Reply To: Damm once again

January 4, 2017 at 4:12 pm

GBS usually peaks in 4-6 weeks and then begins to improve. GBS is almost always a one-time event and will rarely reoccur. However, GBS can return as RGBS or in the chronic form of CIDP. There are other peripheral neuropathies/variants too that are similar. Here is a summary about the various autoimmune disorders:
http://www.nlm.nih.gov/medlineplus/ency/article/000816.htm

The length of time it takes to heal from GBS varies greatly by individual and the severity of demyelination. Residual symptoms may last for years after most of the healing is done.

If your autoimmune system is still producing antibodies that attack “self”, you may want to ask your doctor about trying Plasma Exchange (PE) treatments. This is the primary way of removing those antibodies from your system. IVIg, SCIg, and often Prednisone, will stop your autoimmune system from producing more of those antibodies, but won’t remove what’s there, that’s the job of PE. Another newer option is Rituximab. You can search these forums for more info about it.

Here is May 2016 article that covers the disease well. It may give you and your doctors some ideas of how to best help you:
http://emedicine.medscape.com/article/1172965-overview

Another good publication is here:
http://30g7el1b4b1n28kgpr414nuu.wpengine.netdna-cdn.com/wp-content/uploads/2012/01/OverviewENG.pdf

I hope you get the treatment you need and get out of the hospital soon.