Anyone getting IVIG weekly?

    • January 26, 2018 at 7:50 pm

      If so, how much and was it effective for you? Mine isn’t holding so Dr. looking at decreasing bi-weekly dose and going weekly.


    • January 28, 2018 at 6:20 pm

      I get 100 grams bi-weekly. I still experience a lot of ups and downs, but I don’t get bottoming out that I got when I had the infusions monthly.

      In the long run, the IVIg treatments seem to pushing towards recovery, but damn if it isn’t incremental and the ups and downs often seem to blur the gains.