IVIG affecting blood draws

    • Anonymous
      August 9, 2008 at 8:02 pm

      Hi everybody! Let’s try a new topic, k?

      I had my first series of IVIG 3 weeks ago. About 2 weeks ago, I had some bloodwork done that I had forgotten about b/c I had to fast. My pcp had ordered it a couple of weeks before. My total cholesterol came back about 60 points less than I usually run. I am not and never have been on cholesterol lowering meds. I AM on weight watchers to lose some weight. I had read here about sed rate can rise after having an IVIG treatment. What about cholesterol changing also? It would be great if it is real! My TSH was a tiny bit higher than usual. Is that also affected?

      I know some of you good people will know the answer!

    • August 9, 2008 at 11:13 pm

      I say congratulations on the weight watchers endeavor and show that lowered cholesterol report around. Have you ever had thyroid issues in the past? How out of the high range was it? IVIG does affect strange things!!! Kevie tested positive for h-pylori, I initially brought him to the doc for stomach issues, so she ran a h-pylori, only to find out via Kelly that ivig WOULD make you test positive for h-pylor. Something else funny, Kevin held his breath before the stick, and they attributed the breath holding as a reason for an elevation in one of the other tests, go figure. Does the doc feel the tsh is high enough to warrant thyroid meds? Good luck!
      Dawn Kevies mom

    • Anonymous
      August 10, 2008 at 11:09 am

      I posted a response to this but it disappeared??

      Thanks for the encouragement, Dawn. What I was really asking was whether or not my lowered cholesterol was REAL or artificially low or not due to the IVIG. I had read on here that sed rates can be artificially high after a treatment. I don’t want to celebrate prematurely! 😉

      My TSH was still well within normal limits, just a little higher than usual. About 3 years ago I had severe hyperthyroidism, really thyroid storm, secondary to a cardiac drug I was on, Amiodarone. It resolved and I have had normal levels for almost 2 years now, but am always cautious. The theory was that I had possibly burnt out my thyroid and would end up hyPO, but it hasn’t happened. I don’t have Grave’s disease either. So I will be thankful for a normal TSH.

      I start my second series of IVIG tomorrow. The neuro has ordered 20 of Pred for the third and fourth day, which I find kinda odd. I would have ordered it for all four days, but she didn’t consult me first! The nerve. 😀 . And this time I will make sure the nurse banishes all bubbles before they hit my brain! Wish me luck.

    • August 10, 2008 at 5:38 pm

      I was on IVIG for 11 years, every 3 weeks, it did nothing for my cholesterol. I hope it did for you. I do know that I have read that “mis-readings” on the blood work on cholesterol are somewhat common. For several years my total has been 150-158 and two weeks ago it jumped to 201. I think it was a mistake. Hope yours is correct.

    • Anonymous
      August 10, 2008 at 5:55 pm

      I have the high cholesterol and was just placed on meds for it! But it runs in my family. I started out in my 20’s with it and diet was the first thing but when it jumped up to 283 this last lab, they told me medications. So I take meds now for that also. About the other questions, I don’t know! Hope things get better for you and you get well soon!

    • Anonymous
      August 11, 2008 at 6:05 pm

      ‘detailed prescription information’ for any and all brands of IVIG. They lower some #’s and up others.
      I have learned from here, elsewhere and thru research that the absolute best time to have blood draws is the day BEFORE your next infusion. Ostentibly it’s when your IG #’s are lowest and you will likely be as close to ‘normal’ as possible.
      A few months ago I had a series of blood tests for other issues and that specialist wanted the blood work NOW! I kept going but, [I]but,[I][/I][/I] [B]BUT?[B][/B][/B] your #’s will be skewed! He did not believe me. Well, they were sooo skewed that he actually read up on IVIG! And admitted that he had to do the many tests over because it all had to be blamed on the IG! OK….I’ve got all my other docs, GP and specialists trained in this respect…no new needles until the day BEFORE infusions! Ever, unless a life emergency and then expect distortions. It has taken years to train them all tho.
      Also, don’t forget what meds that you are taking! They too can distort blood#’s and multiple meds plus IVIG can throw things outta kilter far more easily than you think.. Look up the ‘prescribing information’ for each med…then the common, less common and rare s/e’s and see which can ‘add up’ in combination. These are things that are not on those medicine cross-check web-sites because they are subtle and complicated due to the CIDP. It’s a whole different set of factors to consider.
      I hope this helps and that you can get better tests in the future! We all want better tests overall I think!

    • Anonymous
      August 11, 2008 at 8:35 pm

      Emily always has her blood drawn right before getting her IVIG treatment. The nurse comes, accesses the port, takes the blood, then hooks the IVIG line up. I figure you can’t get more accurate than right before the IVIG goes in!

      Your cholesterol levels are probably down to you eating healthier & exercising more.

      I’m not sure if IVIG would affects your TSH levels though. We’ve never had that problem before.


    • Anonymous
      August 12, 2008 at 3:33 am

      I hate needles and getting my blood drawn. Always have and everytime I have to have IV’s for something they always have problems with my veins. I am looking forward to getting treatment but dread the needle part. Hope you get well soon!