You go girl…
What a great post, I am so happy because you sound so happy. We are still caring for our mothers’ needs (not in our home though), & it can be so draining. Sunshine is also so good for everyone as well. MN has been great the past few weeks, but already I am beginning to dread winter, LOL! I am terribly proud of you, keep active & join lots of stuff…
You go, girl!
It is awesome that you feel better. Please do not feel bad to tell us. We celebrate that you do feel better. It must especially feel better to be breathing easier and not be so scared about that. We all hope that you continue to get better and stronger. Just take your time. Your body is/has gone through a lot in the last seven months and it will take time to recover from how hard it has been.
When I first got Guillain-Barre, I read this paper about hypotheses about this and reflex sympathetic dystrophy. The writer hypothesized that both illnesses were from reprograming of the nervous system to be oversensitive. It made me really mad then, but this week I went to a Neuropathy support group and the neurologist there also talked about the feedback loops that happen–that sensory changes no longer get filtered out/down and the brain focuses on them (sort of like a dripping sink most of the time does not bother you, but it you have a headache after a stressful day, it seems the drips will drive you bezurko!). Minds are extremely powerful to heal. We are proud of you that your mind is helping to make this better whatever the cause.
WithHope for a sure of these diseases
you go girl!!!!!!!!
Was sorry to hear things havent been going so well for you beth. Can empathise with all you are saying, ‘oh to hop in car and go buy something, making plans for the day and then realising oh thats right legs dont work too well etc’ yup it can be crap alright. on the other hand people who dont have CIDP still dont know what today or tomorrow let alone in 10 yrs time holds for them. just focus on getting thru this day, tomorrow could easily be a slightly better day, and lets face it, even slightly better for us (with CIDP) is something to celebrate so make sure you are kind to yourself.
I found if i got to the teary (or yelling at the kids stage!!!) it was really nap time! after a couple hours of recharge – and that meant sleeptime not just a put the feet up- i could cope a bit more. fatigue is such a hugely under-rated factor of CIDP so maybe structure it into your day!!!
Am glad you are now feeling a bit better – i hope it is onwards and upwards for you also.
all the best, and keep us posted
kia kaha – stay strong
You go, girl!
Gab, fight ’em as long and hard as you can! You and I know how this deal works and the squeaky wheel gets the grease. Your doc should be your champion in this and see that Great West steps up and pays. When I was an OB nurse I dealt with Great West ins. …99% of the time they paid up when the doc battled them over a dx / payment. It’s a shame that it takes that to get them to cover what they know should be covered…but anytime they can get out of paying and save that $$$, they’ll do it. They hope you’ll give up and let them off the hook.
What’s so frustrating is that this requires you to use up your small reserve of strength to battle these morons. You are in my prayers!
You go, girl!
Good for you, Tonya! We’ve pontificated in the past about whether or not us GBSers are type A personalities. Your list sounds full and it’s wonderful that your recovery is going so well. Do pay attention to your body’s language. It will let you know when you need to back off and when you can jump on again. Continue to count and share the blessings!