Immune System, Inflammation, Food, and CIDP

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  • #116440
    broudie
    Participant

    After half a year of taking prednisone, and facing the prospect of having to take immuno-suppressants, it came to me that maybe there’s a way of getting the same results without the side effects – maybe through supplements? Diet change? Or at the very least lessen the dependence on our steroids. Maybe supplements that help reduce inflammation, or supplements that regulate ie lessen the immune system response

    So before I pay for that big order of supplements from CVS, I’d like to hear from you guys if any sort of supplement has helped. Right now I’m looking at:

    ginger pills
    garlic pills
    tumeric pills
    fish oil pills

    My neuro has also been suggesting the keto diet, but I don’t think my heart can afford it (history of high cholesterol and high blood pressure)

    #117104
    GH
    Participant

    None of the supplements you mentioned is a substitute for the standard treatments for CIDP. Prednisone is not normally taken long term. I took it for about a year, periodically reducing the dosage, while transitioning to an immune suppressant drug. Eventually, I tapered that down to zero as well, and now I take nothing.

    #117237
    Badari Narayana
    Participant

    GH :After tapering prednisone to zero and even bringing down immune suppressants too to zero, are you feeling recovered from CIDP. How long did you take immune suppressants and its dosage. Kindly share.
    I am diagnosed with CIDP in July 2019 and now i am on Methyl Prednisolone and no immune suppressants now. Please also share, if you are aware, whether immune suppressants will be required while zeroing down steroid.

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