movie theater and the intersection with Frankfurter StraรŸe where the streetcar goes to Frankfurt. Next the Bรผsing Palais, the huge convention hall and the Stadttheater. I am just about there.


    • Anonymous
      July 29, 2008 at 2:45 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Norb
      What beautiful photos, the way you write about it is so evocative i can feel myself bumping along over the cobblestone streets of Pirmasens in my 59 VW, where some of the hills were so steep you had to use the emergency brake to stop.
      All my photos of that time are on 35 mm slides, wonder if anyone still can convert those for me? Can’t even find a slide projector, let alone my little viewer. Hmmm.
      Any suggestions?
      Good luck with the ivig.
      Ya’ll come sit with me under the big old oak and we’ll swap stories.

    • Anonymous
      July 29, 2008 at 5:28 pm

      Pirmasens, so that is where your German comes from like Kneipenhocker and elektrischer Rollstuhl. When and how long have you lived there? I don’t think I’ve ever been there.
      My oldest son converted most of our 35mm slides. He has some kind of a gadget that does it. I would imagine that you can find a store that offers that kind of service. The VW bus with the flowers was one of those slides. I used some others in a story I wrote about my World War II experiences.

    • Anonymous
      July 29, 2008 at 10:16 pm

      [FONT=Georgia]Veronica I figure Jan may be putting up fence to keep either cattle or horses in. As for me I put the fence up to keep the deer out of the garden, as this area is over run by them. They haven’t bothered the garden at all since I put the fence up.[/FONT]

    • Anonymous
      July 30, 2008 at 12:35 am

      Veronica and Terry,

      The fence we are putting up is to keep the cattle in. We have the same gizmo as you, Terry to test it but today when we were putting in the cross brace wires, the cross brace wire touched the live wire and my husband was holding the bracing wire at the time. I think it was my job to keep them from touching.:eek: whoops! Irv reports the fence was indeed working ๐Ÿ˜€ He then decided it would be a good idea to turn the power off until we were done. We had to hustle as the cattle were in the paddock and they seem to know when the power is off! We did finish and everything is working.

      Well, I am tired so going to finish up here and head to bed. Talk to you all tomorrow.

    • Anonymous
      July 31, 2008 at 11:32 am

      Yesterday I had an hour-long evaluation at the rehab Hospital in Loveland. I like that place and Cris, the physical therapist, is very nice. We scheduled two sessions per week, one hour each throughout August. The water is only 3 feet deep so I’m curious how this is going to work for me since I cannot keep my balance. Of course falling in the water is not a problem. I was surprised about the variety of equipment they have in the exercise room some of which I’ve never seen before. As we walked through there we saw about seven or eight older people in wheelchairs in a circle tossing a ball back and forth. Cris told us that among the different patients she also has two with CIDP and that she was very familiar with it. This was reassuring. My first session is the middle of next week.

    • Anonymous
      August 1, 2008 at 12:40 am

      Norb, sounds like things went well for you today. Always encouraging when you get a therapist who knows about your disorder/CIDP.

      Took the two puppies in to the vet today. One has a serious skin infection. He can’t stop scratching, poor little thing. They are both on antibiotics for ten days. My least favorite job, getting a dog to take medication. I amy try hiding it in bread or something.

      Went out mowing hay this afternoon. Got in after 7:30 but got the patch done that my husband had started. He says I can have tomorrow off. Then five minutes later he asked if I could go to town tomorrow to get him some parts. May go and will get myself something too ๐Ÿ˜€

    • Anonymous
      August 1, 2008 at 8:54 am

      [FONT=Georgia]Jan how about a 12 pak & maybe a 1/5 of some good stuff ๐Ÿ˜‰ to get the dust out of your throat from the hay cutting. The worst thing in this area about cutting hay is the dust & the bugs. [/FONT]

    • Anonymous
      August 1, 2008 at 11:24 am

      I’m thinking the 12 pak sounds good. How does Molson Canadian sound? Wanna share?

    • Anonymous
      August 1, 2008 at 11:52 am

      I’d love to do something outdoors. But instead of cutting hay I’m sitting at the computer working on the database I created for Carol’s Rice Share Foundation. Actually it’s great that I can get my hands on something like that again. Last year I gave up being the registrar and maintaining the database for the refugee school in Thailand, mainly because it’s unlikely that we will ever go back there and the hassle I always had getting course information and grades from the instructors via e-mail. Most of the instructors came to Chiangmai once a year for three months from all over the world, Australia, Austria, Burma, the US, Canada.
      Anyway, I still have to do some fine tuning of the database but Carol already started using it this morning because she had so many contacts to enter. Here is the way it looks:


    • Anonymous
      August 1, 2008 at 4:53 pm

      Great job Norb. Even at our worst we still all manage to find a way to ustilize the best. You are the best. Way to go Norb and Carol. The world needs more people like you. God Bless.

    • Anonymous
      August 1, 2008 at 5:26 pm

      [FONT=”Comic Sans MS”][SIZE=”3″]Jan,
      Happy Saskatchewan day tomorrow!
      Even though farmers never get a day off, i think you and Irv should at least go in to town and have a nice juicy steak.
      Finally getting some Spring cleaning done (i know it’s August already) but this is the first time i’ve felt up to it. Sure glad i don’t have a lot of heavy furniture!
      Another beautiful day here with almost no humidity, now there’s something to celebrate!:D

      p.s. Norb you really are amazing![/SIZE][/FONT]

    • Anonymous
      August 2, 2008 at 12:11 am

      Thanks Bat! I think we may do the steak thing if we can get a good chunk of haying odne tomorrow. We have had so much rain that delays us and we are usually done by now. We are not panicking yet, but I see the stress my hubby is feeling. If you can’t feed the cows, you can’t feed us….ARGHH!

      I had a quieter day today. I went to town for parts and after much running around, finally found everything I needed. I didn’t do much this afternoon. After last night I knew I needed to slow down and take a break.

      Called my son’s friend today She is a single mom with a young child who may have a disability. I am a mom of a grown child affected by a disability, so we had a good chat, mom to mom. I had prayed that I would know what to say and be able to say it in a positve and affirming way. I think we have worked out a direction for her to go. I gave her some options of programs out there and places to go for a firm diagnosis. She was going to make some calls after we hung up. I hope she follows up. I am here for her and she now knows that. I think she was relieved to have someone to talk to and understand. Don’t we all know that feeling? Anyway, she is a lovely young woman and I hope things work out for her.

      My grankids are here and watching TV but I think we all need to get to bed so talk to you all tomorrow.

    • Anonymous
      August 2, 2008 at 11:57 am

      Last night when I went to bed I put on earphones and listen to this brainwave recording on my iPod. I was hoping it would help me fall asleep. There are supposed to be scientific studies showing that this is really effective. It has Delta waves superimposed on soothing sounds which cause your brain waves to fall into sync. Delta waves are generated when you’re asleep. It has helped me in the past but not this time. I was still awake at 2 a.m. What a pain. I feel like a zombie.

    • Anonymous
      August 3, 2008 at 4:13 am

      Well Jan it is now Aug.2 so Happy Saskatchewan Day.:) Hope you got all your hay mowed so you can relax a bit today.

      Norb-you and Carol are true gems-priceless ones. Am going to check out Neil Young when I leave here. Tis almost my bedtime.

      Just checking in-well I am hurting, but I am proud that I reached my goal last night to see Neil Daimond. I said that in my beginning story that seeing Neil was my goal and I did it. Didn’t plan on all the other issues with the ivig at the last moment, but I made it!!


    • Anonymous
      August 3, 2008 at 11:43 am

      [FONT=Times New Roman][COLOR=purple]Well it’s Sunday & I think I overdid it yesterday, mowed my brother’s entire yard & managed to trim it. The thing about his yard is it has a hill to mow that is pretty steep & rough. At the bottom of it is a creek, he has a Z Turn mower it is pretty tricky to operate on that hill. [/COLOR][/FONT]
      [FONT=Times New Roman][COLOR=purple][/COLOR][/FONT]
      [FONT=Times New Roman][COLOR=purple]Touch one of those operating levers a little too much & believe me your going to get a very nice ride. My brothers wife actually put the mower off in a hollow, because she couldn’t control it. But I managed as they say to Gitter Done ![/COLOR][/FONT]

    • Anonymous
      August 3, 2008 at 11:44 am

      Good morning Emma. Looks like you didn’t get a lot of sleep. I hope you don’t feel as bad like I did yesterday. Well, I was doing better last night. I’d didn’t stay up too late and took a temazepam except I had to pee all night. Probably had too much beer yesterday. I went to Mark, our neighbor next door to ask for help with changing the lightbulbs in the garage. After that I sat down with him and his friend in their garage having a beer and watching a NASCAR race. He always has a big keg of beer in a huge refrigerator and chair set up around the flat screen TV.
      Ryan our daughter just called from Denver to tell us that she’s on her way with the two kids. Travis, her husband is going to come this afternoon with his two brothers who are visiting from California and Utah. They’re helping him finish his garage getting it ready for us when we start babysitting again in September. I better get off the computer, take my medicines, take a shower and get dressed.

    • Anonymous
      August 3, 2008 at 12:19 pm

      Got the baling done yesterday, and now have to wait until more cures/dries. Didn’t get to the celebrations in town. It got too late. This morning we woke to no water. Seems the submersible pump has died….and on a long weekend yet. Try to get that fixed:mad: Everyone is off enjoying the sun and the long weekend. One of the disadvantages of rural living. I may need to borrow that outhouse..was it you Bat that used one for some time? Can’t remember who said they didn’t have water. Doesn’t matter I guess.

      Tractor also broke down…this month alone, our water heater went, the softener died, the submersible pump, the tractor. This a.m. hubby said if someone came along right now and made a decent offer, it’d be gone. My reply…right about now a nickel would take it away!

    • Anonymous
      August 3, 2008 at 2:40 pm

      [FONT=Palatino Linotype]Jan I know exactly what you mean about living in a rural area, seems like when 1 thing breaks down something else has to follow. We just got city water lines in this end of the county last yr, so that put an end to getting water from the cistern. But the local phone company won’t put DSL out here, they’d rather waste money on tv ads bragging about what they can give people. I hate this company with a passion, that stinking company is AT&T.[/FONT]

    • Anonymous
      August 3, 2008 at 2:40 pm

      Jan and Terry-big hugs to you. Hope today brings a moment of goodness. The good Lord knows you certainly need something good to happen to turn things around!

      Terry-give you a lot of credit for tackling your brother’s yard-I know you do it all the time plus your own, but I swear as I was reading your post, I saw myself going into the creek, not the hollow!

      Hi Norb-ya, you’re right, I didn’t get much sleep-maybe 4 hours-but can really take it easy today and rest if I need to, just have a lot of paperwork that either needs to be completed and sent out or filed, and it just isn’t all going to get done today. Pushed hard all week and bringing that to a stop today. My legs feel like molten lead, if that makes any sense. Weepy and a day that I am really missing my son-maybe I’ll light a candle for awhile. Enjoy your family today.

      On a positive note(with a negative underside thinking about the nurse) my arm is less swollen today.


    • Anonymous
      August 3, 2008 at 3:26 pm

      Boy, Terry, you brought back memories–our family of four lived with a cistern for five years-can’t tell you how many times I was out in several feet of snow holding up a water hose so it wouldn’t freeze(had a well for the laundry room only-hard too-turned all my white uniforms to gold in a couple months despite bleach)and filling up the cistern when it went dry, which was every few days as the shower and toilet and kitchen were connected to it.

      Of course my farm days were even more rustic. But what I really miss the most is my home. When my husband died and I then had cidp and couldn’t work, I lost my home-went into foreclosure and was able to sell it at the last minute, but now that I am in an apartment I really miss my garden and my flowers. Am really trying hard to figure out a way to get into a small home again, now that I have my SS income. Have not forgotten those issues of 1st one thing breaks, then another,etc., though and I even have the maintenance guy change my ceiling light bulbs, spoiled?yes, but standing on a ladder and looking up makes me almost pass out, so I consider it a safety issue. Despite having to maintain a home, it is your home, your private place that welcomes you home each night. I miss that.

      Gosh, enough nostalgia, maybe I better take a nap and wake up with a better attitude. By the way Terry I hate AT&T too-have a local co. since my last move-I happen to think smaller companies give better service and you actually get a real person on the phone to talk too when you have a question or a problem…….bye guys-have a better afternoon.

    • Anonymous
      August 3, 2008 at 4:16 pm

      [FONT=Georgia]Emma the cistern at mom’s house is 15 ft x 10 ft & is 9 ft deep & I been think about knocking a hole in the wall & using it for a storm shelter.[/FONT]
      [FONT=Georgia]As for the creek there’s a 20 ft drop from the bank into the creek & as for AT&T I can think of one thing to compare them to a Vacuum Cleaner & you know what they do. This use to be Bellsouth but AT&T/SBC wanted full control of Cingular Wireless so they got sucked up by at&t. I wouldn’t give a big crap if the gov. busted that company up. [/FONT]
      [FONT=Georgia] The cst service people use to be nice, but I got hold of 2 that had some kind of attitude problem. One of them was a total jerk the last time I wanted something changed I did it online.[/FONT]

    • Anonymous
      August 3, 2008 at 8:16 pm

      Terry-you always manage to make me laugh. Thank you for that. Visual me saw you knocking a hole into that cistern and getting a really quick flood of a shower-don’t forget the soap…know what you mean but it was a funny thought. And then you go and mention 20′ drop to the creek-I am not mowing your brother’s yard-hope the Z turn lands below me in the creek!!:)

      Got an hour nap but woke up with brain fog and I hate that-can’t even blame any meds on it-didn’t take any. Guess the forms will be a slow process tonight.

      Have a good night everyone. Emma

      PS Terry my brain just registered those measurements-that cistern is as big as my bedroom!!!!!! Phooey with a storm shelter-rent it out as a studio apartment…

    • Anonymous
      August 3, 2008 at 10:10 pm

      [FONT=Georgia][SIZE=3]Right now a person could probably take a bath in there, as I think there may still be water in it Emma. ๐Ÿ˜‰ [/SIZE][/FONT]

    • Anonymous
      August 3, 2008 at 10:55 pm

      Hey Terry, I meant to ask how your half sister is doing?

    • Anonymous
      August 3, 2008 at 11:21 pm

      [FONT=Palatino Linotype]She’s doing very good Emma, I talked to one of my niece’s today & she said they were moving her out of the open heart recovery unit. So hopefully now she is getting better & will soon be well enough to come home. Oh her son is getting married this Saturday at a resort close to Taylorsville lake. This one I’m curious about & I got an invitation to the wedding, so I guess you’ll know where I’m going to be. [/FONT]

    • Anonymous
      August 4, 2008 at 1:12 am

      Thanks for the holiday wishes. The actual holiday is tomorrow but lots of people celebrate on the sunday, instead of Monday.

      Well, quite the day at our house. The submersible pump in the well was definitely done. It is almost 27 years old so it doesn’t owe us anything but it was a pain to find one on a sunday. My hubby was down in the well, I was on top having a mild heart attack :p I hate when he is down there and it makes me very uncomfortable. Anyway, I had to run into town and buy a new pump and they definitely are not cheap. But you need water….Finally had it running about 4:30 so was glad that we could all have a shower at the end of the day.

      Tonight we went to watch the fireworks for the birthday celebration in my home town. We met friends there and we had a front row seat. It was spectacular. They had fire works I have never seen before. At the end, people were clapping and cheering and yelling happy birthday. It was a nice way to end a crappy day!:) Irv is out baling now as it was too dry earlier..from one extreme to the other!

      Have a great night everyone.

    • Anonymous
      August 4, 2008 at 2:05 am

      Glad you got your water and still managed to go to town and enjoy the fireworks. You must be three hours behind me anyway, if Irv is out baling-it 2am here. No rest for the farmer nor the farmer’s wife. Have a good holiday in the morning Jan………………Emma

    • Anonymous
      August 4, 2008 at 9:40 am

      I have to share this accomplishment…..I know its the small things that keep us going. Two years ago while I was in the hospital they opened an IKEA store about an hr away and I said that I was going to get better to be able to go. Well it took me 2 years to reach that goal but last week I made it. I was able to walk thru the store pushing a cart. I was there for about 5 hours total with lunch and all. It was an over whelming day and I paid for it with sore tired feet now after it but I felt like I climbed Mt. Everest! I guess it was on my bucket list.

    • Anonymous
      August 4, 2008 at 2:54 pm

      Excellent Jan! I have never been to an IKEA store, so it’s on my to do list. Based on what you said here, I guess I need to psych myself and be sure I am having a good day! We don’t have one in our province so it means travelling….we don’t get to do much of that!

    • Anonymous
      August 4, 2008 at 11:24 pm

      JanB-congratulations on a goal achieved and crossed off your bucket list. Not everyone can reach the top of Mt Everest and understand how good you feel.

    • Anonymous
      August 5, 2008 at 10:40 am

      [FONT=Georgia]Good Morning Ladies & Gentlemen ! Glad you achieved your goal Jan, I’ve been sitting here this morning trying to figure out why I even got out of bed. This is another one of those nuisance pain days, thanks to the numbness created by my old friend or enemy. Neuropathy, I hate this condition with more than a Passion it has done nothing but make my life nothing but pure misery. [/FONT]
      [FONT=Georgia]I have been watching my neigbor load those roll bales of hay this morning, the man simply amazes me. After being run over by his tractor & roll baler last yr & he survived it. He was right back doing the same thing this yr, he did last yr & the man is 77, he truly has to have a very strong will. [/FONT]
      [FONT=Georgia]Anyway Wishing for Everyone to have a good day ![/FONT]

    • Anonymous
      August 5, 2008 at 12:23 pm

      That’s not fair, Jan. You already have a nice IKEA store just west of Chicago and we don’t have any in Colorado or nearby. The closest one is in Houston, Texas. We both love IKEA stores.
      It’s quiet again here after a house full of people on Sunday and Monday morning. For breakfast our son-in-law and his two visiting younger brothers went through over a dozen eggs, big amount of hashbrowns and almost a gallon of orange juice.
      I spent some time putting loads of music on our daughter’s new iPod which she got free with the MacBook computer she just bought. And of course I had lots of fun with Sydney. I can tell she’s getting older and more independent. She was downstairs in the basement in what we call “her room” pulling all the children’s books off the shelf and looking at them. I went down on my butt to keep her company. I was also trying to move a stack of books downstairs step-by-step. Almost at the bottom they tumbled down. When I asked her if she could give me a hand she said: “No, I’m busy.” ๐Ÿ˜ฎ
      Sawyer is 8 months old now. He kept looking at me a lot like “who is that guy?” By the time they left I finally got him to laugh very cautiously.

    • Anonymous
      August 5, 2008 at 3:29 pm

      Ah kids. They are so cute. Your story reminded me of one of my own. I had asked my granddaughter to help me with something and she replied “No thank-you, Grandma.”

    • Anonymous
      August 5, 2008 at 7:45 pm

      I forgot to tell you guys about my experience yesterday. I was out wandering around the yard in my shorts, (the shorts part is important to the story:D ) looking for old “junk” to put in my rock garden. I found an old wooden spoke wheel in one of the old sheds and so I went in to have a look. There were these tall weeds in there that I had never seen before. I didn’t think anything of it and proceeded to go through them to the wheel.

      BIG MISTAKE!!!:eek: They were Nettles..the stinging kind. I had never seen them before and I hope I never see them again. Ouch, did that hurt. I still have a couple puncture marks today. I am heading out here right away with my jug of roundup. Those things are gonna be toast!!!!:D

    • Anonymous
      August 5, 2008 at 10:18 pm

      [FONT=Georgia][SIZE=3]Jan that sounds like what we call here Bull Nettle it grows wild around the river that dumps into Taylorsville Lake. Take my word for it, when that weed hits you it feels like a thousand small needles. We use to run into it all time yrs ago, when we went swimming in the river. It is very painful ![/SIZE][/FONT]

    • Anonymous
      August 6, 2008 at 7:51 am

      Hello everyone.

      It looks like I may finally get the ivig this week. The nurse came to my house to draw blood for IGA levels. Something I’d never had done. Of all the blood ever drawn, that’s never been done. The nurse was very very nice and I look forward to infusions at home. So far, at least.

      I took Connor school shopping last night and he picked out an outfit for his first day. He is painfully shy so I really have to persuade him that this is going to be a wonderful thing. He’s going to wear army like carpenter shorts with a tan button down shirt with an aligator on it. The shorts have a belt…with his bright blonde hair and brown eyes and tan…the kid is gonna look like a million bucks…not to mention one of his top teeth are about to come out. How cute is that. I’ve GOT to learn how to post pictures so that I can share him with you.

      Been missing my mom a whole lot. Probably b/c of the big day coming for my little man. I wanted to call her last night so bad….just like I always used to.

      The weather finally cooled off in Omaha…humidity down and I can breathe when I go outside.

      Happy Wednesday,
      well wishes,

    • Anonymous
      August 6, 2008 at 9:04 am

      [FONT=”Comic Sans MS”][SIZE=”2″]Ah Stacey
      Almost thirty years down the road and i still want to reach for the phone and call my Mom.
      i occasionally have that dream where she is not really gone from this earth but she is always in the next room or she just left.
      When the moon is full or nearly so, i look up and can see her pretty round face smiling down on me.
      Would love to see pics of Connor in his new outfit!

      Just go to Photobucket.com and create an account (it’s free) then you can upload pics from your computer. From there it couldn’t be easier. i mean if i can learn how, anyone can!:o
      Actually our own Liz (codystanley) taught me how. She even has a ‘practice’ thread somewhere on here. If i can find it again i’ll post a link.

      Found it!

    • Anonymous
      August 6, 2008 at 1:26 pm

      [FONT=Times New Roman]You can also use Flickr I’ve saw several others to, well it’s another day of this nuisance numbness & it’s nice little pain that goes with it :confused: . I haven’t felt much like doing anything for the last couple of days, I’d just love to have one day of peace with no pain. Everyone hope you have a decent day ! ๐Ÿ˜‰ [/FONT]

    • Anonymous
      August 6, 2008 at 6:16 pm

      It actually was fun today. I had my first session of aqua therapy and I didn’t get worn out at all. Cris, the physical therapist probably went easy on me. I got used to walking around the pool holding on to the grab bar and later with just two floating handles. I did a number of exercises with my legs and arms and actually tried to float and paddling backwards like a dog. Carol was with me in the pool giving me support. Later in the dressing room when I asked her how she enjoyed it, she had to fight back tears. When I asked her what was wrong she said it was just so wonderful to be able to do something together with me.

    • Anonymous
      August 6, 2008 at 6:53 pm

      Norb, how sweet is that? This disease is sure hard on all of us. Those of with it and those who support us with it. Glad Carol was heappy being there with you and that it was even an option! Good on ya!

      Took my mom to the dr today and she has been diagnosed with Macular Degeneration. She took it really well, but I think she may be a bit nervous about the future. My dad had a massive heart attack a couple years ago and so is limited in what he can do. She does a lot of things like the driving that she had never done before. Now she may lose that. It will be tough on her but she is a strong woman and she will persevere!

    • Anonymous
      August 7, 2008 at 12:01 am

      Norb, Give That Wonderful Woman of Yours a Huge Hug for me!!!:) You are one Lucky Dog, Norb, to have a supportive wife like that!! How touching!!!

    • Anonymous
      August 7, 2008 at 8:38 am

      [FONT=Georgia]Ditto on that one for your wife Norb, you have one great wife. ๐Ÿ˜‰ [/FONT]

    • Anonymous
      August 7, 2008 at 8:44 am

      My husband bought me a small pool in our yard and every weekend we take a dip. It does help us use those muscles. And is a good physical therapy.

    • Anonymous
      August 8, 2008 at 10:51 am

      Carol accepted a temporary job teaching high school German to fill-in for a teacher who’s having an operation. It’s going to start in a week. We don’t know yet whether it will be half or fulltime and how many weeks. We sure can use the money. We have to figure out arrangements for two doctor appointments coming up and what to do with the aqua therapy.

    • Anonymous
      August 8, 2008 at 11:37 am

      I’m sure things will work out Norb. And good for Carol!

      Going to be out mowing hay this afternoon. Spent most of yesterday baling and we are almost caught up to what is already cut. Whew! That is a relief. We are starting to see the end. I am anxious to have some time off. There is a Ranch hand rodeo this weekend in town so we are planning to go. I pray things work out so we can. It is events like wild cow milking, trailer loading, branding (they use paint), medicine in the field, etc. and then Sunday is stock dog competitions. It should be fun!

    • Anonymous
      August 8, 2008 at 5:10 pm

      Jan-I hope you and Irv have a good time at the rodeo this weekend-sounds like fun and interesting to see how someone else does the cowboy work that you do.

      Terry-sorry you are having a few miserable days. Would swimming in your lake or walking around a part of it help? Just avoid the nettles and snakes and the bear…..

      Norb-know you and Carol will figure out the plans. I have two fish stories to tell you–The fisherman are catching 13 ” lake perch right off the pier in 13′ water and 2. I am going on my first boat charter this weekend to catch salmon-I know the others just want me to get a license for the day so they can catch more-just another body-but will like getting out on the water–gonna give it my best shot anyway-have to get up at 3 am to get to the charter boat, and some nights I am just getting to bed then so am trying to turn my sleep habits around.

      Just checking in-my gp put me on Cymbalta for the neuropathy pain in addition to the neurontin, am quite tired and nauseated, but the pain is a little less in my legs. See my new neuro next Thurs.


    • August 8, 2008 at 5:55 pm

      You sound like an awesome person with a very full life!!! I do lots of manual labor type things too!!! I think you and I could have made it as pioneer women.
      ps, I am jealous of your life on a farm!!!! I would give up the pretentous suburbs in a heart beat! Have fun at the rodeo, the closest I get to one is when we go to the county fair. I love that fair!!!!

    • Anonymous
      August 8, 2008 at 7:02 pm

      My life is full Dawn. Some days I think it is too full, but I never have to worry about being bored! I have always wanted to be out there helping but we had three sons and they were always helping their dad so I ended up doing the “woman’s” work ๐Ÿ˜€ . Now they are grown, gone and have their own jobs so I get to learn so many new things.

      Today I was mowing hay with the haybine and was making my first round. It was going good, finished that round and was getting to the second round when I realized I hadn’t put the hydraulics down so the haybine was not on the ground.:eek: Had to recut that swathe. I hope no one notices, ๐Ÿ˜ฎ but I am sure hubby will!

    • Anonymous
      August 8, 2008 at 10:28 pm

      [FONT=Palatino Linotype]This has been another day of whatever for me, I just sat around the house most of the day. Maybe this numbing pain will back off soon, well I got a call earlier today from my half sister. She was having problems so they had to go back in this afternoon & put in a pacemaker. [/FONT]
      [FONT=Palatino Linotype][/FONT]
      [FONT=Palatino Linotype]Tonight much to my surprise she called me to tell me she was feeling better, after that surgery today I could hardly believe it. Oh she wanted me to leave her a seat at her son’s wedding tomorrow as she could not be there. Maybe I should get a big peace of paper & write on it reserved & tape it to the chair. [/FONT]
      [FONT=Palatino Linotype][/FONT]
      [FONT=Palatino Linotype]Jan it sounds like you had one of those days, I’ve done that before with the bush hog. Didn’t let it down low enough mowing around the lake & had to go back over it. ๐Ÿ˜‰ [/FONT]

    • Anonymous
      August 8, 2008 at 10:34 pm

      Wish I could go back to those days of cutting hay… Always a sense of accomplishment…. Grew up dairy farming; made a lot of rounds, and a lot of squares… This time of year would be my favorite…baling hay, playing in the loft, filling up the barn, only to empty it again…., then go to the lake or cow pond in the evening… Sounds too Rockwell to me……tears…….. Enjoy…..Nowadays I watch the field corn grow…There is no way I could do that again! deanop

    • Anonymous
      August 9, 2008 at 12:17 pm

      Yeah Dean this is a great time of year. I love being out there but yesterday was a kicker. It was over 30 degrees C and I was on the open tractor ๐Ÿ™ It was sure hot and I was glad when my husband came at 4:30 and gave me a break.

      Today we are going to a ranch hand rodeo..wild cow milking, trailer loading, all the things a ranch hand does. Looking forward to it!

    • Anonymous
      August 9, 2008 at 12:55 pm

      Well Jan you have to let us now how the rodeo went.

      Terry-how did the wedding go? Did someone put a reserved sign for your nephew’s moma? Hope your half sister is doing better. Liked your pic of the 3 fawns-I have a doe with 3 also, although they don’t always come too far out of the woods.

      Well I am doing better-stopped taking the cymbalta after 3 days -hated that drugged up feeling-got advice to take it at night and may try that, but I want to go fishing tomorrow on the lake and be able to drive to my neuro next week, then we’ll go from there. Even drinking my coffee today, so having a better day. No doped up feeling and no nausea. Guess I will deal with the pain versus sleeping all day.

      Have a good weekend everybody.

    • Anonymous
      August 9, 2008 at 3:58 pm

      [FONT=Palatino Linotype]Emma the wedding is not till 5:30, I’ve already took a few photos of Taylorsville Lake as the resort or what ever you want to call it. Sits on a hill above the lake & if I wanted to get loaded it wouldn’t be a problem. As there’s all kinds of bourbon, tequila, vodka, rum, gin, beer & no telling what else. I don’t think I want to try drinking on this Lyrica, so I’ll watch everyone else. [/FONT]
      [FONT=Palatino Linotype][/FONT]
      [FONT=Palatino Linotype]At least it’s not hot today temps only 78 that’s the good thing as the ceremony is being held outside. Oh & if anyone wants to buy a home there’s one for sale there to, It’s $389,000 & the house is 4,000 square feet. Well it’s off here for me, as I’ll soon be heading there.[/FONT]

    • Anonymous
      August 9, 2008 at 8:52 pm

      Terry, On your way home, if you have extra, you want to bring a couple of 190’s over-Stu has got the punch, and it sold out lasr night……
      Hope the wedding went well.
      Let’s see, I could prorbaly afford that house if you loan me 387,000 toard it.Sounds big enough for 4 people.
      Take care.

    • Anonymous
      August 9, 2008 at 10:02 pm


      [B][I][FONT=Palatino Linotype][SIZE=3]Here’s a photo from the wedding it was held entirely outdoors My Nephew Jeff Waldridge & his new wife Stacie.[/SIZE][/FONT][/I][/B]

    • Anonymous
      August 10, 2008 at 12:06 am

      Terry glad your day went well.

      Went to the ranch hand rodeo today and really enjoyed it. I absolutely loved the Pony Express relay and the wild cow milking events. Makes my job loading the needles during vaccination time seem a breeze ๐Ÿ˜€ Wow, those cowboys and gals are good…..

    • Anonymous
      August 10, 2008 at 11:07 am

      Just sittin here peckin on the keyboard and watching triatheletes run by on their final leg of the race—boy they make me tired!!!
      Missing my kids-they are in Canada with their Aunt and Uncle til weds.
      Plans for cleaning the house while they are gone are put on hold til my leg gets better, I guess I really didn’t have the energy to do it anyways.:)
      Terry, looks like my kind of wedding. The Bride looks Beautiful, and the Groom looks Handsome!

    • Anonymous
      August 10, 2008 at 1:22 pm

      Ryan, our daughter, just came from Denver with Sydney and Sawyer for the day. They all left again after half an hour with Carol to go to Jax to find some hiking boots for Sydney. It seems like mothers and daughters always like to go shopping together ๐Ÿ˜€ Sawyer still isn’t sure about me as much as I try. Ryan is having an easy month with lots of days off. She sure earned it. She started making contacts with alumni looking for a job for next year when she’s done here. In the medical field it’s better to do it this way, she told us.
      anyhow, I’m using my free time to see what’s going on here.
      I’m making progress in the therapy pool getting used to the unexpected buoyancy and waves. I actually managed to walk across the middle of the pool with hardly any support from Cris. I must have looked like I was totally smashed- but I did it. This is learning to use all of my body to balance. I wonder if this is going to translate to dry land. That sure would be great.

    • Anonymous
      August 10, 2008 at 8:08 pm

      Norb, way to go on the progress. Sounds like this new place was a blessing in disguise!

      We hit the rodeo again today and watched the chore teams, ranch roping and a bit of stock dog competitions. It was a good day. Got home and hubby is now out baling so I am going to check in and then find us some supper. Hope you all had a wonderful day.

    • Anonymous
      August 13, 2008 at 4:24 pm

      I better hurry up before the gang shows up at the door. Our daughter has an elective rotation and she decided to do medical research — at our house. This way she doesn’t have to get a babysitter and we can watch the two kids. The only problem is, Carol took on this temporary job teaching high school German, second third and fourth level. Since she brought home the textbooks yesterday, she’s been all squirrly getting ready for it. I promised to help as much as I can and she’s been asking me a lot to help with pronunciation and spelling. She’s a bit out of practice since it’s been more than 20 years since she last taught it. Carol tends to be pretty tense before things actually start. Well, there is a lot to be prepared and this is quite different from just substitute teaching. I still remember the time when she was working on her master’s thesis or cramming for the licensing exam as a psychologist. That was a pretty tense time.

      I hope I can get away tonight for a little while to come to the opening of “Norb’s Cellar Kneipe”. I may have to ask one of you to take over when I leave again.:D

    • Anonymous
      August 13, 2008 at 5:13 pm

      Hey Norb-if your daughter is doing medical research at your house-does that mean she needs “patients” to study? I will volunteer as your “run of the mill-generic” cidp and help babysit too. How’s that?

      Just checking in-my ivig finished yesterday-2 days with 1 stick!!!! Having problems with my blood sugar today-blaming it on the ivig for now–have not eaten badly, strips are fresh, etc. so intend to check it a couple more times tonight. Drinking water and trying to rest, really tired and legs are hurting from ankles down. New neuro tomorrow, so will get that second opinion. Have a good night everyone.

    • Anonymous
      August 13, 2008 at 5:40 pm

      Unfortunately, she’s not into neurology. I’m not sure yet what kind of research, I think online.

    • Anonymous
      August 14, 2008 at 4:58 pm

      [FONT=”Comic Sans MS”][SIZE=”3″]Whew Norb,
      Sounds like you’re going to have your hands full!
      Hope it doesn’t prove too much, wish all the cyber grannies, aunts could help out.;)

      Too lazy to do much more than get out of bed today, it’s raining again and that makes me kinda blue. Where’s the sunshine?

    • Anonymous
      August 14, 2008 at 5:52 pm

      Bat? Sunshine? EEEK! ๐Ÿ˜€

    • Anonymous
      August 15, 2008 at 10:33 am

      Well, I got another round of hay cut yesterday. We are getting to the end of the main stuff. I will miss being out there doing “man’s work” (little joke around our house…the kids used to bug me about being in the house cooking, cleaning, laundry….woman’s work!)

      My plan for today is going shopping with my son for new glasses. He wants a second opinion so glad I can go with him!

    • Anonymous
      August 15, 2008 at 10:47 am

      I survived taking my son to his first day of kindergarten today. He looked SO handsome. He didnt cry and did so much better than I’d expected.
      I’m so proud.


    • Anonymous
      August 15, 2008 at 11:22 am

      OOOh, I didn’t expect to be alone here at the house that soon. Carol left at 7 for a teachers conference. She won’t be back until after one. Our daughter Ryan and the two kids just left a few minutes ago to go back to Denver. I thought they would stay through the weekend but she has to attend a meeting at noon today. School starts Monday, and Carol has to teach at least for three weeks. She found out yesterday that the German teacher she’s replacing has colon cancer, has had an operation last week and has to go through chemo now. We wonder if three weeks is realistic. At this point, Carol is a bit leery about doing it for any longer. It’s a lot of work. I’m hoping once she gets started she’ll like it. I’m also glad she gets under people again. I have a feeling she’s been missing that.
      It’ll be a while for me to get used to an empty house. Right now it’s an eery feeling.:eek:

    • Anonymous
      August 15, 2008 at 12:58 pm

      Norb, just think of all the time you’ll have to hang out at the Tavern. We can hook some carts up to your chair and you can haul dirt out of our tunnels to Canada. ๐Ÿ˜€

      All kidding aside, you will miss having Carol around the house. A person does get used to knowing there is a warm body somewhere in the vacinity. But you are supportive of Carol and her teaching so she will love you even more for that. Take care.

    • Anonymous
      August 15, 2008 at 3:42 pm

      Norb-Jan is right, the support you give to Carol and your family and to all of us is incredible. I really think Carol is in for more than 3 weeks, but maybe once she finds her comfort level again, she will be ok. Did you find someone to take you to aqua therapy? If I know you, you will get beyond that quiet, eery feeling of the empty house and fill it with music and find yourself occupied with something to help you find your comfort level. It takes a lot of guts for Carol to get out there and teach again and a lot of guts for you to encourage her. Hang out with us whenever you have time-we’re here for you Norb.

    • Anonymous
      August 16, 2008 at 11:14 am

      Thank you for all your encouragement. I know I will be okay. It just takes a while to get used to it. Carol didn’t come back until four, quite exhausted because there was just too much to take in. I’m sure once she actually starts teaching things are going to be easier for her. We rescheduled the aqua therapy for a later time and different days, Tuesdays and Thursdays when she can get out earlier.
      I need to answer an e-mail I received yesterday. This woman’s father has CIDP and was just moved from Texas to Denver. She read my website and has a lot of questions about Medicare etc.

    • Anonymous
      August 16, 2008 at 11:20 am

      [B][FONT=Courier New][SIZE=3]I’m here backache np & all this morning, Norb just wanted you to know I’m Pulling For You ![/SIZE][/FONT][/B]

    • Anonymous
      August 16, 2008 at 6:52 pm

      Busy day today. Our two youngest sons were out so made a nice big dinner. Did work around the yard, and am now eyeing up a book I have started but haven’t had a chance to really get into.

    • Anonymous
      August 17, 2008 at 2:55 am

      aahhhh, can’t sleep again. It’s interesting to see who the night owls are on here after mid-night. Must be all having the problem of sleeplessness.
      I’d give anything for a good solid 6 hours uninterrupted.
      Sweet dreams to the rest of you.

    • Anonymous
      August 17, 2008 at 10:50 am

      JayDee, sleep seems to be an issue for all of us….I sleep but never feel rested. I seem to wake up 20 times a night and am forever tossing and turning. I can’t seem to ever get comfortable. Maybe I should get up but then I can’t seem to get back to sleep. That leads to being exhausted all day. ARGHHH!!!!

    • Anonymous
      August 17, 2008 at 11:11 am

      this was one of my better nights. I woke up at around eight hearing children’s voices in our living room. Our daughter Ryan must have come back unexpectedly with Sydney and Sawyer, I thought. but I was disappointed when I found out that Carol had gotten up early and was at the computer listening to German tutorials from youTube. Now she asked me to figure out a way how to burn it onto a DVD so she can take it to school. I have no idea how to do that so I have to do some research. Talk to you later.

    • Anonymous
      August 22, 2008 at 10:56 am

      This weekend is the Peace Corps reunion and conference here in Ft. Collins. It is here where it all started in 1960. Three researchers at the Colorado State University submitted a plan to Hubert Humphrey, who was one of the presidential candidates. JFK took over the plan and in 1961 it was approved by Congress.

      I’m really excited about this. Later this afternoon we will go to the “Procession of the Peace Corps Nations Flags” followed by a “Symphony for 1000 Drums”. There are a number of other events throughout the weekend open to the public including the “International Peace Corps Photography Exhibition”. One of Carol’s photos had been accepted for this. I think I ‘ll skip the Qigong in the morning.:D

    • Anonymous
      August 22, 2008 at 11:21 am

      Have a great time and post us some pictures of it.
      Congratulations to Carol on her picture being accepted for the exhibition.

    • Anonymous
      August 22, 2008 at 2:33 pm

      [FONT=Georgia][COLOR=purple]Afternoon Everyone been kind of a miserable day for me today. Pain levels are at the nuisance level today, anyway hope you have a great time Norb. ๐Ÿ˜‰ [/COLOR][/FONT]

    • Anonymous
      August 22, 2008 at 5:25 pm

      Have alot of fun Norb. Hope the weather stays great and you get to enjoy your weekend.
      So sorry to hear you are in pain Terri! Hope this evening it eases up for you and you feel better this weekend.

    • Anonymous
      August 23, 2008 at 12:47 pm

      Here some photos from the Peace Corps outdoor event. There must have been over 100 flags but I don’t think they had near 1000 for the “Symphony for 1000 drums” that followed the parade of flags. It was fun to be there, meet people and sample the ethnic food. We had a meal from Ethiopia, very delicious.


    • Anonymous
      August 23, 2008 at 4:11 pm

      Hey Norb! So glad you got to enjoy your day out! The photo’s looked like it was a fun day! Hmm! The Ethnic Meals sounded good too! I ate some Jamacian food a while back ago and boy was that good Never ate it before and tried it for the first time.
      I’m hoping to someday see a German Restaurant come around to my town! I love German food. But so far no luck, so I cook it myself!
      So glad your day turned out great! ๐Ÿ˜€

    • Anonymous
      August 28, 2008 at 7:44 am

      Hello all.

      I’m trying to plan a bday party for my soon to be 6 yr old. Where has the time gone! He wants a Star Wars party and boys only. I got the decorations, plates, invites, etc…all Star Wars and do you think I can find a cake ? All of the Star Wars Cakes are discontinued in my town. We went to a few bakerys and both had a picture of one with a yoda holding a light up sabor. But, all they had were the pictures. I called every bakery in town. I was told they all use the same provider and no longer have the Star Wars.
      Nice . You’d think they’d still have it with the Clone Wars movie just released…sheesh.

      I went to a bakery in a upscale part of town and the guy told me he could create anything. The cake will cost me 38 bucks. If I want threre dimentional, it will be an additional 30. No thanks on the three dimensions. Other bakeries wont use a napkin or picture to draw b/c of copyright issues. Crazy if you ask me. This 38 dollar cake better taste like Heaven. ๐Ÿ™‚
      He’s worth it..

      I’m going to see a PHD today. I guess for some counseling to help me with the many issues I seem to have. I wonder how long this lady has me down for ? Actually, I look forward to getting alot of things off my chest. It’s been a very rough year …or two even. My GP probably thinks I am massively depressed. Every time I see her, she’ll ask how I am doing, and I cry. I am a bit emotional at times…and she is sooooo caring and kind, I guess I just break down on that one to one confrontation. I’m not sad all the time, really.
      But, I do think it’s time to talk to someone. If it doesnt work out, I cant say I didnt try. I just dont know where to start !

      I hope everyone is well and have a great weekend !

      Well wishes,

    • Anonymous
      August 28, 2008 at 8:58 am

      Had a birthday party this past weekend for 8 yr old great niece. She wanted cinderella cake. I baked a white sheet cake with white icing, decorated with blue icing trim & blue sparkles on top. Bought a mini cinderella in toy dept. at walmarts with a blue bird, put it on cake with blue glitter candles.
      We can buy a cake or bake a cake but when your little one first sees the cake, it will not only taste like heaven but look like heaven to them. I always have to capture that moment in a picture to treasure and am sure you will also. ENJOY!!!!
      Good that your PHD is kind and caring. You have had a lot of issues, cry, talk and get it off your chest that’s ok and it helps. That’s a good place to start.
      Take care, thinking of you.

    • Anonymous
      August 28, 2008 at 9:05 am

      Hope the Birthday boy has a great day! I agree that cake better taste wonderful. But I’d hate to have to cut into it, haha. Glad you are taking some time to care for yourself. Let us know what she recommends, might help some of us who haven’t gotten the courage yet to go to a professional yet ๐Ÿ˜ฎ Good Luck and Best Wishes!

    • Anonymous
      August 28, 2008 at 9:31 am

      What a cool mom you are for tryig to get Conner what he wants for his b-day. My grandson is natorous for asking for a gift impossible to find, he just turned 9) This yr. it was Ray Nystero(sp) wrestling guys mask. My daughter finally found them on line. He was thrilled. It is the best to see their face, priceless.
      Hope all goes well for you at the PHD, just let it all out!!!!;)

    • Anonymous
      August 28, 2008 at 11:24 am

      Stacey good luck today with your session. putting into words what’s going on is always helpful.

      the Colorado Department of revenue just turned down our request for a refund. They said a lift is taxable. we might try some other approaches to get our money back because in our opinion a ramp is not a lift. We have to look at the tax code again.

      Anyway, I’m not going to let this take away from the day I planned. I arranged for a van to pick me up at 11 a.m. to go to the new Super Target. first thing I’ll do is to get a pizza and a Coke. They have the pizza-hut inside the store. I need new glasses and the old ones need to be fixed. I lost a screw and when I went to school two days ago Carol tried to fix it for me but dropped it. It was so tiny that we couldn’t find it any more. I also want to look around for some kind of cushion for my wheelchair. If I sit in it too long especially longer distances, my butt hurts. The contour cushions they sell on the internet cost $150. There ought to be something cheaper. Carol is going to pick me up later after she gets out of school. That high school is just a few minutes away from the target store.

    • Anonymous
      August 28, 2008 at 7:38 pm

      I tell you what Norb! Medical supplies are not cheap! My doctor gave me carpul tunnel splints and I got charged $150.00 for those suckers. Shoot! I could have made me a set much cheaper! ๐Ÿ˜€
      That IRS on medical stuff! Ohh they really but a bug up my behind! How in the heck can you get out of your house without a ramp. And they call that a luxury! I call it something else! Not cheap being disabled either. Not cheap at all! I hope you get better Norb! Hugs

    • Anonymous
      August 28, 2008 at 8:22 pm

      Oh Oh!!! Norb lost a screw:D Could it be where you left your marbles?:eek:

    • Anonymous
      August 29, 2008 at 9:09 pm

      Our son just finished his 4 year tour of duty with the Marines June 27.
      Unknown to us, his wife called us today and let us know he went into the Army on July 22. He is going to school at Ft. Rucker Alabama, and graduates Sept 26. We were so relieved when he got out and we didn’t have to worry about him going to Iraq, now those worries start all over again!
      God bless him and all our military.

    • Anonymous
      August 29, 2008 at 10:57 pm

      [FONT=Palatino Linotype]Shirley your son must really like military life, that is totally unbelievable. Why didn’t he just re enlist in the Marines, now he has to go back through basic training, then advanced training & who knows what next. I just can’t hardly believe that, I’m hoping for the best for your son & for you to Shirley,[/FONT]

    • Anonymous
      August 30, 2008 at 6:54 am

      Terry, he didn’t have to go through basic again, just had to pass his physcial fitness test. He had always talked about going in the army as a kid. He is in aviation school at Ft. Rucker.
      Thank you Terry. The best to you also and hope you get some pain free days.

    • Anonymous
      August 31, 2008 at 1:59 pm

      Shirley, whether you live in Canada or the USA, our troops are so important to the safety and security of our countries. It is because of people like your son that alot of us can sleep in peace each night. God Bless our troops.

    • Anonymous
      August 31, 2008 at 3:00 pm

      You are so right.
      Thank you

    • Anonymous
      September 1, 2008 at 11:49 am

      what a pain. I’ve been found out. A few days ago I started getting deluged with spam. Today it was 93. My Internet provider has a pretty good spam filter and sends me a daily summary. I still have to look through them to make sure its all spam. I thought I was being so careful when I encrypted our new e-mail addresses on our website. somehow it must have leaked out when I signed up for something. Now someone is selling my address. I hate spammers ๐Ÿ˜ฎ

    • Anonymous
      September 1, 2008 at 12:08 pm

      I hear you about the spam. I had 64 myself this am…..I was even doing the “unsubscribe” thing that many of them have and that doesn’t seem to be making a difference. I get so many improve the sexual performance offers that if I just read them I wouldn’t have any time left in my day! Any suggestions for stopping the deluge short of changing the address?

    • Anonymous
      September 1, 2008 at 12:28 pm

      I put Spamfighter on my computer and within days the deluge ended. I get an odd one but it is so rare that I am happy with the outcome. It is a free program youcan download from the internet.

      If you decide to try it, don’t do the mass mail out to all your contacts notifying them of you using it. (It asks you if you want to have your contacts white list you.) It caused me more trouble than the spam did. ๐Ÿ˜ฎ

      Good luck.

    • Anonymous
      September 1, 2008 at 3:46 pm

      [FONT=Georgia]Jan I’m currently testing the 2nd beta version on IE8, it has a privacy setting that will block your information from online websites. Here’s the info about the privacy setting on IE8[/FONT]
      [I]InPrivate Browsing[/I] prevents Internet Explorer from storing data about your browsing session. This includes cookies, temporary Internet files, history, and other data.
      [I]InPrivate Blocking[/I] helps prevent the websites you go to from automatically sharing details about your visit with other websites. To help protect your privacy, some website content might be blocked.

      IE 8 is supposed to be released sometime in late October, like I said before I’m testing it.

    • Anonymous
      September 1, 2008 at 4:10 pm

      Interesting. Let me know how this works out as it would be good to have. I get so sick of the spam, and it bugs me especially when I think I have been so careful with where I give out our email.

    • Anonymous
      September 1, 2008 at 9:24 pm

      to increase security of web browsing by preventing cookies from being stored on our computer usually is a good idea. however, they do not contain our e-mail addresses – as a rule. I just scanned my entire computer and could not find one cookie containing the address. I have not blocked cookies on my computer because many times they do serve a practical purpose. here an example of what’s in some of the cookies. The one from GBS-CIDP for example saves me from having to login every time I open it.

      at this time, I do not know how our e-mail address finds its way to the spammers.

      the spam filter my Internet provider offers is pretty effective and not much shows up in my mailbox. However, like I said earlier I still have to scan what’s in the spam box to make sure nothing ends up there that I do want.

    • Anonymous
      September 1, 2008 at 11:17 pm

      I get spams all the time.

      I have a question tomorrow morning I see a new Neurologist one of the best in Canada. I want to be able to get a copy of the zap test. But I am afraid they will say “well you won’t be able to read that” I am not very assertive but would like a copy to see and study it and get an idea. Also it helps if another DR wants to see it I could make copies to give out to who ever needed it.

      I think if the DR really listen to me he will give me some prednisone then have me retested in about 6 weeks.
      I feel my major problem I have is tendinitis. I got swelling in my hands toes and legs and arms. I feel if I had prednisone the swelling would go done and the next testing he would see a difference. Last year when I was losing my hearing I was put on a high dose of prednisone and some swelling went down in my hands and feet. But I got that right after having 5 days of IVIG. My follow up result showed an improvement but she thought it was due to the IVIG. In January I had more IVIG and it didn’t do a thing.

      I have been on inflammatory pill since March 2007 with very little progress only the prednisone helped me. But nobody wants to give it to me. I feel 80% of my problems is due to my Tendinitis. I feel if I could get rid of my tendinitis my major depression would go away. Tendinitis is affecting to much of my life.
      Will let you all know what happens at my DR visit which is tomorrow morning, 12 hours from now.


    • Anonymous
      September 2, 2008 at 5:13 pm

      I had my nerve testing today and the results were the same as they were in the fall of 2007. The DR it’s almost perfect. Very little showing I have CIDP. I get the impression from him it’s work related stuff. I have tendinitis but I think it started at around the same time I got my CIDP because a few months earlier I had a fall at work and I don’t think I fully recovered.
      Now I want to google some information to help me read these result. I manage to get a copy. The lady says to me I won’t be able to read the result. But she left and the DR had a copy in his hands and I asked him for one and he gave me his.
      Now I have to go back to work tomorrow which I don’t really want to. It is becoming a place from hell.


    • Anonymous
      September 2, 2008 at 5:55 pm

      Sue, I am so sorry work is not going well. That can be a challenge. I am glad you got a copy of your results. Good for you for asking. I never think to but I need to start. So does this mean you don’t have CIDP? Wouldn’t that be a blessing. If it is work related, well that says alot about how stress affects us.

      Hang in there. Good luck with work.

    • Anonymous
      September 2, 2008 at 6:16 pm

      Hi Jan I have CIDP but I think just a mild case because the test shows I recovered very well. But I still have problem with my strength and I do have tendinitis and I had a fall at work a few months before I got CIDP. I had problems with my lower back and any gripping with my hands wasn’t go for it. So I went for 6 weeks of physio therapy paid my Workers Insurance Safety Board. But on my last visit with the family DR I had at the time she said I didn’t need anymore follow even though I was still experiencing pain in my lower back.

      Since the spring of 2007 I wasn’t being treated very well by management and staff. This year is a bit better but some lead hands and other employees are down right mean making my depression which was very bad last year (but I thought I was recovering) very bad again. Let just say I hate my life and life in general.


    • Anonymous
      September 2, 2008 at 6:48 pm


      How far is Cornwall from Belleville? I sent you a PM.

    • Anonymous
      September 3, 2008 at 8:20 am

      I thought I would try to attack my spam issue from more than one dimension. I was rather proud today that I had 6 messages in the deleted folder without my help. I thought I would share my fight and gather more ideas from the rest of you. I set up a rule in my email that looks at the subject line of my messages and if it sees the match it deletes it for me. My biggest spam offender was “improve your sexual life” so I told it whenever it sees those words to put the message in my deleted folder. It worked great. I am also blocking senders as they come….I don’t have a setting that I can find to block strangers to my contact list so I will do them as I see them. I’m sure its a never ending battle but it seems too be bad lately. Keeping up with email is almost a full time job!

    • Anonymous
      September 3, 2008 at 9:59 am

      [FONT=Georgia]I don’t use my personal email addy anywhere, I do have a hotmail acct & a yahoo mail acct. I set both of them to send emails from contacts, that are not in my address book over to spam & to delete them automatically. I do have one of my uncles that likes to forward me a lot of stuff, I’d rather not see though.[/FONT]

    • Anonymous
      September 3, 2008 at 10:06 am

      JanB, be careful when you block senders. Sometimes spammers use your email address or that of people you do know to send their trash. That has happened to me. My email address has been used as has my boss’s. I ended up changing my address, although the ISP tells me it won’t help in the long run as they will learn that one too! ๐Ÿ˜ก

      The other thing I found out is that what you see on the screen can be different than what shows up in the blocked senders list so check your list often to ensure you aren’t blocking people inadvertently that you don’t want blocked.

    • Anonymous
      September 3, 2008 at 12:20 pm

      In Loveland yesterday the physical therapist made me get out of the pool after a few minutes and canceled my aqua therapy. She noticed my bandage under that foot sock I was wearing and wanted to look at it. There was fresh blood and patients are not allowed in the pool if that happens. When I got into our car with my wheelchair I was going a little too fast and cut my toe on the drivers seat. Carol wrapped something around it and I thought I was going to get away with it. I was pretty disappointed. Well the trip to Loveland wasn’t for nothing. The hydraulic ramp lift and door opener in our car stopped working last week. The only place close where they can fix it is in Loveland. It turned out that Carol accidentally knocked off a fuse in the back of the car. I don’t know why they left the fuse box so open.

      as far as spam is concerned, I’m not doing anything about it on my computer itself. Many Internet providers provide spam filters on their server. They have an option to go in using the Internet Explorer. mine is called Webmail. Once you login you can activate the spam filter, update the white list and the black list. once I did that no spam (80-90 per day) has been coming through when I pull down my mail with Outlook.

    • Anonymous
      September 11, 2008 at 12:12 pm

      The last few days both our computers were awfully “sick”. It actually was my own fault. I installed the new Internet Explorer eight and only found out later that it is terribly unstable. I could no longer sign onto our bank. When I tried to roll back the system to an earlier day, it failed. Then I wanted to restore to factory settings using a set of recovery DVDs I created when I first bought it, it totally died. I spent all day yesterday reinstalling everything from scratch and I’m still not done. [QUOTE]My voice like a commission program acts like it has never hurt me before it makes terrible mistakes.[/QUOTE] this is just an example of what is happening. What I wanted to say was [I]”My voice recognition program acts like it has never heard me before” [/I] some of the things it comes up with are actually funny.

      Well, that’s my latest adventure, just wanted to check in.

    • Anonymous
      September 11, 2008 at 10:02 pm

      Norb, my voice unit does the same thing! and it doesn’t help to yell at it, cause it comes back with something that resembles greek to me:D

      Friday I get to go see yet another specialist, as my son calls him, a pee dr(urologist) Maybe I will get a few questions answered and get more tests ordered to see exactly what the masses are in this old body:( been having a problem getting into my dr, he is booked and wants to see me in the middle of next month, alittle too long to wait if you ask me, especially if it turns out to be serious like cancer. Trying to keep the positive vibes going but its beginning to take its toll. Per, I think I need a Big Texas bootin!!!;)

    • Anonymous
      September 12, 2008 at 7:55 am

      Hi Norb! Hope you get the computers up and running again. And hate you missedthe Aqua Therapy. I would love getting into that program. Would be good for me in the winter months. Hope your weekend goes well!

    • Anonymous
      September 12, 2008 at 12:26 pm

      Still working on the computer. That’s what happens when you’r a computer geek and installed all the bells and whistles.
      Hope you can get in to see a doctor soon, Cheryl, and it’s nothing serious. I didn’t know you were using a voice recognition program, too. Are you having problems with your fingers like I do?
      Our daughter Ryan came last night with Sydney and her baby brother. She got up at 4 a.m. to go back to Denver for an early shift. She will be back tonight and stay overnight. Sawyer has finally gotten used to me and I can get him to laugh.

    • Anonymous
      September 27, 2008 at 3:12 pm


      I have a pretty exciting week coming up. Tomorrow three new Thai friends are coming to the house bringing Thai food for lunch. ๐Ÿ˜€ After that I’m going to help them upload their new website. Some of it is already out there (see above). They are three enterprising young sisters in their 30s who recently opened this cool Thai restaurant in town with the best authentic meals in the area. One of them was studying design here at the University and has created this really great looking website but needed help with the technical part. So this week I spent a lot of time learning how to use her program, Dreamweaver, to upload her pages.
      And Monday our daughter is going to come from Denver with the grandchildren for two days. In the afternoon the coordinator of volunteers of America is going to bring a new companion and her son over here for me to meet. The one who used to come over to the house for 2 hours every other week while Carol went to Denver, left to live in New Zealand. This new one is from Germany.
      We also will schedule one day to go to the pool at the senior center to do my exercises since I graduated from the aqua therapy program in Loveland.
      Friday I will be “fitted’ with a PICC line again and Saturday the semi annual meeting of the regional GBS/CIDP chapter will take place in Denver.
      I wish every week was filled like that.

    • Anonymous
      September 27, 2008 at 10:04 pm

      Wow Norb, you have a mostly fun filled week! Enjoy! I had a PICC line when the docs where trying to figure out the gunk that kept coming back in my sinuses prior to GBS. You said “again” so you know what to expect. It doesn’t exactly hurt but it sure feels strange going in. My PICC line was sutured in place on the inside of my arm. And after 8 weeks the line was to come out…the skin healed around the sutures and that was the worse part. The nurse trying to get the sutures out to take the line out…ouch ๐Ÿ˜ฎ Afterward she says we should have taken out the sutures after the first week and used the special tape bandages that were in with the weekly supplies, grrrrr ๐Ÿ˜€ Have a great week and hope all goes well with your procedure. Hugs!

    • Anonymous
      September 28, 2008 at 2:20 pm

      [FONT=Georgia]Well Norb I hope everything goes ok for you, lately things have been going in a not very good direction for me. I got a nasty injury to my right arm & spent the biggest part of the day in the ER, getting it taken care of. Then this past Friday I got the stitches removed, well I woke up this morning & one of the areas that was stitched up. Had opened up so I made another trip to the er this morning, the Dr looked at it & said I needed more help with this. [/FONT]
      [FONT=Georgia]So I’m being referred to a wound care center in the morning, what next I don’t think I’m going to try & celebrate anymore birthdays. Seems like any more something goes wrong.[/FONT]

    • Anonymous
      September 29, 2008 at 7:11 am

      Terry, we need to figure out how to turn your luck around ! I hope things get better for you soon !

      I watched Nebraska’s game Saturday. We didnt play very well. One player tho, returned a touch down like 80 yards. I dont know how to call the plays. Anyway…kickoff return, touchdown for 80 yards or so. That sounds right. :rolleyes:
      The commentator mentioned that this player, Swift is his name, had fallen out of his bunkbed as a child and was paralyzed. Said he’d had GBS as a kid. I was intrigued by this and so happy for him that now he is a very talented football player.
      I guess there is hope afterall.

      Maybe not for me…but for many.

      It’s gonna be a crummy week for me. IVIG Friday but I might change it to Wednesday so I dont feel like crap for the weekend. I dont feel good today…that’s never a good start to a week.

      We went to the apple orchard Saturday and got lots of goodies. I love carmel apples !

      Have a good week everyone………

      well wishes,

    • Anonymous
      September 30, 2008 at 6:25 am

      Well, we’re very unsettled ๐Ÿ™ The economic tumble has shut down heavy construction here so we are going to have to move to a larger area. How I don’t want to move again! It took me several months to get back on my feet the last time. I don’t really mind the “adventure” part of it, just the work ~ ha! Guess I need Jim’s virtual “Merry Maids” and a moving van ๐Ÿ˜€ It may take 2-3 months to make it all happen but after it does, I’ll meet you all at The Tavern ~ my treat!

    • Anonymous
      October 10, 2008 at 3:46 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Hi everyone,
      Greetings from the shore of the Sea of Despond.
      Since we last met, have been n a deep depression, finally making my way back but with a heavy heart. Gemini, my 18 year old cat has been failing and we are going to say goodbye at the Vet’s this evening.
      Will miss her so very much.[IMG]http://i253.photobucket.com/albums/hh47/oldbat2ccats/GEMCLOSEUP.jpg[/IMG]

      Missed you all, will see you in the tavern when things are better,
      Alte Fledermouse[/SIZE][/FONT]

    • Anonymous
      October 10, 2008 at 5:00 pm

      After wasting 10 months on Dr. Thomas we find at Cleveland Clinic that Bill has Amyloidosis Familial (inherited) his uncle died from. Every doc we saw knew this was on his family history.

      We have been told that it had to have come from his mother as it is handed down from parent. She had the gene but it never showed up as she died of leukemia.(so they say) I am very gun shy now re doctors. I only wanted the best for my husband so I let him make the decisions although I pushed hard for him to go for a second opinion. I pushed hard on physical therapy, not smoking, see a heart doctor(it has been 3 years and he has a stint) He was depressed and just did not want to do anything most of the time. The first thing Doc Thomas said is “It Happens” . Nice huh? I asked him why he did not test for it.
      He said he did on the foot bioposy but not a genetic test (dna) because Medicare does not pay for them. I guess $ is more important that Bill’s life. Anyway I also questioned him on no onion bulb in foot biopsy as I know if no onion bulb then no cidp. He said that is not true. Some does not show onion bulb. But Dr. Levin said emgs did not prove it and I know his spinal tap did not show it. He did sqirm a little. Also there is no demyelinating. I was angry and he could tell by the look on myface. He never looked at Bill much. Bill did not seem to be upset. Said he did not want to **** him off. Why I said? He said it did not do any good to get upset. I really cannot understand that.

      All I am saying now is that I have been told that they are trying to get doctors to check for amyloidosis because alot of people die before they can get treatment(only a liver transplant may do it) Thomas said there is not treatment and they do not usually do liver transplants for Amyloidosis. He just keeps being a jerk. Boston told me differently.
      With that I am closing. I need to think ,yell, scream, and cry. But wanted to thank all of you for supporting me and helping me. Sorry I could not give some good news.

    • Anonymous
      October 10, 2008 at 5:14 pm

      ๐Ÿ™ VERONICA
      I Understand.

    • Anonymous
      October 10, 2008 at 6:43 pm

      Sooo Sorry to hear that Veronica. I’ve been thinking about you lately. Take care, Hun!!!

    • Anonymous
      October 11, 2008 at 12:09 pm

      Joan, I’m so sorry you have to go through all this and know how difficult and scary this must be for you. When Norbert started having problems, I remember feeling angry with him because I thought he was maybe drinking too much or was not addressing his diabetes. Later, realizing this was an autoimmune disease that was out of his control, I felt really scared. It is difficult not knowing what will happen next, how quickly his symptoms will worsen, whether or not he will ever improve.

      It has not been easy having to take on more and more responsibility around the house, having to help him sometimes to shower and dress. So often, I felt so overwhelmed that I, too, wanted to scream and cry and withdraw.

      All of these medical problems are difficult for the patient. They feel they are losing control of their lives and their bodies. They get frustrated, fearful, and angry. Sometimes we forget that the caregivers are also feeling that their lives are out of control. We have the same emotions and dilemmas of our own to face. Suddenly, instead living in a relationship where there is give and take, where strength and dependence are shared, we are forced into the role of always having to be strong and to give all or most of the time.

      What helped me most in my situation has been to learn everything I can about my husband’s disease. Luckily, he wants to know this as well and has more hours to spend looking for information in the internet. We read about his disease. We talk about what it may mean for his prognosis and for our future.

      After that, I started looking into all the resources available to help us, from the federal government to local and state agencies down to our family and our very kind neighbors. We learned that he qualified for a power wheelchair and took steps to get him one. We found out that our county has a volunteer “handyman” program and asked for their help with modifications to make our lives easier. We learned that the local Office on Aging offers money to help hire respite care to give me a break. They even have an annual day of pampering for caregivers (massage, manicures, pedicures, aroma therapy, tai chi, yoga) all for free.

      Most of our family lives very far away, so we took time to explain what was happening to our neighbors. They are so kind. Sometimes they mow our lawn for us. Once in a while they bring over meals. But what is best of all is that they always take a minute to ask how we are doing.

      Another thing that helped me was to think about how lucky we are because my husband does not have much of the awful pain that usually accompanies his disease. Thinking of this and of other ways we are blessed helps a lot. Sometimes I have to think about the retched poverty in distant countries to help me feel greatful again, but when it works, I feel better.

      Finally, I have learned that this disease saps my husband’s energy and ability to advocate for himself. I do a lot of advocating. I contact the doctor when I think he is having problems. I go to all his appointments with him. I ask questions and insist on explanations. I search out information about new or different treatment options. Sometimes it is a difficult role for me to take on because for most of our marriage, he was the strong and assertive one. This situation has forced me to find my own strength and assertiveness and to take the action needed.

      I hope this helps a little. Again, I am so sorry for the difficulties you are going through now. Please know that you will be in my thoughts in the coming days.


      Carol…Norbert’s caregiver
      Things have not all been smooth sailing for us

    • Anonymous
      October 11, 2008 at 12:46 pm

      Carol. What a beautiful reply. Joan, I think Carol shares all our sentiments. I pm’d you. Will continue to think and pray for you both.

      Veronica, I have missed you, Old Bat!!! How are you doing today? Last night could not have been easy for you. I went through it last summer with our long time pet Kasey, a golden retriever who was 14 years old. Still miss her as she was very much a part of our family. I know this will be a challenge for you. Add in the other issues you allude to, well, what can I say but my thoughts and prayers are with you. Take care.

    • Anonymous
      October 11, 2008 at 5:14 pm

      [FONT=”Comic Sans MS”][SIZE=”2″]Thanks you guys.
      Yesterday was bad but today is a beautiful day, the colors of the trees are gorgeous in the afternoon light and have found a perfect spot
      under some trees to lay her little body to rest, will plant a new garden there too.
      Can see the spot everyday from my window.
      Know that her spirit or soul has already flown but is somehow comforting to take care of her right to the last detail.

      Have missed you all everyday but was just too down to do much more than play endless games of solitaire an the computer. Resisted going back on Paxil too long!
      Has been three weeks now and am getting back to my old (bat) self ๐Ÿ˜‰
      Better living through chemistry? nudge nudge, wink wink.
      Think i’m gonna go looking for Norb’s fountain (or bottle?) of youth.

      Thinking warm thoughts of all ya’ll
      Bye [/SIZE][/FONT]

    • Anonymous
      October 11, 2008 at 9:37 pm

      I haven’t been feeling great all week after having started a new round of Rituxan on Monday. Nothing serious but just yukky. Neurological symptoms have been getting worse the last four weeks, increased numbness in my hands, intentional tremor coming back. I am worried that the Rituxan is counterproductive, making symptoms worse instead of better. My antiMAG demyelinating proteins were up 50% 4 months ago instead of down. Won’t have results of Mondays blood test for another week or so. Monday the oncologist mentioned a viral brain infection as possible side effect but didn’t really stress it. Today I read up on it and it really scared me. It’s PML, Progressive multifocal leukoencephalopathy, a viral infection. It occurs in patients on immunosuppressive treatment and is almost always fatal. What is really scary is the finding that the virus is present but dormant in almost 90% of the population – sounds like herpes virus which I do have.
      I have a call in to my neurologist to discuss all this. She probably won’t call back until after my next infusion treatment Monday.

    • Anonymous
      October 11, 2008 at 11:39 pm

      Norb, that is real scary. I just finished reading up on it. I hope it turns out that you do not have this viral infection of the brain. Sorry to hear you have not been feeling well and that your symptons are worse.
      You will be in my prayers.

    • Anonymous
      October 12, 2008 at 3:13 pm

      My husband and I went christmas shopping and bought for ourselves before buying for others. That was a first for us. We bought ourselves a plasma TV, now he is hooking it up, we’ll be watching it shortly.
      Beautiful sunny day in the high 70s.
      Norb, hope you are feeling better.

    • Anonymous
      October 12, 2008 at 7:15 pm

      Hi Veronica Welcome back hope things start going better for you, sorry to hear you lost your cat. Norb I hope things turn out for the better, for you Remember I’m Pulling for you Norb !

    • Anonymous
      October 13, 2008 at 12:00 am

      Veronica. What a beautiful thought for your pet. Norb, I am keeping you in my thoughts and prayers. Keep as posted as you know more. You know we are here for you.

    • Anonymous
      October 13, 2008 at 12:50 am

      [QUOTE=norb]Joan, I’m so sorry you have to go through all this and know how difficult and scary this must be for you. When Norbert started having problems, I remember feeling angry with him because I thought he was maybe drinking too much or was not addressing his diabetes. Later, realizing this was an autoimmune disease that was out of his control, I felt really scared. It is difficult not knowing what will happen next, how quickly his symptoms will worsen, whether or not he will ever improve.

      It has not been easy having to take on more and more responsibility around the house, having to help him sometimes to shower and dress. So often, I felt so overwhelmed that I, too, wanted to scream and cry and withdraw.

      All of these medical problems are difficult for the patient. They feel they are losing control of their lives and their bodies. They get frustrated, fearful, and angry. Sometimes we forget that the caregivers are also feeling that their lives are out of control. We have the same emotions and dilemmas of our own to face. Suddenly, instead living in a relationship where there is give and take, where strength and dependence are shared, we are forced into the role of always having to be strong and to give all or most of the time.

      What helped me most in my situation has been to learn everything I can about my husband’s disease. Luckily, he wants to know this as well and has more hours to spend looking for information in the internet. We read about his disease. We talk about what it may mean for his prognosis and for our future.

      After that, I started looking into all the resources available to help us, from the federal government to local and state agencies down to our family and our very kind neighbors. We learned that he qualified for a power wheelchair and took steps to get him one. We found out that our county has a volunteer “handyman” program and asked for their help with modifications to make our lives easier. We learned that the local Office on Aging offers money to help hire respite care to give me a break. They even have an annual day of pampering for caregivers (massage, manicures, pedicures, aroma therapy, tai chi, yoga) all for free.

      Most of our family lives very far away, so we took time to explain what was happening to our neighbors. They are so kind. Sometimes they mow our lawn for us. Once in a while they bring over meals. But what is best of all is that they always take a minute to ask how we are doing.

      Another thing that helped me was to think about how lucky we are because my husband does not have much of the awful pain that usually accompanies his disease. Thinking of this and of other ways we are blessed helps a lot. Sometimes I have to think about the retched poverty in distant countries to help me feel greatful again, but when it works, I feel better.

      Finally, I have learned that this disease saps my husband’s energy and ability to advocate for himself. I do a lot of advocating. I contact the doctor when I think he is having problems. I go to all his appointments with him. I ask questions and insist on explanations. I search out information about new or different treatment options. Sometimes it is a difficult role for me to take on because for most of our marriage, he was the strong and assertive one. This situation has forced me to find my own strength and assertiveness and to take the action needed.

      I hope this helps a little. Again, I am so sorry for the difficulties you are going through now. Please know that you will be in my thoughts in the coming days.


      Carol…Norbert’s caregiver
      Things have not all been smooth sailing for us[/QUOTE]

      Carol: With all that you both have gone thru and yet you took the time to reply to me. Yes it hurts terribly knowing that even the only treatment is a transplant and that is not always something that works out either. It is still a shock. I have been keeping my crying to myself so as not to upset him but I did not yesterday and he seems so calm that either he really does not realize or maybe he is just keeping it a secret from me.
      So I am learning all over again and yes I too have been the active one. He does not get on the computer any more at all and has not for a long time. He said it depresses him. I spend alot of time looking up things and giving him things he needs to read. Fortunately he can walk with a cane and still drives but I do not know for how long. He is numb from knees down and also starting in hands and arms. Falls alot if he gets up quick and in a crown.
      He really has not been interested in doing anything. He is content to just watch tv and read the paper. I really thank you for your info . I just wish I could be more positive like you. It is just such a shock. I hope Norb finds out what is wrong with his head now and that it is fixable. I read he is scared and I believe he needs to share that . Unfortunately my Bill is just keeping it to himself.
      Thanks again and I will just keep plugging on and try to be stronger. Wish I had more faith like some of you.

    • Anonymous
      October 13, 2008 at 8:56 pm

      Hey Norb, been thinking of you. Any news? How are you feeling? Stay strong!!

    • Anonymous
      October 15, 2008 at 5:07 pm

      Thank you guys for your support. Apparently, I must be feeling stronger today after my second infusion Monday. We invited our three Thai friends, the sisters who own this cool restaurant in town, for an American barbecue this Sunday. The only problem was the hose on the gas grill caught fire a few weeks ago. Carol tried to unscrew it but couldn’t do it. Probably because she didn’t know which way to turn the nuts as usual. She always has that problem.

      While she was in the garden picking weeds, I slowly worked my way to the grill moving from one patio chair to the next. Can’t get out there with my power chair. Fortunately, I found an adjustable wrench in the garage remembering where I had seen one before. Carol is not too good at keeping tools organized – but I shouldn’t complain ๐Ÿ˜€ Anyhow, I slowly let myself down on the cement floor – pretty cold – and was able to unscrew the hose with considerable effort. Almost lost my pants on the way back in. They are only held up by an elastic band and the wrench plus the pieces of the gas hose were too heavy in the pocket.

      Hurray. Saved the barbecue on Sunday. I am worn out and had a drink. Need to stop at the Tavern soon.

    • Anonymous
      October 15, 2008 at 5:12 pm

      Norb Great to see you are feeling better


    • Anonymous
      October 15, 2008 at 6:59 pm

      Norb, funny image of you getting the tool, going chair to chair, down on the floor, fixing the hose and then the pants. Mission Accomplished !!! ๐Ÿ˜€

    • Anonymous
      October 16, 2008 at 12:01 am

      Norb, I know it is scarey to think about the possibility of PML, but it is very, very rare. When we talk about all the side effects of chemotherapy and rituxan with the families of children with cancer, it is tough, but often it helps just a little to know that you are fighting as best your team of advocates can what you DO have and so that is really a lot more important than a very small possibility of what you might possibly get or have happen. Do you see what I am saying? WithHope

    • Anonymous
      October 16, 2008 at 7:05 pm

      Glad to see you are feeling better! That Rituxan by having a few friends with Lupus taking it has some side effects that will make ya feel nasty but seems to do good prognosis wise. Hope you feel better more and more each day!
      I could picture you sliding and loosing your pants! LOL! Hugs
      Linda H

    • Anonymous
      October 17, 2008 at 9:24 pm

      [QUOTE=WithHope]Norb, I know it is scarey to think about the possibility of PML, but it is very, very rare. [/QUOTE]
      Thanks for the reality check. I guess I was having a bad day and everthing looked bleak. My blood test results today gave me the boost I needed. The antiMAG protein finally went down. (see thread “CIDP – Rituxan”)

    • Anonymous
      October 17, 2008 at 11:47 pm

      Norb, what great news! This must be a big relief for you! Let me buy you a drink to celebrate over at the Tavern!

    • Anonymous
      October 18, 2008 at 6:44 am

      Great news Norb! Hope it continues to improve for you! I just saw the charts! hugs

    • Anonymous
      October 18, 2008 at 7:02 am

      Norb, What great news. Keep improving.

    • Anonymous
      October 23, 2008 at 10:59 pm

      I did it this time! Today I found out I tore my muscle/tendon that goes from the top of the hip down along the thigh to just below the knee. My dr gave me an injection to see if we can get away with treating it conservatively since I’m already on pred. It is hurtin worse since the injection then it was before it. The only thing I did was tried to get into my van to drive to the store to get my meds and my kids some dinner. It was for nothing because the van wouldn’t start, the ignition went bad-actually was trying to start on its own without the key in it-possessed!:eek: Then my parents gave us a ride and had another battle with insurance over my script-so ended up not getting my gabapentin:mad: Since my car was out of gas, my Mom and Dad paid for my gas that we had to put in a can in their new car’s trunk–my lifesavers!:) All in all I had a full day of battles from the moment I got out of bed to the time I finally fell asleep. I am soo glad today turned out better except for the injury!:)

      Hope Everyone has an enjoyable weekend!!
      I’m off to eat my rum raisin ice cream now!!

    • Anonymous
      October 25, 2008 at 10:59 pm

      Norb, I’ve been praying for you, and will continue to do so. Take Care!


    • Anonymous
      October 26, 2008 at 8:31 pm

      This afternoon I shook his hand. What an amazing guy – what a beautiful fall day on the Colorado State University campus. We sat only about 50 feet away from the podium, nobody in front of us.:D


    • Anonymous
      October 27, 2008 at 2:23 am

      So cool, Norb! I wish that I had been there with you. I think that it is a great opportunity when one is able to “be up close” to a person who history writes about. I got to see President Reagan in Montana, and Prince Andrew and Sarah on their first wedding anniversary in Alberta, Canada. ๐Ÿ˜€

    • Anonymous
      October 27, 2008 at 9:46 pm

      At the Cancer Center of the Rockies Infusion Center today:

    • Anonymous
      October 27, 2008 at 9:50 pm

      At the Cancer Center of the Rockies Infusion Center today:

    • Anonymous
      October 27, 2008 at 10:16 pm

      Hi Norb! Wow are you lucky seeing Obama in person. He’s been in my state several times but not once has he comes to my town! So I have not had the chance to see him in person. I think he’s going to be a better President than McCain and Palin!
      Nice photo of you Norb, but hate having to see you at that center! Hope things go well for you! Hugs
      Linda H

    • Anonymous
      October 28, 2008 at 2:42 pm

      Yes Linda. I shook Bill Clintons hand in Minneapolis in 91 before he was elected and wanted to shake our next democratic presidents hand, too. Without being in a wheelschair this wouldn’t have happened ๐Ÿ˜€ There were around 45 Thousand people at the rally. See, being disabled has its advantages sometimes. I did see Carter in North Carolina during a rally in 76. He walked past me within armlenght but I was too shy then to stretch out my hand.

      We are off to Denver this afternoon to watch the grandkids for 3 days. Our daughter went to a medical conference in Chicago. We decided to leave the laptop here and take a break from the virtual world. I am taking Obamas book “Dreams..” along. Maybe I’ll finally get started with it now since I have this personal connection of sorts. ๐Ÿ˜‰

      [B]Cheryl[/B], did that injury get any better? Sorry you have to go through this on top of everything else.

      [B]Donna, Linda, Shirley, Jan [/B] thanks for you thoughts and prayers.

    • Anonymous
      October 28, 2008 at 5:24 pm

      Have a very nice trip and enjoy being with the grandchildren! Will miss not seeing you in here but hey? We all need some time to relax and get away from things. You lucky bird seeing Obama! I wished I could have been there! Hugs

    • Anonymous
      October 29, 2008 at 12:32 am

      Interesting area, so I am checking in and will be back.

    • Anonymous
      October 29, 2008 at 12:17 pm

      Norb, Nice shots!:) Boy you could of cleaned up here in the Toledo area! We have had Obama, Biden, McCain, Palin and Nadar here. Actually Palin is in Bowling Green right now and all but Obama are in the area the next few days again. Ohh and can’t forget Joe!!!:D He is on the trail with McCain and in BG with Palin this a.m. I think I would shake Joe’s hand first!!;)
      I’m still hurtin from my tear, Norb. Its a pretty black/purple color now. But on the bright side I’m able to walk as I was before the injury.
      Hope you have a good time in Denver with those adorable GrandBabies. Hope you get some pics! Take care.

    • Anonymous
      November 4, 2008 at 1:26 am

      It will be nice to see snow and the white blanket it leaves. Looking forward to the winter weather. Anyone have any good winter pictures?

    • Anonymous
      November 13, 2008 at 4:54 pm

      Carol came back with the top of a card board box and put it on the kitchen counter. “What’s that?” I asked.
      “We’ve been talking about pets. I am allergic to cats and you don’t want a dog, so I got these.”
      “I don’t get it. All I see is a layer of newspaper and some brown stuff sticking out on the side.”
      “Lift the newspaper and move the stuff under it around a bit”
      “This just is a bunch of shredded leaves. Smells musty. Where are the pets?”
      “Look closer”
      “Oh no – these are red worms. What are we going to do with them?”
      “We’ll feed them our kitchen scraps and they are going to change them into compost. It’s called vermiculture”
      “I can’t believe it. You and your crazy ideas.”

    • Anonymous
      November 13, 2008 at 10:17 pm

      Thats what I want to do, Norb. Except I can’t find red wigglers around here.:( The neat thing is its odorless when the worms get to working their magic. Enjoy your “pets”!!:D

    • Anonymous
      November 13, 2008 at 11:07 pm

      Norb have you picked out names yet? How many do you need? Maybe we could help! ๐Ÿ˜‰

    • Anonymous
      November 13, 2008 at 11:40 pm

      Jan, thanks. They are still babies. I need to wait til they are bigger so I can tell them apart. ๐Ÿ˜‰

    • Anonymous
      November 14, 2008 at 7:30 pm

      I had to go back a few pages–what are we naming for Norb, Jan—the red worms??? I have one think to add, YUCK….:D

      Norb-I spent the whole day listening to Eva Cassidy-I am hooked on that CD.
      Discouraged lately-it seems we are all going through our trials. How I wish I could wave a magic wand over all of us and make things better.
      Take care Norb and Carol. Wishing you all my best. Sending a hug.

      Cheryl-Sure hope your leg is better.

      Old Bat- So sorry you lost your companion. She watched over you all these years, now you can watch over her.

      Saying a prayer for all of us that tomorrow will be better. Take good care.
      Love, Emma

    • Anonymous
      November 15, 2008 at 11:38 am

      One name suggestion: Munch.:D

      Thanks Emma, its getting there, the only time I feel it now is when I stumble, it tends to get irritated when I do that:rolleyes: at least the black and purple coloring is gone now.
      Hope you are doing good, Hun.:)

    • Anonymous
      November 15, 2008 at 11:56 am

      Emma, glad you enjoy the CD. It’s one of my favorites. …not YUK – CUTE

      I need you to wave your wand right away, it’s urgent. Carol just received MRI results. She has a 1.7 cm Tarlov cyst in the sacrum area which explains the excruciating pain she’s been having for some time. We both read up on it. Doesn’t sound very encouraging, operation is not a viable option. All that can be done is pain management incl. Neurontin, change in life style like no heavy lifting (which she has a tendency to do), possibly change in diet, losing weight. What’s so frustrating is that I cannot help much like with lifting.

      What a pair we are ๐Ÿ˜ฎ Both of us disabled.
      here is the album cover:


    • November 15, 2008 at 9:27 pm

      So sorry about Carol’s news. Nothing they can do to shrink it? Will say some prayers, my magic wand is limp!!!
      Dawn Kevies mom

    • Anonymous
      November 16, 2008 at 10:18 am

      Saying prayers for Carol.

    • Anonymous
      November 16, 2008 at 10:41 am

      Hello Norb.
      First of all – prayers and hugs for Carol. And you, too. You both have to br “up” for each other and tht will take lots of prayers and hugs for both of you.
      Next – the new pets.
      Since RED worms are a very GREEN thing to do ~ I suggest naming the oldest most grizzeled one RED GREEN.:rolleyes:

    • Anonymous
      November 16, 2008 at 1:57 pm

      Carol, You are in My Prayers! Norb, thats what neighbor boys are for, to help when you need it. You guys are the cutest “pair” I have ever seen!;) Please take good care of each other!:)

    • Anonymous
      November 16, 2008 at 4:40 pm

      I am so sorry to hear about Carol. I hadn’t heard of this before and happened upon the Tarlov foundation. Here is the website in case you haven’t seen it.
      [url]http://tarlovcystfoundation.org/Home.asp[/url] It sounds very painful. Take Care,

      By the way, I think Stormy has a perfect name for one of your critters….Mr Wiggles! You could name one in honor of him!

    • Anonymous
      November 16, 2008 at 5:58 pm

      Thanks, guys – and thanks, [B]Jan[/B], for the link. We found it already. Yes, it’s very painful. Many times Oxyconton won’t help then she takes a few drinks. She wants me to ask her to show me her happy face whenever she moans too much. I suggested to her to ask for Neurontin when she sees her doc hopefully this week. I feel so bad for her. She thinks it all started when she had her 3 babies, they were all very big. Some of the symptoms she’s had since then now make sense, she says. Up to 9% of the population has it, mostly without or minor symptoms, 85% women.

      [B]Dawn[/B], shrinking doesn’t seem possible. There are no good solutions. Only a very small number of doctors will even touch it.

      [QUOTE]By the way, I think Stormy has a perfect name for one of your critters….Mr Wiggles! You could name one in honor of him! [/QUOTE]

      I have to start making a list with all the good suggestions. Carol built a worm condo for them yesterday, a tub with holes cut and a raised wire mesh at the bottom. They were so excited, doing well, working hard and growing.

      [B]Cheryl[/B], are you really interested in doing your own farming? Perhaps we could send you some after they had their own babies. PM me ๐Ÿ˜€

    • Anonymous
      November 16, 2008 at 8:01 pm

      Hi Norb, just learned of Carol’s condition. I am sorry, please give her a hug for me. I looked up the website provided, sure sounds painful. Has she asked her doc about aspiration? When I first was released from the hospital after rehab I bent over to get a washcloth and my legs gave out and fell smack on my butt. My tailbone was sore for a long time. I can’t imagine Carol’s pain never going away. Take care of each other as best you can.

    • Anonymous
      November 17, 2008 at 9:16 am

      Does your new community smell while they are doing their thing? How much space do they need? How many live in the commune? Are your new pets supposed to be better than earthworms?

      Can you tell I am looking for an education here? :confused:


    • Anonymous
      November 17, 2008 at 10:54 am

      Jan, no, it doesn’t smell if you do it right, not add more food than they can handle. Actually, the compost they are making smells good, earthy. It’s a 18 gallon Rubbermaid tub. No idea how many, they will multiply but only as much as the environment can handle. Earthworms will not survive.

      Aspiration may be an option but her insurance won’t cover it since it is a pre-existing condition. She has to wait 5 years until she can go.on Medicare.

    • Anonymous
      November 17, 2008 at 10:59 am

      I read on the cyst that Carol has. Sorry she has to have something like this that is giving her so much pain. Hope Dr. finds some type of pain relief medication for her.
      Both of you take care the best you can.

      A name for your list — Squirmy

    • Anonymous
      November 17, 2008 at 10:49 pm

      Well that is a neat idea about the compost and red wiggly worms. Hope to see Carol doing better. Norb! You have such a wonderful personality! Not too many like you around. And you certainly do not look your age. You look so much younger!:D
      Linda H
      First time in a week getting some time to get in here! Ohh I get my first treatment this coming Friday! Will let you know how I do!

    • Anonymous
      November 18, 2008 at 9:51 pm

      Oh Linda, I don’t know what to say. Well, I named one of the worms in honor of you ๐Ÿ˜€ Good luck with your treatment.


    • Anonymous
      November 18, 2008 at 10:24 pm

      Oh dear Norb! ROFL! You got me laughing so hard I almost wet my jammies! LOL! Too funny! You certainly make this site alot of fun to come too! HeHeHe! Thanks for making my day! Can’t wait to see Smiley and Cheryl and the rest come in here! LOL! Well at least I can go to bed smiling tonight! I can’t stop laughing! I’m about to fall out of the chair! Norb! Your fantastic! LOL! Only you would have thought of this! Thanks for making my day! Hugs!:D ๐Ÿ˜€ ๐Ÿ˜€

    • Anonymous
      November 19, 2008 at 7:00 am

      Good Norb, real good. Funny Funny Funny! ๐Ÿ˜€ ๐Ÿ˜€ ๐Ÿ˜€ ๐Ÿ˜€
      I can’t stop laughing.
      I’m waiting on the others to see this.

    • Anonymous
      November 19, 2008 at 8:30 am

      Norb, I’ve Never looked better!!!!!:D Do you want a seperate brag thread for us???;) ๐Ÿ™‚ Is there a German name that we call you? Just curious.

      I can wait, and yes warmer weather would be best-especially since we are in the teens here and haven’t got close to our “normal” temperature in over a month. We have even broke our November snow totals already-we’ve had a whopping 2″ so far:D

      Hugs to You and Carol!

      Love the capture by the way!

    • Anonymous
      November 19, 2008 at 9:47 am

      Hmmm are you still trying to get back at us for the “mouse jokes” of old times?
      I think you do need a separate thread so we can track the progress of these Pets of yours̷