..hadn’t been here for a while..just thought I’d stop by and say hello..just had my 5th anniversary with GBS..still got residuals..still walk with drop foot..still tired..still can’t remember chit..lol..but life is good..I’ll be 62 on my next birthday..been retired since I came down with GBS at 57..try to get to the Y about 3 or 4 times a week for about an hour of exercise..still riding my motorcycles..but most importantly, still got my family and friends, still got my health, (I know, I’m thankful for what I do have), and still got my faith..my glass is always half full, never half empty..so take care of yourselves, and say a prayer for those poor people in Haiti..they’re the ones that really need it right now..peace and love..Bud..

Hello to all. I didn’t even know that this site had been down till a month or so ago. I had to reregister, but glad to be back.
So, I am still waiting for an appeal date on my claim to disability. This is the third time trying, so I retained a lawyer who said she believed I had a good case.
Little bit frustrated with my neurologist, cause he keeps saying…”you aren’t affected very much by the CIDP because you aren’t in a wheelchair”.
Well, I am not in the chair, but I was when first diagnosed, and that is not the only difficulty one encounters.
The IVIG had been doing very well for me up till this summer, when I suffered aseptic meningitis as a side effect. He put me on steroids for it and told me it should probably help the headache..HA HA HA what a funny little joke.
The second time I did the IVIG i got another horrible headache. The doc told me that he doesn’t want to do IVIG on me anymore because of the side effects it now causes. I am not sure I want to give it up just because of that, yet this last time I was infused doesn’t seem to help me with the weakness and numbness like it used to.