got rid of 2nd afo today
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July 10, 2009 at 12:03 pm
experimenting with afo off left leg now. Got rid of right one soime months ago. went back to using my crutches for a while. It feels weak but pt has assured me it isnt. I do pt without afos part of the time. I wish the rest of my body felt good. I have a lot of tingling in my hands. and having bladder control issues. what is up wiht that??? I have alread y been through continence therapy. I am careful to avoid the foods and drinks that they gave me a list of. I miss sweet tea and coke. If this continues i should go back to eating and drinking whatever i want it doesnt seem to matter right now.(but of course i want because that just would be wrong)
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July 11, 2009 at 12:10 am
Congratulations! Keep on going forward as I’ve been at this for 14+ years and I still find little improvements now and then.
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July 12, 2009 at 2:48 am
congrats jojo! What a huge step for you!
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July 19, 2009 at 4:05 pm
When I had incontinence that kept me up almost all night, I got a pubic catheter. The biggest negative is carrying around the urniary bag, but I’m sleeping.
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July 24, 2009 at 9:26 pm
sorry i guess my celebration was a little premature. MY therapist and i decided to leave it on a little while longer mabye indefinitly. MY left side seems to be weaker thant the right. Twisted my ankle right in front of my therapist and almost fell. No damage andkle is fine. Scared both of us. Went back to using afo and walker intherapy. I feel more confidant with it on anyway and would much rather use my cane for as long as possible. THe CIDP seems to be progressing and i dont know how much longer till i go back to myu crutches then a wheelchair. Went out tonight withh a friend to the movies and dinner. she never left my side I think she kept thinking i was going to fall. I was wondering that myself. Tried to enjoy myself. BUt in the back of my mind i kept thinking these days arent going to last. Already lost the ability to drive. that was nice and freeing while it lasted. I guess i will adapt. I was in an electric wheelchair before difference was i was told i would one day be bacvkk to normal. No such diagnosis now. I am getrting used to the idea now. I am coming to grips with my reality. I hope my family will too.
jojo -
August 4, 2009 at 6:54 pm
saw the ortho dr today. feels i should wear my afo all the time. at least no surgery for now. i go back in 3 months to follow up. my left side is just weaker. i have an appointment with the dr who did myy surgery but called today to see if i needed to still come in since the dr today said everythinhg looks fine. havent heard back yet jojo
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August 7, 2009 at 10:39 pm
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