finally!!
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June 20, 2010 at 1:36 pm
In today’s Parade magazine … finally! … an admission from the medical establishment …
[I]”Many people know that cancer can cause profound tiredness, but they may not realize that fatigue can persist in some survivors for years. ‘We’re not entirely sure, but it may be due to unchecked inflammation in the body’ says Dr. Patricia Ganz, a professor at UCLA School of Medicine.
“Treatment could possibly push the immune system into overdrive, and in certain patients the resulting inflammation could increase fatigue ‘as if the body were constantly fighting off a bad flu’.”[/I]
And that immune system response could manifest in many ways, among them, of course, CIDP.
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June 21, 2010 at 9:53 am
Amen!! When my inflammation ramps up, I feel incredibly more fatigued so this makes perfect sense. I just don’t understand why they can’t find more ways to help control this immune response and/or inflammation better.
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June 21, 2010 at 11:00 am
I have been feeling more like “me” recently and, of course, overdoing it. Result? A day in bed completely unable to do anything but sleep – and 2 days of unplanned, unecpected – and unwanted – crying. Because we can’t “see” our immune system it is so hard to recognize it is injured. How can we expect the world to accept our illness when we try so hard to ignore it, too?
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June 21, 2010 at 4:09 pm
[QUOTE=jessicah]I just don’t understand why they can’t find more ways to help control this immune response and/or inflammation better.[/QUOTE]
[I]I wish!! Oh, do I ever wish! I am pretty sick of this garbage …[/I]
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June 21, 2010 at 4:15 pm
[QUOTE=Cathie]I have been feeling more like “me” recently and, of course, overdoing it. Result? A day in bed completely unable to do anything but sleep – and 2 days of unplanned, unecpected – and unwanted – crying. Because we can’t “see” our immune system it is so hard to recognize it is injured. How can we expect the world to accept our illness when we try so hard to ignore it, too?[/QUOTE]
[I]Maybe one reason we “ignore it” is because the outside world doesn’t accept it. Easier to ignore than it is to educate?
Have we conned ourselves into thinking if we ignore it, we won’t have to try to educate the world? Pretty true, I’d guess. It’s even difficult, maybe even impossible, to get my family to understand. A couple of them have unseen disabilities of their own, but as I can’t fully understand their problems, neither can they understand mine … though I do wish they’d try harder! 😡 [/I]
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June 21, 2010 at 7:30 pm
Dear All:
I had incredible fatigue through IVig, which did nothing for me. I had less fatigue when on prednisone. In fact, at 60 mgs a day, I was waking up in the middle of the night making potholders!
I think my relative lack of fatigue is due to two things: at 30 mgs of pred now my inflammation is at bay (though not completely knocked out) — less inflammation means less self-attack, so less fatigue. Secondly, prednisone seems to be a stimulant. Not completely, like before at 60 mgs., but I can at least get through a workday without napping (though I do fall asleep in the middle of the day on weekends after mild exertion).
I am also taking 1000 mgs of cellcept. I don’t think it is doing anything for the inflammation, but I wonder if the combination of the 2 drugs isn’t contributing to an overall fogginess. I am slow to respond to situations and seem to lose the thread of things more easily than before CIDP and meds. I am also easily annoyed/agitated/frustrated. It’s hard to know how much to attribute to the disease and how much to the meds…and how much of it is related to the fact that I have no one to help me do those things that used to be so simple.
I have been accepted at Northwestern for SCT. I can’t wait. I simply cannot imagine living the rest of my life this way. I have negotiated a reduction in hours at work, and will be training someone to take my place while in the hospital and during recuperation. More and more I feel that I am at the end of my tether at work. If I don’t get in to the hospital soon, I will go ahead and apply for short term disability anyway.
Sharon
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June 23, 2010 at 12:07 pm
You guys should read the entire article. It was in our Chicago Tribune, obviously in other states. The article talks about cancer,inflamation process, cancer drugs etc. It was very informative.
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