About nine month ago (in about October 2008), my nephew, who is 9-year-old, felt pain in the back of his neck, where near the foramen magnum. And the pain became more and more serious. About six month ago (in about January 2009), his right leg went outwards when he was walking. And later his right knee joint became weak and often suddenly bent when he move. Gradually he has the syndrome of ataxias, and can not walk straight forward, can not keep stable with eyes closed, and then cannot run, etc.
He saw doctor about three month ago (in about March 2009). The EMG examination indicated that his peripheral nervous system was damaged. The lumbar puncture demonstrated a raised CSF protein. The doctor combined the results of these examination and his symptoms, diagnosed him as CIDP.

Now he has been treated by immunoglobulin pulse therapy treatment three terms and also gradually reduced the intake of corticosteroids tablet. After the first week of taking corticosteroids, his neck pain stopped and a week later, the symptoms of ataxias was also became better. After more than three month treatment, all the symptoms described above seems improved.
But there are several other problems:
1. Since the treatment, his function of autonomic nervous system gradually damaged and become more and more serious. For example, the frequency of urination becomes much higher. And he often has the unfinished urinations feelings. He has to go to the loo more than six times a night (before he got ill he went to the loo at most once a night) and even much more during daytime. But the whole amount of the urines didn’t get much. Also the times of passing stools are three or four times more than before. There is a strange sounds often take place in his upper alimentary canal, especially one or two hours after meal. The question is that for CIDP the autonomic nervous system normally is not damaged, but why during the treatment while the sensory and motor nervous system improved but the symptoms described above become serious.
2. Also during the treatment, sometimes he felt some of his muscles ‘jump’. Why this happened? Is it bad or good symptoms?
3. How to prevent the CIDP from relapse? How to reduce the residual problems?
4. How about residual of CIDP children? How many rate of them can he totally recovered?
5. Our father got GBS many years ago, but only in few months he totally recovered. Is there any possible link between my father’s GBS and my nephew’s CIDP?

Any idea and any advice will be very appreciated.

About nine month ago (in about October 2008), my nephew, who is only 9-year-old, he felt pain in the back of his neck, where near the foramen magnum. And the pain became more and more serious. About six month ago (in about January 2009), his right leg went outwards when he was walking. And later his right knee joint became weak and often suddenly bent when he move. Gradually he has the syndrome of ataxias, and can not walk straight forward, can not keep stable with eyes closed, and then cannot run, etc.
He saw doctor about three month ago (in about March 2009). The EMG examination indicated that his peripheral nervous system was damaged. The lumbar puncture demonstrated a raised CSF protein. The doctor combined the results of these examination and his symptoms, diagnosed him as CIDP.

Now he has been treated by immunoglobulin pulse therapy treatment three terms and also gradually reduced the intake of corticosteroids tablet. After the first week of taking corticosteroids, his neck pain stopped and a week later, the symptoms of ataxias was also became better. After more than three month treatment, all the symptoms described above seems improved.
But there are several other problems:
1. Since the treatment, his function of autonomic nervous system gradually damaged and become more and more serious. For example, the frequency of urination becomes much higher. And he often has the unfinished urinations feelings. He has to go to the loo more than six times a night (before he got ill he went to the loo at most once a night) and even much more during daytime. But the whole amount of the urines didn’t get much. Also the times of passing stools are three or four times more than before. There is a strange sounds often take place in his upper alimentary canal, especially one or two hours after meal. The question is that for CIDP the autonomic nervous system normally is not damaged, but why during the treatment while the sensory and motor nervous system improved but the symptoms described above become serious.
2. Also during the treatment, sometimes he felt some of his muscles ‘jump’. Why this happened? Is it bad or good symptoms?
3. How to prevent the CIDP from relapse? How to reduce the residual problems?
4. How about residual of CIDP children? How many rate of them can he totally recovered?
5. Our father got GBS many years ago, but only in few months he totally recovered. Is there any possible link between my father’s GBS and my nephew’s CIDP?

Any advice and ideas will be very appreciated.