Reply To: Facial tingling and numbness

I contracted GBS in 2008 and my neuro diagnosed me with CIDP/MFS a few months later. I had serious numbness and tingling in my eyes, mouth, cheeks … mostly on the right side of my face. I could not close my right eye, could not smile (right side), had slurred speech, and difficulty eating.

Today I speak almost normally, I can close my right eye (not as tightly as left), but I still have slight tingling and numbness in the face. I hardly notice it any more because it has become part of me.

I do not think I am a “typical” CIDP patient and most people experience greater improvement than me. However, many with CIDP report still having some residual numbness and tingling many years after the initial onset.

For me, Plasmapheresis did more to control the numbness and tingling than IVIg ever did.