Hellow……
-
-
July 15, 2006 at 2:48 am
i want to talk to anybody regardig GBS……i have some quieries pls…….:eek:
-
July 15, 2006 at 6:25 am
hi sridharareddy & welcome,
ask your questions on this thread. take care. be well.
gene gbs 8-99
in numbers there is strength -
July 15, 2006 at 10:44 am
sridharareddy,
What is it you wanted to know about GBS. As Gene said, ask anything you need to on the forum and Im sure there are lots of people who will try and help answer your questions.
-
July 15, 2006 at 11:35 am
Dear Sridharareddy:
Welcome to our little community. I think you will find that everyone here will be ready to help out and be supportive. You can also arrange times to meet in the chatroom, if that would be easier for you.
Lee
-
July 18, 2006 at 3:02 am
Thanks for those who have come to my help………….i am 38 and have low back pain at L4, now i have been attacked by gbs since may 31st’06, and i am recovering day by day. Now i am able to do my works at home and have come to work place to chec wether i am able to do my work since 3days. I have read about the re-occurance of gbs,is it true and if anybody experienced please give me the details what to do then.
-
July 19, 2006 at 8:08 am
You only said you were attacked by GBS but not mentioned what the treatment was given to you, whether IVIG or Plasma and how many days.
Pl. be sure GBS patients get better slowly. Pl not to do overwork. Rest and physiotherapy (by experienced physiotherapist) is best medicine to recover properly.
Take Care and be positive
-
July 19, 2006 at 9:19 am
ditto sandeep, do not over do it!!! rest if you feel tired. 3% of us gbsers will get a 2nd attack. avoid whatever it was that you think caused you to get gbs. take care. be well.
gene gbs 8-99
in numbers there is strength -
July 20, 2006 at 2:11 am
Hai.Mr.Sandeep……..how r u no probs with 7/11 attacks… greetings to ur family………thank u for the response. i am from hyderabad, A.P, India.I am married ..blessed with a kid, who is 8years now. I was treated with IVIG for 5 days..daily 30grams……at ICU…and was sent back home after 2days……i was given PT at home by a doctor for one month daily, and now i am on my own doing the exercises. i feel o.k but the sitting position is still difficult and my left shoulder pains. some times i feel the tingling and numbness in the feet and the palms, other than that every thing is o.k
Bye…………nd thank u.Sridhar
-
July 20, 2006 at 2:13 am
O.k gene thank u………….
Sridhar
-
July 20, 2006 at 8:30 am
Thanks for posting Sridhara and greetings to my family. I stay about 50 kms opposite side of Western Railway hence neither myself nor my family, except my Niece, was near to 7/11 attack. She is also safe as she traveled by us that day.
Right treatment was given to you. My advice is just to hang here and keep reading various threads. You will learn a lot here, about GBS and its effects, occurrences and vanishes of several problems in our body.
From my experience I can tell you, since the GBS is very uncommon, in India as well as in all over world, I am learning from the supportive member’s experience on this forum and keep reminding myself that nothing is going to happen worse than what I had suffered during my hospitalization and next one month’s period.
Also keeps in mind the “teaching” of Lord Gautam Buddha that everything in this world is perishable and nothing is perpetual. Likewise, the problems/paining/cramps/disability whatever happens in our body is for the time being, after certain period it will definitely disappear. Thereby you will get relief and strength. Never leave doing light exercises on daily basis as it is a basic necessity or part and parcel of our life now. If you feel anything odd, please do not panic and listen to your body.
Convey my regards to elders and love to kids
-
July 22, 2006 at 12:25 am
Hi………….erverybody…..its nice to be here….after i joined here i am regularly in touch….i just want to sharesome thing. I had been suggested by my PT aswell as my grand mother to have hot bath regularly twice a day. And also put ur palms and ur feet in the hot water seperatly in the hot water for 5mnts twice daily. this will give releif and even it can reduce the tingling and the numbness. And regarding the diet u can take good nutrisious food with fresh fruits mainly pomogranates,indian black berries …..These are all suggested by my granny……….if any one has some other tips please share…
Sridhar…
-
February 28, 2014 at 2:49 pm
Hai Everybody,
I was not active all these years and wanted to discuss with you all about my problem once again. I was in the mean time getting back muscles pain i.e left shoulder and back muscles left side only and i used to go for Physiotherapy treatment and got rid of them. Now since 21st Feb’14 iwas feeling the numbness in the hands and the feet. All the muscles in the body started paining and could not do much of the physical activity. But i am able to walk and do my daily activities. My thy muscles are not supporting while i sit on the toilet seat for a short period also. I went to the doctor on 24.02.14 and he has given me some medicines for 10 days and asked me to see weather this will fix my problem. This doctor is the same who has treated me for the first time. The medicines i am taking are as follows:
1) LUPIRTIN-P (FLUPIRTINE MALEATE & PARACETAMOL TABLETS) – MORNING AND EVENING
2)FRANXIT (MELITRACEN 10 MG) – MORNING
3)CAP MAXMALA (PREGABALIN,MECOBALIN AND ALPHALIPDIC) – BED TIME
4) BECOSULES (VITAMIN B 12) – AFTERNOONI WAS TAKING THIS TABLETS since 24.12.13. i could see only 25 % of relief. I was thinking to consult another doctor. So much confused?? Please advise…
-
February 28, 2014 at 10:39 pm
Sridhar, you have posted under a GBS forum topic, but your disease started in 2006. The recurrent form of GBS (RGBS) does not last much longer than two years. Based on the symptoms you have just reported eight years post GBS, it sounds like you probably have CIDP.
CIDP is the chronic form of GBS and can go into remission for many years before returning. No one really knows for sure what triggers its return, but flu shots and certain virus infections are often reported as a possible source.
The medicines you listed may provide some relief from the affects of CIDP, but won’t treat the condition itself. Lupirtin-P may help with nerve pain and possible Diabetic related neuropathies; Franxit is more of a tranquilizer; Maxmala appears to be a mild pain reliever and you would likely be better off with Lyrica (according to our forum members); Becosules: a vitamin B12 deficiency could produce CIDP-like neuropathy, but it would be quickly revered with a high dosage of B12.
IVIg, SCIg, and Plasmapheresis are the treatments for CIDP that can provide the most immediate benefit. Other medicines such as Imuran, Prednisone, and Rituximab are also used to treat CIDP, but these may have side affects for some people. A review of CIDP treatments can be found here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3105635
Alternative treatments – A recent study was conducted to see how well Alpha Lapoic Acid did in treating some cases of CIDP. The Clinical Trial can be viewed here: http://clinicaltrials.gov/show/NCT00962429 ALA is a low cost over-the-counter supplement. Taking 1500 MG per day may prove beneficial to some after 4-6 weeks.
I think you may have a better potential for recovery if you are under the care of a CIDP specialist. The GBS-CIDP Foundation liaison in India may be able to connect you with a specialist in your area. Please contact:
Dr. Arindam Ray Anneshan
Kolkata,West Bengal
+9194330 14707
annessan@yahoo.co.uk -
March 3, 2014 at 5:17 am
Hi.Jim LA..Thanks for your reply and suggestions.
I have visited another Neuro Physician Consultant and had a thorough check up. They checked CBP, ESR, RBS, T3 T4 T5 H, ANA, URIC ACID, CPK, LDH &CRP. By the reports there were no abnormal findings except for the all 4 Limbs which are slightly weak. Doctor has prescribed the below medicine for 10 days.
1) ZOCEF CV(250) – MORNING & NIGHT
2) LYRICA(75) – NIGHT
3) ZAPRIZ(0.25) – MORNING & NIGHT
4)SESTA(25) – 1/2 TAB MORNING & 1/2 TAB NIGHT
5) VOLTANEURON DN – AFTERNOON
After taking this for the foirst day i felt somewhat relaxed. Pain is gradually decreasing with more weakness. Doctor asked me to take at least 4 days rest, which is not happening. Will try..Will share the details time to time…
-
