Bilateral foot drop and unstable standing

    • January 23, 2018 at 5:23 pm

      I suffered from GBS in 1989 at the age of 9. eventually hospitalized,recovery started after 35 days and continued for three years. since then I had gait abnormalities. recently got to know that it is bilateral foot at the age of 36 I feel instability while standing.The doctor prescribed Pregablin and Escital0pram with multivitaminOmaea3. Is foot drop curable now? I am a professor feeling difficulty in standing and tiredness while delivery of lecture. should i continue with this job or quit

    • GH
      January 23, 2018 at 6:30 pm

      Are you saying your foot drop condition is new or getting worse? If so, you should see a neurologist.

      Ankle-Foot Orthotics (AFOs) can compensate for foot drop. Modern AFOs are molded from a single piece of plastic and made to fit your feet. They are thin enough to wear inside ordinary shoes.

      • February 8, 2018 at 4:44 pm

        I feel like it’s my life you were writing about. Same time frame except I was 36 at the time. I felt great until a year ago. My ankles started getting weaker and foot numbness went extreme. I started falling all the time. Long story short I now have to use a walker all the time. My neuropathy had all but disappeared and is back now in my big toe. Gabapentin to the rescue! I have been to a number of neurologists because I have bouts of vertigo. No answers from any of them. They enrolled me in vestibular pt with no good results. What do you feel the pregablin and escitalopram do to help you? So good to read your story.

      • February 14, 2018 at 1:37 pm

        Thanks Mackay,the pregablin and escitalopram that I took over a month helped me improved my attitude towards life and movement of big toe by 10-15% than earlier. I am also in relaxing mood as I took leave from work to take some rest and could proceed with some good prognosis.

      • February 14, 2018 at 1:17 pm

        GH, Thanks,Neurologist suggest it is GBS long tern sequalae. It is worse now after 28 years of its onset.I tried a plastic AFO but it makes my freedom of walk bit difficult. I feel more difficulty in standing stable. I do not feel much difficulty in walking though walk slower with high steping.

    • February 7, 2018 at 2:52 pm

      I have GBS and I am a physical therapist. I wear AFOs which eliminates foot drop and helps me more stable/balanced. I highly recommend AFOs. You do not need to quit your job!

      • February 14, 2018 at 1:22 pm

        Thanks Paronnee for giving me motivation. I tried a plastic AFO but it makes my freedom of walk bit difficult. I feel more difficulty in standing stable. I do not feel much difficulty in walking though walk slower with high steping. Running and jumping is too difficult.

    • February 13, 2018 at 9:02 am

      I also had bilateral foot drop on both feet and months of physical therapy. I had to have surgery to correct the foot drop after the pt did not correct it. I am now back on my feet after two years:)

      • jk
        February 13, 2018 at 10:01 am

        And for Jill- could you be a little more specific? Surgery for GBS/CIDP muscle wasting, nerve signal loss induced foot drop sounds as if the ankles were pinned. What other options are there? Thanks if you share.

    • jk
      February 13, 2018 at 9:57 am

      I agree with GH. However, they also make a carbon fiber AFO.

      Years ago I tried carbon fiber AFOs. Could have been 10 years ago. One of them cracked almost immediately. They told me no running, no jumping, no climbing, no golfing, nonsense. I went back to the ones GH describes. I do see many others wearing carbon fiber now.

      There are at home exercises to help with your balance. One is to stand straight, feet together, ankles touching and cross your arms to opposite shoulders. Close your eyes. Do this between a door frame for something to grab onto. When you feel up to it, graduate to standing on a small pillow. Be very careful. Keep your eyes open at first if you must.

      Do not quit your job. How will you provide for yourself if you quit?

    • February 13, 2018 at 3:53 pm

      JK – No my ankles were not pinned. It was to correct my foot drop. Transfer of single tendon, post tibial tendon, lengthening of achilles tendon/leg. It was a year ago, trying to find exact description; drowning in med papers and bills:(

    • February 13, 2018 at 7:36 pm

      Jill Brickley – It sounds like the surgery was completed because of nerve damage thus muscle(s) weakness and decreased motion in the ankle.

      JK – For an orthosis decision, you need to take into consideration: ankle muscle(s) strength,side-to-side ankle stability, and ankle range of motion.I would love to wear carbon AFOs but my ankles need more support than what the carbon AFO is able to provide so I wear custom, molded AFOs. Check with a physiatrist or physical therapist or orthotist to determine the best AFO option.

      Balance activities: 1) Practice tandem walking; 2) Try keeping your balance while standing with 1 foot in front of the other foot (heel-to-toe) for as long as possible, 3) switch which foot is in front: 4) stand on one foot for as long as possible; 5) stand on opposite foot.

    • jk
      February 13, 2018 at 9:29 pm

      Jill- thank you. No need to dig up paperwork. Your description is adequate. It also explains why I was only offered pins. Both my left and right tibials were compromised.

      paronnee- thank you for the explanation and feedback.

    • February 14, 2018 at 1:59 pm

      Thanks jk for your piece of advice and motivating me. Are you suggesting Romberg test type exercise to me?

    • February 14, 2018 at 4:17 pm

      minazeer – Perhaps a physical therapy evaluation will be helpful to help with balance activities and determining an appropriate orthosis to help with stability. Custom, plastic AFOs definitely can be limiting and impact your daily function!

      P.S. I am a PT :]

    • February 14, 2018 at 10:39 pm

      Before you quit…Have you investigated other ways to keep your job? Depending on where you are, there should be rules/laws about disability accommodations. Something as simple as chairs/adjustable height stools could extend your current position. I’m guessing that as we age our previously controlled symptoms might creep back, similar to during periods of exhaustion.

      I was born with foot drop- right foot (unrelated disability). PT at the hospital assumed the foot drop was a result of the GBS, so I was fitted for a set of orthotics which have caused very bad issues of their own…even 5 years down the road. (Bad fit= feet sliding= toes crushing= toenail issues= pain.) [long story] Proper fit is essential. (A few months after I started wearing them, the fit was so bad that the Orthotics Dude (not his official title) came to my home for a re-evaluation. He told me I’d have to wear them for the rest of my life. As he got into his car I said, “F*** that s***” and took the things off and threw them into my cellar. Then, after I got the things out of the cellar, I threw them into the garbage.

      If you love (or even just really like) your job DO NOT give up. Figure something out.

    • jk
      February 15, 2018 at 10:45 am

      minazeer- No. The exercise I described was demonstrated at at a GBS-CIDP Seminar.

    • jk
      February 15, 2018 at 10:55 am

      As a general note- I have worn a single customized plastic AFO since 1980. I have worn bi-lateral customized AFO’s since the late 1980’s. I have the following comments:

      1. AFO’s should not pinch, squeeze, slide or otherwise cause pain.
      2. AFO fit should be re-evaluated periodically.
      3. If you get a poor fit or poor service, change service providers.
      4. I would much rather wear my AFO’s then stub my big toes, curling them under my feet and then walking on them.
      5. I would rather wear AFO’s than trip over a small imperfection in the walking surface and fall flat on my face.
      6. AFO’s are a nuisance when driving, so I take them off.
      7. If I do not wear knee high nylon ‘stockings’ the plastic rubs and then burns the skin on my calves. Ouch.
      8. AFO’s are a nuisance to wear while standing straight up and still. They are designed with a bias that causes undue pressure when not moving. So, I avoid standing still, preferring to not deal with the bias.

    • February 15, 2018 at 12:42 pm

      jk. An excellent review of important points re:AFOs. I understand that wearing sold ankle AFOs while driving is awkward, it took me awhile to acclimate. I don’t think I could drive without my AFOs. As with many activities, we have learned that living with GBS necessitates acclimations and adaptations. You can talk to an orthotist about an AFO with a hinged ankle (vs a solid ankle) allowing ankle mobility; there are criteria to be a candidate for a hinged AFOs.

      I don’t know what you mean about “bias that causes undue pressure when not moving”, please explain.

    • jk
      February 20, 2018 at 10:43 am

      paronnee- “bias that causes undue pressure when not moving” It means my AFO’s are formed with an angle of less than 90′ from the flat foot portion to the vertical support. Or, measured from behind the heel, there is more than 90′. Rather like a large letter L with the vertical not vertical.

      Said another way. When I’m standing straight up, or attempting to, my braces tip me forward.

    • February 20, 2018 at 8:35 pm

      jk thanks for explanation. Following your explanation of the angle of your MAFOs, standing still would be difficult. In my experience, it’s an unusual setting for MAFO.

    • February 21, 2018 at 6:02 pm

      Hey! That’s another thing mine did- that forward tilt. I forget why “they” said it was necessary, but it took me several months after not wearing them to stop feeling like I was starting to fall. I thought it was just weird-little-me that had that happen to.
      I have an aversion to nylons, so I got cotton/poly (still not ideal material) knee-highs, which were barely high enough for the orths. And since they were so high up my leg, removal for driving was impractical. (I rarely wear skirts/dresses/culottes/gauchos…) I wasn’t given the option of other types of torture devices, either.

      I’m inspired to try running again!

    • March 23, 2018 at 10:53 am

      Hi, I just wonder how you guys driving with footdrops? I am having footdrops for right side only so I have forced to use my left leg to drive.

    • March 23, 2018 at 10:55 am

      Hello, I am also having foot drop on my right side only, my right leg is so much muscle loss for 8 months and then I gain back a little mobility of my foot for plantar flexion but not dorsi flexion and now it’s almost 1 year. My MRI result show there is no impingement on my nerve. I wanna ask is surgery can treat for my this situation?