Tagged: Jill Brickley
January 23, 2018 at 5:23 pm #113797
I suffered from GBS in 1989 at the age of 9. eventually hospitalized,recovery started after 35 days and continued for three years. since then I had gait abnormalities. recently got to know that it is bilateral foot drop.now at the age of 36 I feel instability while standing.The doctor prescribed Pregablin and Escital0pram with multivitaminOmaea3. Is foot drop curable now? I am a professor feeling difficulty in standing and tiredness while delivery of lecture. should i continue with this job or quitJanuary 23, 2018 at 6:30 pm #113798
Are you saying your foot drop condition is new or getting worse? If so, you should see a neurologist.
Ankle-Foot Orthotics (AFOs) can compensate for foot drop. Modern AFOs are molded from a single piece of plastic and made to fit your feet. They are thin enough to wear inside ordinary shoes.February 7, 2018 at 2:52 pm #113850
I have GBS and I am a physical therapist. I wear AFOs which eliminates foot drop and helps me more stable/balanced. I highly recommend AFOs. You do not need to quit your job!February 8, 2018 at 4:44 pm #113857
I feel like it’s my life you were writing about. Same time frame except I was 36 at the time. I felt great until a year ago. My ankles started getting weaker and foot numbness went extreme. I started falling all the time. Long story short I now have to use a walker all the time. My neuropathy had all but disappeared and is back now in my big toe. Gabapentin to the rescue! I have been to a number of neurologists because I have bouts of vertigo. No answers from any of them. They enrolled me in vestibular pt with no good results. What do you feel the pregablin and escitalopram do to help you? So good to read your story.February 13, 2018 at 9:02 am #113887
I also had bilateral foot drop on both feet and months of physical therapy. I had to have surgery to correct the foot drop after the pt did not correct it. I am now back on my feet after two years:)February 13, 2018 at 9:57 am #113888
I agree with GH. However, they also make a carbon fiber AFO. https://www.alimed.com/afo/
Years ago I tried carbon fiber AFOs. Could have been 10 years ago. One of them cracked almost immediately. They told me no running, no jumping, no climbing, no golfing, nonsense. I went back to the ones GH describes. I do see many others wearing carbon fiber now.
There are at home exercises to help with your balance. One is to stand straight, feet together, ankles touching and cross your arms to opposite shoulders. Close your eyes. Do this between a door frame for something to grab onto. When you feel up to it, graduate to standing on a small pillow. Be very careful. Keep your eyes open at first if you must.
Do not quit your job. How will you provide for yourself if you quit?February 13, 2018 at 10:01 am #113889
And for Jill- could you be a little more specific? Surgery for GBS/CIDP muscle wasting, nerve signal loss induced foot drop sounds as if the ankles were pinned. What other options are there? Thanks if you share.February 13, 2018 at 3:53 pm #113892
JK – No my ankles were not pinned. It was to correct my foot drop. Transfer of single tendon, post tibial tendon, lengthening of achilles tendon/leg. It was a year ago, trying to find exact description; drowning in med papers and bills:(February 13, 2018 at 7:36 pm #113893
Jill Brickley – It sounds like the surgery was completed because of nerve damage thus muscle(s) weakness and decreased motion in the ankle.
JK – For an orthosis decision, you need to take into consideration: ankle muscle(s) strength,side-to-side ankle stability, and ankle range of motion.I would love to wear carbon AFOs but my ankles need more support than what the carbon AFO is able to provide so I wear custom, molded AFOs. Check with a physiatrist or physical therapist or orthotist to determine the best AFO option.
Balance activities: 1) Practice tandem walking; 2) Try keeping your balance while standing with 1 foot in front of the other foot (heel-to-toe) for as long as possible, 3) switch which foot is in front: 4) stand on one foot for as long as possible; 5) stand on opposite foot.February 13, 2018 at 9:29 pm #113894
Jill- thank you. No need to dig up paperwork. Your description is adequate. It also explains why I was only offered pins. Both my left and right tibials were compromised.
paronnee- thank you for the explanation and feedback.February 14, 2018 at 1:17 pm #113895
GH, Thanks,Neurologist suggest it is GBS long tern sequalae. It is worse now after 28 years of its onset.I tried a plastic AFO but it makes my freedom of walk bit difficult. I feel more difficulty in standing stable. I do not feel much difficulty in walking though walk slower with high steping.February 14, 2018 at 1:22 pm #113896
Thanks Paronnee for giving me motivation. I tried a plastic AFO but it makes my freedom of walk bit difficult. I feel more difficulty in standing stable. I do not feel much difficulty in walking though walk slower with high steping. Running and jumping is too difficult.February 14, 2018 at 1:37 pm #113897
Thanks Mackay,the pregablin and escitalopram that I took over a month helped me improved my attitude towards life and movement of big toe by 10-15% than earlier. I am also in relaxing mood as I took leave from work to take some rest and could proceed with some good prognosis.February 14, 2018 at 1:59 pm #113898
Thanks jk for your piece of advice and motivating me. Are you suggesting Romberg test type exercise to me?February 14, 2018 at 4:17 pm #113899
minazeer – Perhaps a physical therapy evaluation will be helpful to help with balance activities and determining an appropriate orthosis to help with stability. Custom, plastic AFOs definitely can be limiting and impact your daily function!
P.S. I am a PT :]
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