Are these symptoms related to GBS diagnosis?
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January 28, 2014 at 8:11 pm
So my daughter was diagnosed with GBS Dec.27 2013.After coming home from her first hospitalization as she was recovering her ENTIRE right side of her face paralyzed. When she returned to a hospital for her second hospitalization the DR said he didn’t think it was related to her GBS. It was on its way back to normal when two days ago full paralysis of her right face returned. Also she has double and blurred vision and frequently feels light headed and dizzy. Is this normal for GBS? Im still waiting for her medical to be approved for follow up with a specialist but I am very concerned about her vision.
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January 28, 2014 at 9:16 pm
What you describe is almost identical to my experience with Miller-Fisher Syndrone. The right side of my face was numb and paralyzed. I couldn’t close my right eye or smile from the right side of my mouth. I had problems chewing because part of my mouth wouldn’t work right. My speech became slurred. My vision was blurred too.
MFS is a variant often associated with GBS. You can learn more about it in the frorums here: http://www.gbs-cidp.org/forum/miller-fisher-variants
In my case, the combination of Prednisone and GBS/MFS required surgery to remove cataracts and restore my vision loss. The biggest improvement for my MFS came after having Plasma Pheresis treatments.
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January 29, 2014 at 12:43 am
GBS is generally bilaterally symmetric, but I don’t know about Miller-Fisher, which some consider to be a variant of GBS. That should certainly be considered, but other possible causes should not be ruled out prematurely.
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