I have just learned something about CIDP that I didn’t know before: it causes serious bone density loss and osteoporosis. I found a few old posts in the forum from people with bone density loss who didn’t associate it with CIDP. Online I have found a number of medical journal articles stating the connection. People with CIDP lose bone density. Before I developed CIDP, I was gaining bone density with regular Prolia injections. After I developed CIDP, I began rapidly losing bone density despite Prolia, calcium, and vitamin D. The loss was so bad on my recent DEXA scan that I was referred to an endocrinologist to be tested for Cushing’s disease. The tests were negative. The problem is that I have an inflammatory autoimmune disease. The question now is what, if anything, can be done about it. Be aware of this. MAKE your neuro talk to you about it!
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