Fevers seem like every 14 days

Hi Lori,
Kevin has a fever tonight as well, he did not go to school either, he had a headache. We are set to have another ivig April 27th (42 days). There are no other symptoms, he stregnth is great, still is able to walk on his heels, I am so confused! Is it a cold, is it cidp? I hope some day we can figure these things out!!!!!! Dawn:)

Hi Lori: There are some older posts on fevers and GBS. I had fevers and still get them from the beginning, always at night. At first they were up to 102.5 every night for several weeks, but now rarely go above 99.5. That doesn’t seem like much of course to most doctors, but whenI get the fevers I am completely wiped out and must get into bed. Fortunately they do not come so often if I am careful about overdoing. I am sure it is one of those GBS things that are not understood yet, for I have spoken to several who have struggled with the fevers. Good luck, Jeff

Do you think there might be a high correlation between IVIG and fevers? I wonder if those who didn’t get the IVIG are getting the fevers. I did not get the IVIG and I am lucky not to get fevers. It does lower your immune system, doesn’t it? Just a thought……

Fevers are the immune system “kicking in” saying we have a problem here. The heat from the fever is what attacks the virus/bacteria this is causing the problem. Unfortunately, with GBS/CIDP our wiring is messed up and we get strange messages and responses. That said ~ we really don’t know much about residuals yet so [I]any symptom could be our disease process[/I]. The moment a medical person says “it can’t be related” look out! There is no way that they can know for positive 😮

I firmly believe that only as we, the patients, “educate” the medical community will the truths become known.

I use to have fevers but as time has moved on (12 yrs.) it’s pretty rare now but I still get the sweats after over-doing 🙁

I can only imagine the worry and frustrations which come with caring for your precious child. I wish each one “well”. Hugs to all 🙂

Lori, I also have these fevers. i’ve had them for many years, in my opinion they are a symptom and are related. mine started with my very first onset of tingles and numbness, which oddly enough came about 5 years before my paralysis event, along with the sweats and other symptoms. i know this sounds weird but these frequent fevers are different then say a fever i would get with an illness, i can’t describe the difference but it is there, maybe because i know they go away just about as fast as they come on, unlike the fevers associated with an illness. if that makes sense. go with your feelings, they are never wrong when it comes to your kids!

I just had an idea…

Is it possible that the fevers are from the solumedrol? Or did they start before he was put on it?

This is what I’m thinking …

Steroids affects your adrenal glands. Basically they shut down in the person & the steroids do the work for them (this is how Emi’s nurse explained it to me). I’m thinking that a rise in the steroid levels in his body or the way that his body is absorbing them might cause a fever. The adrenal glands control many different chemical balances in our bodies.

Or I could be completely off base. It was one of those crazy thoughts that pop into my head from time to time.

Kelly

Could be a reaction to the IVIG also, how often is he getting now Lori, I forget?

Jer

Lori, i have been told my fevers might be from the inflammatory process part of this syndrome. just my body reacting to itself is how i interpret it. i hope Dell is feeling better.