Bad news for Kevie

    • October 26, 2007 at 4:57 pm

      sorry no info
      Dawn Kevies mom

    • Anonymous
      October 26, 2007 at 6:25 pm

      Dawn – it is a HUGE positive that he can go that long without IVIG. HUGE! You do not even know how much I dream about getting Emily to that point. It’s a GIGANTIC advantage to him. Seriously!

      I’m going to email you later or tomorrow. If you need to talk you have my number. I gotta go though. Company just got here.


    • Anonymous
      October 26, 2007 at 6:38 pm

      Dawn I have you and Kevie in my prayers and my thoughts. May Gods blessings be with you’ll constanley (Steve)

    • Anonymous
      October 26, 2007 at 7:16 pm

      Dawn, I a msorry to hear that Kevie has CIDP and will have to endure this, but am happy that the ivig works so well for him. I can’t answer about the loading doses, I will leave that for the more experienced people here.

    • Anonymous
      October 26, 2007 at 9:15 pm

      [COLOR=red]Sorry I can’t offer advice,just well wishes.[/COLOR]

    • Anonymous
      October 29, 2007 at 8:05 am


      I’m glad you finally got some answers, I just wish they were better. It’s wonderful the IVIg works for him…

      Is Kevin going trick or treating ? What will he be ?

      best wishes that he gets over this.


    • Anonymous
      October 29, 2007 at 8:10 am

      So sorry to hear about the cidp diagnosis. You have been a rock for Kevie and many others here. Just know that we continue to remember you in our thoughts and prayers.

    • Anonymous
      October 29, 2007 at 9:45 am

      I am sorry that it’s turned out to be CIDP and not just residuals. However, just having a definite answer must be a comfort in a way. Not knowing what you should do is the worst. You were feeling there was something going on, and you were right!

      How is Kevie feeling about this whole thing?

      Hang in there. You are doing a great job! Kevie is lucky to have you in his corner.