Hi all , the last 3 weeks ive been getting cramps in my legs and hands , i mentioned it to my G P and he said its probably from my blood pressure tablets but ive been on them for ten years and never had cramps like this before. Im sure its gbs related . I will ask my neauro next appt. 🙂

I have CIDP, and before being diagnosed I suffered leg cramps; usually when swimming. After being diagnosed I was told the cramping was a symptom. They stopped for a while after I began receiving IVIg infusions, but mysteriously started again when I was sleeping. It was suggested to add a supplemental Vitamin E to my diet. For me it seems to work. My leg cramps have stopped.

i too get cramps and charlie horses in my legs, feet and hhands. I’ll try the dish soap next time thanks.
Connie

I am on 19 different pills, as the CIDP progresses through my autonomic system.
A long time ago, I used to get muscle spasms and very bad leg/toe/finger spasms and cramps. The doctor put me on Flexeril 10mg three times daily, and brought the spasms and cramps to a minimum.
About two months ago, I tried to see if I could go off the Fleril, since I am on so many pills. I hoped the cramps and spasms were in my past.
But…it didn’t work. The spasms and cramps came right back with a vengeance, and could not get a decent night’s sleep.
Needless to say, I am back on the Flexeril.
Kedaso

quinine (sp)? is in tonic water. it comes in pill form too. it’s cheaper to drink tonic water.
deb 🙂

I also get severe cramps in my lower legs. I especially have trouble when swimming or after walking a longer distance. Also, anytime that I am not able to hold my feet at 90 degrees (the general footdrop position), within 15-20 minutes I can be sure of a muscle cramp coming on. While I only had a mild case of GBS (I am about 30 days post-onset) and am already walking, mowing-yard, working as I can, the cramps are definitely difficult.