Help!

    • Annie
      April 11, 2022 at 10:33 am

      Hi there! I was just diagnosed with CIDP a week ago. I was hospitalized in December 2021 and was diagnosed with GBS. Since then I have no feeling from the waist down except nerve pain, shocks, and spasms. My right arm and hand are also numb. I can only walk with a Walker. I take gabbapentin 400mg 3x a day and Norco 7.5 3x a day. Along with many vitamins. I am in pain all day every day. I take 1 20 mg Baclofen at night. I am scheduled to see a physiatrist but I am scared and the neurologist makes what I am to expect clear as mud. I saw this forum and hoped I could get some advice and clarification on what to expect. Thanks!

      Annie

    • Jim-LA
      April 11, 2022 at 4:00 pm

      Here are a couple articles that will help boost your understanding of the disease and some of the treatment options available:

      https://30g7el1b4b1n28kgpr414nuu-wpengine.netdna-ssl.com/wp-content/uploads/2019/10/GBSCIDP-CIDP-Education-Booklet_Final.pdf

      https://30g7el1b4b1n28kgpr414nuu-wpengine.netdna-ssl.com/wp-content/uploads/2013/02/AcuteCareICU13.pdf

      Additionally, you can search these forums using conditions for keyword searches.

      • Annie
        April 11, 2022 at 4:03 pm

        Thank you! I am doing IVIG every 2 weeks and have been for a few months.