GBS and Migraines

    • Anonymous
      June 2, 2008 at 11:30 pm

      I was wondering how many of you have had an increase in migraines since having GBS? I have horrible migraines. The worst migraines where when I was given IVIG but since leaving the hospital I have about 1 to 2 migraines a week. I have a wonderful neurologist who got me off of narcotics and really good medications. Have any of you had migraine problems since you have GBS.

    • June 3, 2008 at 10:13 am

      kevin has cidp and also suffers from migranes 1-3 times a week, not to mention the ones during infusion.
      Dawn Kevies mom

    • Anonymous
      June 3, 2008 at 12:31 pm

      That is funny … I have actually had a decrease. Although I was never “officially diagnosed” with migranes … I used to get many terrible headaches. Since GBS, I have only had a few in the last year and a half (touch wood).

      Sorry you have gone the other way … ouch!

    • Anonymous
      June 4, 2008 at 11:42 am

      Hey Kinney,
      I never had migraines prior to CIDP and my IVIG treatments
      but OMG I thought my head was going to explode after one
      of my first treatments so now I have them slow it down to
      half as fast as what the prescription says. I do get more
      headaches now but my husband is kinda irritating! 😀

    • Anonymous
      June 5, 2008 at 1:39 am

      My migraines aren’t bad now, but they first started when i initially got really sick in december. I’d had bad headaches for a couple years, since i knocked myself out ice skating (how silly!). But, when my suspected GBS symptoms came around in december, one of the first things that happened was horrific headaches that turned into migraines. Once, i went to the clinic, curled up in a ball, sobbing and they told me they were going to medicate me with Tordol, Phenergan, and Ativan. “Our favorite migraine cocktail”, they said. I’m a nurse, so i use these drugs on a dialy basis (for my patients, not myself:) I know their affects, so i was afraid they’d overdose me, since i’d never had any of those drugs before, let alone all of them in one syringe. They already had it drawn up, and i knew i was i good hands, so i took the shot. It didn’t even touch the pain! Not even a little! They called my dad to pick me up and i sobbed all the way back to his house, until i fell asleep in his bed two hours later. Then i slept like a baby for 8 hours, though:) Excedrin Tension Headache seems to work miracles, but i can’t take it now, because im pregnant.

    • Anonymous
      June 5, 2008 at 10:07 pm

      I want to thank everyone who has joined this discussion.
      I am on medication that help me with my migraines and it has been less frequent that I get them. I now have about one migraine a week. Again thank you for sharing your story. I appreciate it! 🙂