November 15, 2011 at 9:17 pm

[FONT=”Microsoft Sans Serif”]Hello Shirley,

I don’t know if this has happened to others exactly. But my instinct tells me that if you were perfectly fine prior to GBS, that your eye opening problem most likely is associated.

Pardon me if I speak out of turn, I don’t have GBS, I had CIDP. But the conditions are similar and when at my worst, I too had eye, mouth and other issues– clearly brought on by the nerve demyelination.

I know this is a point of controversy among some, but I feel the neurology profession is inadequately equipped to properly deal with and treat our conditions. The symptoms vary too much with each person, too little is known and egotism gets in the way, all too often, for proper care to ensue.

My advise to you is to seek second and even 3rd opinions and be your own strong advocate for your medical condition.

Perhaps what you are dealing with is only a residual– but it might be prudent to seek another opinion– perhaps at a teaching hospital.

I wish you the best!



February 15, 2009 at 3:11 pm

Hope i’m not to late!

1. Dale Earnhart Jr. 88
2. Kyle Bush 18
3. Tony Stewart 14
4. Jimmy Johnson 48
5. Jeff Gordon 24
6. Mark Martin 5
7. Matt Kenseth 17
8. Clint Bowyer 33
9. Kevin Harvick 29
10. Kasey Kahne 9
11. Ryan Newman 39
12. Kurt Bush 2
13. Carl Edwards 99
14. Denny Hamlin 11
15. Martin Truex Jr. 1


January 29, 2009 at 2:30 am

You do the hokie pokie and you twist it all about and when you turn the lights out you and hubby can do some more hokie pokie. ๐Ÿ™‚
Forgive me Shirley as I could not resist.
I do think you will improve alot as time progresses.



January 14, 2009 at 8:24 am

That is what I am talking about…the waiver of the premiums. I am glad you got the money refunded and don’t have to pay that anymore. Every bit helps nowadays. lol ๐Ÿ™‚
Shirley, I think I will start a thread to alert others who may not see this thread, and give them a heads up about the premium waiver.

God bless,


June 2, 2008 at 3:49 pm

Have you had any tests or procedures. ? MRI or CAT scan to see if there is anything wrong with you spinal column?
What are the MD’s saying
Hope you find an answer soon.