Anyone Have Hissing In The Ear?

    • Anonymous
      March 19, 2008 at 10:09 am

      I have had a hissing sound in my ear for about a year now. I have had a hearing test and had my ears checked several times. At every appointment I have been told that everything checks out fine. I hate to say it, but everything is not fine, this hissing in my right ear is driving me crazy. Can anyone shed some light on this?

    • Anonymous
      March 19, 2008 at 10:56 am

      [QUOTE=LamekaG]I have had a hissing sound in my ear for about a year now. [/QUOTE]

      Hi Lameka
      I am glad you posted this thread because I have wondered about the same thing myself. I have a type of ringing in my ears. It seems more prevelant in the right ear than the left ear, and sometimes it seems to go away and other times it is quite loud. I wondered whether there was any connection with the MGUS I have and I did some research on the internet, but could not find anything conclusive. I asked my family doctor about it but got the usual answer…a shrug and a dumb look.
      Last week I was doing research into proprioceptors which are the nerves that are affected by loss of myelin and result in loss of balance and sensation. I noticed in some literature that there are proprioceptors in the inner ears which assist in the balance mechanism (feet+ears+eye sight). I wonder whether these nerves in the ears are also affected. One article talked about the messages going to propriocetors which activate muscles and if in a disturbed state can cause tremors and shaking. Example is a cat purring although this is apparently the only tremor with sound. Nevertheless, I wonder whether the proprioceptors in the inner ears can go into a high speed type of vibration (tremor) which leads to the tinitus, or “ringing in the ears”.
      It will be interesting to [B]hear[/B] (no pun intended) if there are other ideas.

    • Anonymous
      March 19, 2008 at 5:18 pm

      As far as I can tell it is tinnitus. I have it most of my life and when I am tired I noticed that after getting the CIDP my hearing gets worse on those tired days of evenings. The ringing gets louder. Last year I had sudden hearing loss and I don’t know why but after I had my first 5 days of IVIG I got put on a high dose of prednisone for 2 weeks and the 3rd week weened off and my hearing came back to almost what it was before the sudden hearing loss.

      So Maybe the CIDP affects the nerve in our ears.


    • Anonymous
      March 20, 2008 at 3:59 am

      I have this too – hissing and popping. It’s better now than it was a month ago but when I get tired it comes back and is very distracting – sort of like being at the beach with fireworks going off. Since I’ve never had this before I attributed it to the CIDP since I know CIDP is affecting my cranial nerves. That being said – I know of at least three other people who have had tinnitus, hissing, popping whatever you want to call it – and they have never had CIDP or any other illness known to cause it other than stress. I’d be curious to see if anyone can think of a solution for this – it’s really annoying at times. If I have the energy taking a shower and letting the warm water run into my ear can bring a little relief but since I usually get the tinnitus in the afternoons I rarely have the energy for a shower then. 🙁


    • Anonymous
      March 20, 2008 at 7:58 am

      Good morning.
      Sue is right it is called Tinnitus. I have had it for over 25 yrs. Mine is a ringing sound and some days it is louder then it takes a vacation for awhile.My ENT doctor said working around loud noise (lawn mowers, chain saws, in a factory )It doesen’t have to be a high pitch noise. My dr said there was no cure. (there may be now)I have learned to accept it. (Steve)

    • Anonymous
      March 20, 2008 at 10:14 am

      I had “perfect” hearing until GBS . . . Now, strange noises and “blank” spots visit me every so often ~ most usually if I am over-tired. (I hear you, Gene 😀 )

    • Anonymous
      March 20, 2008 at 6:26 pm

      I too had what you described as a ringing type sound in my ear only with the onset of GBS. I am 4 years on from GBS onset now and can say i have not noticed the noise for quite some time now.