I cannot believe this!
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AnonymousJuly 23, 2007 at 10:05 pm
I can just picture your face while you are sitting there watching Kevie play, Dawn! I’m really happy for All of You.
In answer to your questions, in my many paralysis events, all have come on somewhat differently. Some were fast, some were slow and yet some were slower. There really is no rule for a relapse. Its like the rest of this nightmarish stuff, it might change from one time to another or it might not ever happen again, its always different in different people.
Don’t think about it, don’t worry about it, if its going to happen, it will happen no matter what. Live your life like you want and sit back and enjoy Kevie to the MAX!!!:) HUGS!!! -
AnonymousJuly 25, 2007 at 5:49 am
When you are feeling so low and you wonder if it will ever be over, it is so hard to picture a time when things will be normal again. It is so wonderful to hear kevie is doing what all his mates are doing … maybe the positive side of GBS is we learn not to take the little things for granted anymore and get immense joy from things we wouldnt have thought twice about before.
I hope everyone who is still on the road to recovery is picturing kevie out there playing and take heart from that. He is such an inspiration!
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AnonymousAugust 4, 2007 at 1:06 pm
Hi Dawn!
I’m so happy Kevin’s been able to enjoy his summer! I would watch out for sudden fatigue first and foremost, but you’ll know it when you see it because he’ll just fall asleep for longer than usual. Since I’ve been on a rollercoaster with Ben this summer, the best advice I’d like to give you is to try to relax while you can and just let the kid play. I know it’s easier said than done because I’m still trying to convince myself to take the restraints off Ben, but you’ve got to. Last month Ben had an EMG/NCV from UIC, and the doctor there told us that Ben’s nerves are growing back wrong, but physical activity won’t do any further damage to them, at least in Ben’s particular case. That made me feel much better, and I haven’t been the nag this month that I was last month! By the way, if you want a really good doctor who specializes in GBS, Ben and I went to see Dr. Meriggioli at UIC and were really impressed.
Have a great weekend!
Shannon
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