GBS Poem-Facebook Survivors (group effort)

Well Tom, I really enjoyed your poetry.
I’m not a poet, but would like to add to the general theme.

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It’s been nearly 4 years with GBS
And my house has been looking like quite a mess
I vacuumed once…no, twice last year
The dust on the high shelves had nothing to fear

When Christmas came, the tree did not
For the 2nd year, though it wasn’t forgot
I was too exhausted to clamber about
To put up decorations, I was too worn out

The clutter increased, tho I had room to spare
But it took all my strength just to pile it there
Bed-rest before work, and bed-rest after
I’d put on a smile, but there wasn’t much laughter

And the errands inside and the chores downtown
Had got to the point it was getting me down
One foot forward, and one foot more
An hour or so later, I’d done that chore

And just when I though I was getting better
I could read and talk again, write a letter
One day, it all got much, much worse
GBS became CIDP’s curse

And it was now a life, not just an illness
I’d pray, and cry in the dark night’s stillness
Still…faith and hope came to cheer me on
And I didn’t despair for what had gone

And when I thought I’d accepted the fight
And learned many lessons of this dark night
I found that the enemy could still assail
And bring complications that made me quail

And the struggle to do, and the fear to die
Were mingled with questions of how and why
And I realized life isn’t what it seems
As I thought of my life with it’s half-lived dreams

I mourned the loss until one day…when
I said, I’d like to do this and that again
And just at that moment, I heard a small voice
“Well, why don’t you?” …”You still have a choice”.

And it seemed to me that permission was granted
Yet from me the will and effort were wanted
So I woke every morning with determination
To put order in my life, as this new creation

No more times of sheer idleness
No more excuses for doing less
Than to finish the work I’m here to do
And I set myself to see this through

Well, my garden is weeded, my grass is mowed
My basement recyclables at the curb are stowed
The closets are cleaned, my wardrobe in order
The pantry is sorted, and so is the larder

There’s food in the fridge, and water is stored
I spend all my time in touch with the Lord
I’ve been given some free time to read some good books
And sometimes a cuppa or two with blank looks

So these are my days, on earth as they are
Whatever befall me, from near or from far
And when my time’s done, and I enter “Forever”
There’s one lesson I learned…that “It’s Now or Never”.

OM G!!!!!……………….Beautiful……………..both of you. 🙂
I have tears in my eyes as I was reading yours, Tom.
What talent you both have. Have a blessed day and keep getting stronger!

Per

nerves fail causing pain
gbs never the same
weak body strong brain

a gbs haiku

nice start Tom, I should put some of your stuff to music, I would tend to favour a sludgy metal sound for this one

Chugging & chugging along, coff…coff
The ole motor gives a murmur and a rumble now and then
Just a little tremor to let me know it’s there
A little warning to ease up a bit, just to be fair

And if that’s not enough, then pain is increased
Tho not enough yet to render one deceased
Just enough to impede, and to impart
A little wisdom to the brain that runs the heart

So much to do, and yet so little time
But when all is said and done, what is it worth?
Those hours of pain and striving to achieve
A greater or lesser gain undertook.

When rest is what’s required, be it so
And let the chores and other activities go
Get into the huddle that enables one to find
The needed bodily comfort and peace of mind.

A day or two in bed, on patio…is fine
Just what is right for all these woes of mine
No need to labor to go on a vacation
When one’s own bed provides a great stay-cation.

And let there be popcorn, lemonade, a good book
Some music and soft light in my little nook
The phone is off the ringer; doorbell ignored
While I gain in restoration from the Lord.

Source: Psalm 23

WOW… this thread has me speechless and filled with so much emotion.

Thank you all!!!

C’mon, Chrissy, where’s your poem? 🙂

LOL D.U.!!!

With the way I walk the only thing I’ve said over the years is

“I weeble and I wobble but I don’t fall down.”

However, this past year I have started falling – but NOT when I have been drinking (mainly beer). So I will have to come up with a new saying. I’ll be sure and post it when it comes to mind 😀

NGG – I’m hearing a Collective Soul sort of tune??!?!

[QUOTE=Chrissy]NGG – I’m hearing a Collective Soul sort of tune??!?![/QUOTE]
hey Chrissy baby, I do like them, but I’m gonna go a little more thrashy here, like the Stooges or Motorhead

as I struggle for words, I’m reading about my life. thank you for helping me describe what I’ve lived. I read these poems and want to cry and say this is such reality.
I apologize for not responding sometimes. I feel to overwhelmed at times. But I’m here reading.trying to learn.