• August 27, 2013 at 6:41 pm

      What’s the difference? My neurologist diagnosed me with having GBS in May. Is CIPD a chronic version of GBS?

    • GH
      August 27, 2013 at 7:24 pm

      That’s generally how they are distinguished. GBS reaches its maximum progression in eight weeks or less, typically in about four weeks. The most common form of GBS is AIDP, or Acute IDP. Chronic IDP can vary widely in presentation, sometimes developing slowly over years and sometimes relatively quickly. My case of CIDP reached maximum in eight to ten weeks, and was initially diagnosed as GBS. I am still more similar to a GBS case than to many CIDP cases, as I have not had any indications of relapse. There is a lot of variation in the presentation of these disorders, although severe cases of GBS tend to cause respiratory impairment more often than CIDP.

      Treatment is similar except steroids are considered ineffective for GBS.

      Ultimately, they are just names for a category of disorders which exhibit a lot of variation.

    • October 20, 2013 at 7:04 pm

      How can I tell if I have GBS or CIDP? At 2 weeks into my GBS I had to be intubated for 9 days and I hit maximum progression (completely paralyzed from my neck down) between 4-5 weeks. How soon, if I was to have CIDP, would a relapse happen? I’m 5 months into my GBS and walking without any type of walking device.

    • GH
      October 20, 2013 at 9:34 pm

      Your presentation seems like a typical case of GBS, so I wouldn’t worry about it. GBS can recur, and someone who had GBS can develop CIDP, but most just recover from it and go on as before, except with some degree of disability. Don’t think about relapse — think about getting a little stronger every day.

    • October 20, 2013 at 11:02 pm

      Thanks GH, I wouldn’t want to go through that hell again.